Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 08-17-2009, 01:15 AM #31
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Dear Sue,

I know this surgery in the near future is a scary prospect for you. It sounds like you have your doctors doing what needs to be done to fix you up and counter the spread of the culprit we all share. I am sorry you have to endure this surgery. Please know that you have friends that care about you and we will be here to uplift you through all aspects of your knee surgery and recovery.

Sending warm, healing thoughts,
Dew
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WC Injury 03/24/07;Two Right Knee Surgeries on 5/22/07 and 01/16/08. Surgeons and Physical Therapists ignored my concerns of burning pain, swelling, and no improvement and getting worse. Diagnosed RSD/CRPS I/Sympathetically Mediated Pain Syndrome/Chronic Pain on 06/2008 by family doc;on 08/2008 and 12/2008 diagnosis confirmed by two WC PM Doctors: Both legs;hips; hands; and spine effected by this culprit. SSDI granted 01/2009.
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Old 08-17-2009, 10:09 AM #32
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Quote:
Originally Posted by sue k View Post
Thanks everyone,
having the operation on the 19th. Doc said the knee is pretty much ruined. Its been hard , going crazy just sitting here. Good thing my pain doc talked to the ortho. They will be doing a block before they put me to sleep to try and stop a rsd flare. Thankyou for all your thoughts and prayers. You guys are the only ones who understand.

Sue k.
Sue,

I wonder what they're going to do with your knee? Full knee replacement?

Hope all goes well Wednesday! Keeping my fingers crossed.
Hang in there!
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All the best, Marleen
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Work related (car) accident September 21, 1995, consequences:
- chondromalacia patellae both knees
- RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008
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Old 08-17-2009, 11:57 AM #33
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Quote:
Originally Posted by sue k View Post
Thanks everyone,
having the operation on the 19th. Doc said the knee is pretty much ruined. Its been hard , going crazy just sitting here. Good thing my pain doc talked to the ortho. They will be doing a block before they put me to sleep to try and stop a rsd flare. Thankyou for all your thoughts and prayers. You guys are the only ones who understand.

Sue k.
Hi Sue,

So sorry to hear about the need for the upcoming surgery and your injury! I think it's something we all dread as RSD'ers if we have another injury. In April of this year, I fell and my doctor thought i'd severely fractured my arm as it sweltn up and went blue and black. After several xrays, it turned out it was "just" the RSD and something that i'd have to try and 'deal with' until it got better. I'm glad it wasn't broken as i'm not sure what i'd have done!

It sounds as though your doctor has been pretty understanding which is a good thing - hopefully that will help you and he will be able to come up with a plan ease any additional pain from the surgery!

You will be in my thoughts on the 19th and I hope all goes well and you have a fast recovery! Remember to take it easy and don't do too much!
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