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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Having a real bad week, scared!!!!

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Old 08-08-2009, 08:12 AM #1
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A Positive Attitude Will Assist Me Toward An Active Life, Once Again
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WC Injury 03/24/07;Two Right Knee Surgeries on 5/22/07 and 01/16/08. Surgeons and Physical Therapists ignored my concerns of burning pain, swelling, and no improvement and getting worse. Diagnosed RSD/CRPS I/Sympathetically Mediated Pain Syndrome/Chronic Pain on 06/2008 by family doc;on 08/2008 and 12/2008 diagnosis confirmed by two WC PM Doctors: Both legs;hips; hands; and spine effected by this culprit. SSDI granted 01/2009.
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loretta (08-09-2009)
Old 08-09-2009, 08:54 AM #2
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Originally Posted by sue k View Post
WELL I WENT TO TURN AROUD AND TRIPPED OVER A TOY ONE OF THE KIDS LEFT OUT. I SPUN AROUND SO HARD AND LANDED ON MY BUTT. I TRIED TO GET UP AND THE PAIN SHOT UP MY LEG. I COULDN'T OFF OF THE GROUND. I SCREAMED FOR MY HUSBAND. IT STARTED SWELLING SO FAST BY THE TIME HE GOT THERE IT WAS LIKE A BALLOON & PURPLE. THEY GOT ME INTO THE CAR AND I SCREAMED ALL THE WAY TO THE HOSPITAL. WELL I BROKE MY KNEE IN TWO PLACES. OF COURSE ITS THE LEG WITH THE RSD. IT HURTS SO BAD, THE PAIN CLINIC DOUBLED MY DOSE OF OXYCODONE. i GO TO THE ORTHO DOC ON MONDAY. THEY SAID I MIGHT NEED AN OPERATION. I AM SO SCARED.

Sue,

OMG! No!!!

I would be scared too. You broke your knee in two places and it's the RSD leg? I hope they are willing to do surgery on it as the fracture probably can't remain as is.

Keeping my fingers crossed for Monday.
Let us know what happens!
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Work related (car) accident September 21, 1995, consequences:
- chondromalacia patellae both knees
- RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008
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Old 08-11-2009, 07:04 PM #3
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Sue,

OMG! No!!!

I would be scared too. You broke your knee in two places and it's the RSD leg? I hope they are willing to do surgery on it as the fracture probably can't remain as is.

Keeping my fingers crossed for Monday.
Let us know what happens!
Sue,
Please know we are thinking of you day and night. Please let us know, when you are up to it, what they need to do to make your life better. It's such an easy thing for us to fall. Take care, and sounds like you are in good care. Your friend, loretta soft hugs
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Old 08-11-2009, 08:35 PM #4
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Shocked Wow Yeouch!
Aww Sue.. Big healing cyber hugs hon,
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Old 08-16-2009, 06:17 PM #5
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Thanks everyone,
having the operation on the 19th. Doc said the knee is pretty much ruined. Its been hard , going crazy just sitting here. Good thing my pain doc talked to the ortho. They will be doing a block before they put me to sleep to try and stop a rsd flare. Thankyou for all your thoughts and prayers. You guys are the only ones who understand.

Sue k.
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Old 08-16-2009, 06:49 PM #6
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Dear Sue -

So sorry to hear about the prognosis on the knee. Are they putting in some sort of a replacement joint?

The one thing that is reassuring is that after years of perfecting the art, you have probably got some of the best coordinated care out there. You should come out of this just fine.

Good luck, or as is said in some quarters, Break a Leg!

Mike
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Old 08-16-2009, 08:22 PM #7
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Quote:
Originally Posted by sue k View Post
Thanks everyone,
having the operation on the 19th. Doc said the knee is pretty much ruined. Its been hard , going crazy just sitting here. Good thing my pain doc talked to the ortho. They will be doing a block before they put me to sleep to try and stop a rsd flare. Thankyou for all your thoughts and prayers. You guys are the only ones who understand.

Sue k.
That's a few days away - please take care of yourself in the meawhile. I am so sorry - all of us are so vulnerable, aren't we? If we get sick, or hurt, it's very different and very scary, and not at all like it was before we had RSD.

I am glad that your PM doc and ortho have a plan. Keep in touch and let us all know how you are doing. We are here for you.

Sandy
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Old 08-17-2009, 10:09 AM #8
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Quote:
Originally Posted by sue k View Post
Thanks everyone,
having the operation on the 19th. Doc said the knee is pretty much ruined. Its been hard , going crazy just sitting here. Good thing my pain doc talked to the ortho. They will be doing a block before they put me to sleep to try and stop a rsd flare. Thankyou for all your thoughts and prayers. You guys are the only ones who understand.

Sue k.
Sue,

I wonder what they're going to do with your knee? Full knee replacement?

Hope all goes well Wednesday! Keeping my fingers crossed.
Hang in there!
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All the best, Marleen
=====================
Work related (car) accident September 21, 1995, consequences:
- chondromalacia patellae both knees
- RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008
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Old 08-17-2009, 11:57 AM #9
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Quote:
Originally Posted by sue k View Post
Thanks everyone,
having the operation on the 19th. Doc said the knee is pretty much ruined. Its been hard , going crazy just sitting here. Good thing my pain doc talked to the ortho. They will be doing a block before they put me to sleep to try and stop a rsd flare. Thankyou for all your thoughts and prayers. You guys are the only ones who understand.

Sue k.
Hi Sue,

So sorry to hear about the need for the upcoming surgery and your injury! I think it's something we all dread as RSD'ers if we have another injury. In April of this year, I fell and my doctor thought i'd severely fractured my arm as it sweltn up and went blue and black. After several xrays, it turned out it was "just" the RSD and something that i'd have to try and 'deal with' until it got better. I'm glad it wasn't broken as i'm not sure what i'd have done!

It sounds as though your doctor has been pretty understanding which is a good thing - hopefully that will help you and he will be able to come up with a plan ease any additional pain from the surgery!

You will be in my thoughts on the 19th and I hope all goes well and you have a fast recovery! Remember to take it easy and don't do too much!
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