Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 08-13-2009, 03:26 PM #6
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Join Date: Aug 2009
Location: El Paso, Texas
Posts: 23
10 yr Member
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Hi, i am also new to RSD and whoa, this has been quite the rollercoaster ride for me. I had 2 left knee surgeries 7 and 6 years ago, here just recently my left knee went haywire on me. I had an MRI which showed speckled marrow replacement w/ fatty marrow and I guess that was the last nail in the coffin and was DXed about 2 weeks after. I have an awsome physical therapist who is working with me right now b/c i lost some of my theigh (all will soon learn that i cannot spell lol) muscle and we are also working on desensitizing my knee. Whenever my foot feels that "i'm frozen" burning pain, i just put on some really soft, fuzzy socks and move it around to get the blood flowing. I do the same thing when my knee or leg starts to feel that way, I start moving. Yeah, at first it hurts, but the more I get the blood moving, the better it starts to feel. No, it does not feel 100% better, but it's not that burning, stinging, pins and needles anymore, it's more tolerable. I hope this helps, like I said, i'm completely new, hasn't even been a month. Just stay focused and positive and vent, vent, vent to those who you feel will understand and not judge you. I am sorry that you have this, but it is what it is and we just have to keep keeping on.
Val
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