Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 08-08-2009, 08:21 AM #1
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WC Injury 03/24/07;Two Right Knee Surgeries on 5/22/07 and 01/16/08. Surgeons and Physical Therapists ignored my concerns of burning pain, swelling, and no improvement and getting worse. Diagnosed RSD/CRPS I/Sympathetically Mediated Pain Syndrome/Chronic Pain on 06/2008 by family doc;on 08/2008 and 12/2008 diagnosis confirmed by two WC PM Doctors: Both legs;hips; hands; and spine effected by this culprit. SSDI granted 01/2009.
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Old 08-08-2009, 11:36 AM #2
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Hi Woodsman,

I wasn't saying that it is a brain tumour , just that that is one of the many things that they rule out. Obviously I don't know your history but it sounded like your Otolaringologist was dismissive of you and your complaints. Personally I'd go for a second opinion.

When I was sent home from the emergency room with no answers and no help the tinnitus was still getting worse and I got really scared. The doctors who examined me in emerg just weren't connecting the dots and I was only seen by a resident ENT doctor who basically shrugged his shoulders and treated me for a migraine, I knew it was not a migraine.

I turned right around and went and went directly to the ENT department. I did a sit-in until the head of the department would see me. He ultimately and they got me the right help.

I hope you do find out what is behind this and get the right treatment.

MsL
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Old 08-08-2009, 09:14 PM #3
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We'll be prayin for ya here too bro, the inner ear has a bunch of things that can go wrong and can be real complicated. They may never get to the root of the problems.
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Old 08-13-2009, 04:46 AM #4
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Default that's what I am thinking too

Quote:
Originally Posted by allentgamer View Post
We'll be prayin for ya here too bro, the inner ear has a bunch of things that can go wrong and can be real complicated. They may never get to the root of the problems.
Yes, Allen, I have resigned myself to living with this problem.
I have spent too much time in the medical system in the early years and have no intention of getting into that rut again now for something I can live with.
If it is a problem with the brain, nothing can be done about it anyway. People will just have to put up with me.

Thanks,
woodsman
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Old 08-14-2009, 08:36 AM #5
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I can hear but I have ear pain/pressure which I think is from my eye pain and pressure. I too also had another mri of my brain and the ear. This was not only to look at tumors but fluids or other things which I am not sure what pressing. I am assuming you are not in the US but is there any way you could get one? I had been to all the other specialties like the ear doctor,11 eye specialist etc and the pain was so high I went back to my neuro who did the mri again. I had one a year ago for my legs of the brain though. Have you been tested for other conditions like auto immune in addition?Feel better
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Old 08-13-2009, 04:38 AM #6
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Default thanks MsL

[QUOTE=Mslday;549193]Hi Woodsman,

I wasn't saying that it is a brain tumour , just that that is one of the many things that they rule out. Obviously I don't know your history but it sounded like your Otolaringologist was dismissive of you and your complaints. Personally I'd go for a second opinion.

If I lived in the big city, I probably would go for that second opinion but, as it is, I would have to travel about 200 miles to get to a good ENT. I have lived with this for a long time and can continue to do so for the next 45 years, unless it gets much worse.
Thanks again.
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