Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 07-17-2009, 03:36 PM #1
sue k sue k is offline
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sue k sue k is offline
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Join Date: May 2007
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So sorry your having the spasms. They can be pretty bad at times. I've had rsd now for 10 yrs. At first my foot wouldcurl up so tight and my husband would have to try and get the foot straight again. Now i get them when i take off my brace at night. My doc raised my oxycontin dose from 20 mg. To 80 mgs and this has helped alot.not so happy about taking such a high dose, but it has done wonders for the spasms. I hope you can find something that workes for you.

Sue k
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Old 07-17-2009, 10:11 PM #2
denise18 denise18 is offline
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I've had rsd 21 yrs. the first 4 yrs. I jerked almost constantly, pt, surgery , drugs didn't help. massage therapist convinced me to see a chiropractor. He used a hand activator that gently tapped neck. Shockingly I quit for hours. i went every day, then every other day for couple of mnths, finally once a month. It was painful because my other muscles hurt because they had been out of alinment for yrs. but it worked,( I rarely jerk now, sometimes muscle spasms) also made colon and bladder problems.bearable.( don't know how that worked but loved it) my leg was also shorter and a little curled and it made it better too. he retired and i used massage and reflexology but finally saw reg chiro and he keeps me going. I saw him for 6 mths before i let him touch my neck.(if tapping made me quit jerking, popping might make me start back) but it didn't ( still grosses me out when he does it.) I've been seeing him for abt 6 yrs, he even massages neck and back so ins pays for it. I know Chiro isn't for everyone but it has been a miracle for me.
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