First I would like to cation you all that they will lie to you. They sent me to the detox unit to get off the narcotics...fine...they said I wasn't addicted just physically dependant,. Turns out I wasn't...i never had withdrawls there. On top of it when I got up to my room they searched my bags and took my smokes and lighter. I had to do a breathalizer, and give a urine sample.
No one prepared me for this or the fact that my family couldn't even come and see me!!!
I got out of there in record They just told me to do it anyway. I was in pain and bawling. The answers to getting flairs was that I was just going to have to tough it out. So I do what I can
To make it worse I was in a car accident the other day and my casemanager is giving me a hard time to get back to the clinic asap. I told her when I was cleared by my doctor I will. She acctually had called up a nearby hospital to see if I had been taken there.....of coarse I went to a different one. Am I wrong or is this none of her business? I told her she had no right looking into my medial records not pertaining to L&I! She seems to think I can. The worst thing is not that i was taking the saboxone everyone this I am an addict and wouldn't even give me pain meds after the reck. I hurt emotionally, spiritually and physically worse now than ever.
Don't get on suboxone ever....it doesn't help for pain...you still get bad withdrawls coming off of it and then they take away all the rescue meds. Now I have nothing!!!! I sleep so little....when I flair I want to die....I try it all the relaxation tapes, slow ROM, anything. To top it off they won't let me use my compression bandage (keeps my swelling down and helps desensitize) so now I am getting hypersensitive again.
Thank you all for you support.
I will try and let you know more as I go....
Hope this finds you all well and in a low pain day!
Jennelle

[QUOTE=Jennelle;552323]First I would like to cation you all that they will lie to you. They sent me to the detox unit to get off the narcotics...fine...they said I wasn't addicted just physically dependant,. Turns out I wasn't...i never had withdrawls there. On top of it when I got up to my room they searched my bags and took my smokes and lighter. I had to do a breathalizer, and give a urine sample.
No one prepared me for this or the fact that my family couldn't even come and see me!!!
I got out of there in record They just told me to do it anyway. I was in pain and bawling. The answers to getting flairs was that I was just going to have to tough it out. So I do what I can
To make it worse I was in a car accident the other day and my casemanager is giving me a hard time to get back to the clinic asap. I told her when I was cleared by my doctor I will. She acctually had called up a nearby hospital to see if I had been taken there.....of coarse I went to a different one. Am I wrong or is this none of her business? I told her she had no right looking into my medial records not pertaining to L&I! She seems to think I can. The worst thing is not that i was taking the saboxone everyone this I am an addict and wouldn't even give me pain meds after the reck. I hurt emotionally, spiritually and physically worse now than ever.
Don't get on suboxone ever....it doesn't help for pain...you still get bad withdrawls coming off of it and then they take away all the rescue meds. Now I have nothing!!!! I sleep so little....when I flair I want to die....I try it all the relaxation tapes, slow ROM, anything. To top it off they won't let me use my compression bandage (keeps my swelling down and helps desensitize) so now I am getting hypersensitive again.
Thank you all for you support.
I will try and let you know more as I go....
Hope this finds you all well and in a low pain day!
Jennelle[/QUOTE

Hi Jennelle,
I am so sorry you have been thru this nightmare. I remember you posting about going. I don't understand exactly what or why you were going into this detox hospital. Do you have a RSD Dr.? Do you have an attorney to protect your legal rights for your medical coverage?
I've had RSD 14 years, now full body or generalized. I've been on vicodin for years. And lorazepam for anti-anxiety- it calms the sympathetic nervous system down. I wasn't sleeping well at all-not getting to sleep till 5-6 a.m. for weeks. My Dr. took me off ambien cr and put me on seroquel low dose. 300 mg. He has been doing a trial study with 200 people for seroquel and see how people did with fibromyalgia. He found it to be a great sleep aid in addition. So I've been sleeping 9 restorative hours minimum for 3 weeks now. He cut my anti-anxiety med in half and left the vicodin up to me. I went back and told him I had cut the vicodin down from 6 a day to 3 a day-even 2 occassionally.
One of my very best friends is a alcohol and drug counselor in Oregon. That's where we are from. They were just here for 2 weeks this spring. I dont understand why they won't let you have pain meds for RSD including flares. It's really important to keep our pain level down thru pain meds, relaxation techniques, stretching, meditating, a lot of different ways to calm ourselves down. But I don't know anyone that can get by without taking some form of pain medication. RSD is one of the most painful disorders a person can have. It's rated 42 on the McGill Pain Scale.
Medical records are confidential. How is it that this lady has access to your car accident records?
I'm just not getting the reasoning of what you are going thru. I understand when people go into treatment for alcohol or drug abuse. But I guess i don't know anything about the sub. drug you got off of. Please explain this to me. We all want to be here for you! Take care, loretta

Hi Jennelle,

I am so pleased to see you post as I have been concerned about you. I am so sorry that you have gone through so much in the last few weeks. Did you have injuries from the car accident? I will continue to keep you and yours in my meditation prayers.


You are very courageous and I want you to picture yourself as this powerful, beautiful creature, with the strength like no other. Stay strong, and reach out whenever you can as you are cared about and most important, not alone.



Dew

Hi Jenelle,
I can't believe they won't let you use your compression bandage to help keep the swelling down..it's not like you will become addicted to the bandage!!!!
That is not good medical practice on their part to not let you help yourself with the swelling! Is there anyone you can speak to, to at least get that back?
I am sorry you had a car accident on top of everything else with no help with the resultant pain..Is there anyone advocating for you?
We re thinking of you during this lonely time ...but you are not alone because we are all here for you! This will be over ..focus on the horizon if you can...
Hope4thebest..

Dear Jennelle -

I am so sorry to see what they have been putting you through. It was not for nothing my uncle, a retired psychiatrist in Seattle, in response to inquiry for a referral I put to him a year ago, urged seriously ill CRPS patients to steer well clear of the Seattle area.

From your posts, I assuming that your pain clinic is affiliated with the Univeristy of Washington. It is my understanding, that they as heavily invested in the so-called "cognitive-behavioral" school of pain management as any place in the country. By this I mean they believe that the pain pattern experienced in the brain can be "broken" almost through sheer will alone, much as one might break a wild horse. With the most pernicious aspect of this approach being found in the notion that when the treatment is unsuccessful, it is - conveniently - on account of "resistance" of one sort or another the the patient is offering to the therapy. It also offers something of a "one size fits all approach" to the threatment of almost all forms of chronic pain. (And for both of these reasons is much beloved be the workers-compensation industry.) See, e.g., "Mediators, moderators, and predictors of therapeutic change in cognitive-behavioral therapy for chronic pain," Turner JA, Holtzman S, Mancl L., Pain 2007 Feb;127(3):276-86. Epub 2006 Oct 27.

Department of Psychiatry and Behavioral Sciences, University of Washington School of Medicine, Seattle, WA 98195, USA. jturner@u.washington.edu

Although cognitive-behavioral therapies (CBT) have been demonstrated to be effective for a variety of chronic pain problems, patients vary in their response and little is known about patient characteristics that predict or moderate treatment effects. Furthermore, although cognitive-behavioral theory posits that changes in patient beliefs and coping mediate the effects of CBT on patient outcomes, little research has systematically tested this. Therefore, we examined mediators, moderators, and predictors of treatment effects in a randomized controlled trial of CBT for chronic temporomandibular disorder (TMD) pain. Pre- to post-treatment changes in pain beliefs (control over pain, disability, and pain signals harm), catastrophizing, and self-efficacy for managing pain mediated the effects of CBT on pain, activity interference, and jaw use limitations at one year. In individual mediator analyses, change in perceived pain control was the mediator that explained the greatest proportion of the total treatment effect on each outcome. Analyzing the mediators as a group, self-efficacy had unique mediating effects beyond those of control and the other mediators. Patients who reported more pain sites, depressive symptoms, non-specific physical problems, rumination, catastrophizing, and stress before treatment had higher activity interference at one year. The effects of CBT generally did not vary according to patient baseline characteristics, suggesting that all patients potentially may be helped by this therapy. The results provide further support for cognitive-behavioral models of chronic pain and point to the potential benefits of interventions to modify specific pain-related beliefs in CBT and in other health care encounters.

PMID: 17071000 [PubMed - indexed for MEDLINE]
http://www.ncbi.nlm.nih.gov/pubmed/1...ubmed_RVDocSum

And for an article from another center laying this out even more starkly, see, "Behavioral medicine approaches to pain," Okifuji A, Ackerlind S, Med Clin North Am. 2007 Jan;91(1):45-55.

Pain Research and Management Center, Department of Anesthesiology, University of Utah, 615 Arapeen Drive, Suite 200, Salt Lake City, UT 84108, USA. akiko.okifuji@hsc.utah.edu

Managing pain patients can be a challenging task for many clinicians because of the complexity of the condition. Pain by definition is a multifactorial phenomenon for which biomedical factors interact with a web of psychosocial and behavioral factors. Behavioral medicine approaches for pain generally address specific cognitive and behavioral factors relevant to pain, thereby aiming to modify the overall pain experience and help restore functioning and quality of life in pain patients. Behavioral medicine focuses on patients' motivation to comply with a rehabilitative regimen, particularly those with chronic, disabling pain. Since patients' own commitment and active participation in a therapeutic program are critical for the successful rehabilitation, the role that behavioral medicine can play is significant. It is not unreasonable to state that success outcomes of the rehabilitative approach depend on how effectively behavioral medicine can be integrated into the overall treatment plan. Past research in general supports this assertion, demonstrating clinical benefit and cost-effectiveness of multidisciplinary interventions that include behavioral medicine. Some of the approaches listed in this paper can be incorporated into clinicians' practice regardless of specialties, and such practice will likely provide helpful venues for managing pain patients. [Emphasis added.]

PMID: 17164104 [PubMed - indexed for MEDLINE]
http://www.ncbi.nlm.nih.gov/pubmed/1...ubmed_RVDocSum

Finally, for an abstract to what appears to be a good article attempting to put this entire approach in perspective (and in effect on indefinate hold), see, "Cognitive-behavioral treatments for chronic pain: what works for whom?," Vlaeyen JW, Morley S, Clin J Pain 2005 Jan-Feb;21(1):1-8. Please look at this one carefully.

Department of Medical, Clinical, and Experimental Psychology, Maastricht University, Maastricht, The Netherlands. j.vlaeyen@dep.unimaas.nl

Since the introduction of behavioral medicine in the early 70s, cognitive-behavioral treatment interventions for chronic pain have expanded considerably. It is now well established that these interventions are effective in reducing the enormous suffering that patients with chronic pain have to bear. In addition, these interventions have potential economic benefits in that they appear to be cost-effective as well. Despite these achievements, there is still room for improvement. First, there is a substantial proportion of patients who do not appear to benefit from treatment interventions available. Second, although the effect sizes of most cognitive-behavioral treatments for chronic pain are comparable to those in psychopathology, they are quite modest. Third, there is little evidence for differential outcomes for different treatment methods. Fourth, there still is relatively little known about the specific biobehavioral mechanisms that lead to chronic pain and pain disability. One direction is to better match treatment programs to patients' characteristics. This can be done according to an "Aptitude X Treatment Interaction" framework, or from the perspective of the Moderator-Mediator distinction. In this introduction to the special series on what works for whom in cognitive-behavioral treatments for chronic pain, we review existing knowledge concerning both moderating and mediating variables in cognitive-behavioral treatments for chronic pain. We further argue in favor of theory-driven research as the only way to define specific a priori hypotheses about which patient-treatment interactions to expect. We also argue that replicated single-participant studies, with appropriate statistics, are likely to enhance new developments in this clinical research area.

PMID: 15599126 [PubMed - indexed for MEDLINE]
http://www.ncbi.nlm.nih.gov/pubmed/1...ubmed_RVDocSum

This said, you are very much in my thoughts. I am just very sorry that I didn't pick up on your earlier "thank you all" thread.

Mike

love,