Could this be RSD?

nancyinLA · 08-13-2009, 10:36 PM

hello, all! this portion of loretta's message:

RSD is a autonomic disorder affecting internal organs that are involuntary. It affects the Limbic part of our brain, depression, speech slowness, memory recall, We sweat, We don't do well in the cold. Our circulation is affected. Depression is a symptom. Anxiety- is part of it. Stabbing pains is something I had. Burning pain,electric jolts, jerks, spasms.
Insomnia is something very very common. Sensitivity to touch or wind or clothing is huge. I went thru about 150 physical therapy treatments to get both shoulders that were frozen- back to nearly full range of motion. I also did massage therapy on my own. My hand therapist did desensitization, which was extremely important to get use of my limbs back. I did it at home also dailey. I took about 6 plastic bowls and put cotton balls in one, coffee grounds in another, popcorn kernals, rice, sand. Just gradually getting our limbs used to feeling different textures helps. I can no cut my own food, peel potatoes, etc. Therapy is difficult, I was given pain meds before treatment. Fourteen years later, I still stretch, and exercise. Swimming is one of the best ways to keep moving-Water needs to be 86 degrees. Walking, doing what we can helps to keep mobile.

that's me.....i'm just 16 months out. started in my left wrist & arm - gone 2 my left foot. depression, speech slowness, memory loss....all of that!
and the most humiliating or embarr. is having my husband cut up my steak - or anything like that - when we go out 2 eat......
do people not understand???
SORRY, better stop the pity party! but i do understand everyone. wishing all of u a good wkend....

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