Hello All:

I've been going to drs for over a year and still don't have an official dx. My neuro wants to send me for Mayo because he thinks I may have RSD.

My problems started when I had a repetitive strain injury and in the following order:

pain, numbness, tingling in hands (both)
progressed to forearms (both)
mottled skin in both arms (shoulders to hands)
pain in elbows, moved up to biceps

Symtoms stayed there for approximately 6 months. Diagnosed with TOS (had chronic neck and shoulder pain for years). Immediately before first surgery, numbness in right foot started..

Numbness turned to pain, deep in the bone type pain
Pain spread up to right knee
Pain in left foot and up to left knee

Had second surgery (more major than first surgery). Since surgery a whole new set of symptoms appeared:

fatigue
migrane
insomnia
depression
pain spread up to right leg at hip joint
at times difficulty lifting right leg (as in climbing stairs)
difficulty concentrating
forgetfullness
vision trouble

I've been tested for RA, lupus, Lymes, Thyroid issues, diabetes, etc. - all negative. I was considering Fibromyalgia, but doc said no. I don't have the tender points. The reason I thought maybe Fibro is that my symptoms are so much worse during that time of the month.... Another reason it's probably not Fibro is that I'm able to exercise and not feel fatigued afterwards.

I also have an incredible stiffness in my neck, shoulders and upper back at times. Sitting for more than one hour causes pain and stiffness in my knees. The pain is sometimes prickly, sometimes like someone is sticking a thousand knives in you, and sometimes a deep in the bone pain. If something touches my arms, it can cause pain. I also sometimes have intense pain under my rib cage.

I don't have hair or nail changes, nor any noticable swelling. Does this sound like it could be RSD?