Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 01-25-2007, 11:56 AM #11
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I take tylenol PM, but I wouldn't suggest you do it unless you ask your doctor. I'm on several medications, including pain meds, and first asked my dr. if it was okay to take the tylenol PM also. He did say it was okay. However, I do take 3 of them, instead of the 2 recommended on the bottle.
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right Side TOS Decompression Surgery 12/2005
RSD Exacerbated after surgery
Still have TOS on left side
RSD On right side, currently in hand, forearm (underside), shoulder, chest, to hollow of throat, and in left hand creeping up into left wrist
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Old 01-30-2007, 02:37 PM #12
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Quote:
Originally Posted by LisaM View Post
I take tylenol PM, but I wouldn't suggest you do it unless you ask your doctor. I'm on several medications, including pain meds, and first asked my dr. if it was okay to take the tylenol PM also. He did say it was okay. However, I do take 3 of them, instead of the 2 recommended on the bottle.
I take Tylenol PM sometimes, and it does help! Thanks. I try to use it when I need it the most...
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Old 01-31-2007, 01:29 PM #13
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Default My answer to sleep

I have had RSD for for 10 years. Up until the last 4 years it was manageable
with medication. However, that was when it spread throughout my entire
body and my sleep problems began.

I have had problems sleeping for the last 4 years. The longest period of
'no sleep' for me was 18 days. Normally I would go 5 or 6 days with no sleep, then just totally pass out for a day then repeat the cycle over and over
again. It got so bad that I would drop off to sleep standing up, and then
fall. My husband began having to watch me all the time to make sure I would
not hurt myself. That is when I decided I had to make my doctors understand
that I had to have something to make me sleep and that I would do or take anything necessary in order to sleep. Everything I read told me that without sleep, nothing works right in your body.

Luckily, my doctor new of a psychiatrist who was doing research on finding
meds, that were prescribed for one thing, but would work for something
else. We tried several things that didn't work. Then he put me on REMERON.
I started on a low dose, which didn't work, but kept increasing it until it did
the charm. I had forgotten what it was like to get in the bed at night and
not wake up until morning. I still have those nights that I wake up from a
deep sleep screaming of pain, but I can live with that.

I know there are meds that work for some and won't work for others. But I
hope that if you haven't tried this, that you will talk to your doctor about it,
to see if it might work for you.

Melissa
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Old 01-31-2007, 06:26 PM #14
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Quote:
Originally Posted by frogga View Post
Took Amytrip

Totally Zombified me.

I will NEVER take it again.

Some people find it helps though.

Rosie xxxxxx
Rosie, were you taking it for sleep?
Just wondering, cuz I was thinking- it won't bother me if it does zombify me because I am taking it to sleep. But, then again, maybe if it zombifies me so much that I can't even sleep it off, that wouldn't work!

I think it has a double effect- sleep and some pain relief... we'll see if it works!

Hope you are well!
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Old 01-31-2007, 07:11 PM #15
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hey

zombie eg wake up next morning and cant function mentally for about 3 hours (even taking it at like 8pm). but others i know take 75mg at night and are okish in the morning.

good luck!!!

rxxxxxxxxx
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