Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

Reply
 
Thread Tools Display Modes
Old 12-30-2006, 02:00 PM #1
JOAN_M JOAN_M is offline
Member
 
Join Date: Dec 2006
Location: MASSACHUSETTS
Posts: 439
15 yr Member
JOAN_M JOAN_M is offline
Member
 
Join Date: Dec 2006
Location: MASSACHUSETTS
Posts: 439
15 yr Member
Default

it is written in several medical journals, that the dose of neurontin for rsd patients should be no more than 400mg three times a day, and that anything over that dose really does not help and can be dangerous. i take that dose and do well with it. i did try to up it when my pain got worse and got very confused and felt awful.
it is better after the 400mg tid, to try adding something else. hope you are feeling better
JOAN_M is offline   Reply With QuoteReply With Quote
Old 12-30-2006, 02:21 PM #2
HeatherAnne's Avatar
HeatherAnne HeatherAnne is offline
Junior Member
 
Join Date: Dec 2006
Posts: 38
15 yr Member
HeatherAnne HeatherAnne is offline
Junior Member
HeatherAnne's Avatar
 
Join Date: Dec 2006
Posts: 38
15 yr Member
Default neurontin dosage

Wow. I'm glad they have done more extensive studies obviously on neurontin since I was on it in 2001 because I was up to 3000 mg a day... no wonder I was a zombie.. Neurontin was the reason I stopped taking so much medication becuase of how "drugged up" I felt.. I couldn't function on it.

-Heather
__________________
Heather

I found I could say things with color and shapes
that I couldn't say any other way...
things I had no words for
.-Georgia O'Keefe
HeatherAnne is offline   Reply With QuoteReply With Quote
Old 12-30-2006, 06:23 PM #3
moonstar moonstar is offline
Member
 
Join Date: Sep 2006
Location: brentwood,ny
Posts: 310
15 yr Member
moonstar moonstar is offline
Member
 
Join Date: Sep 2006
Location: brentwood,ny
Posts: 310
15 yr Member
Default

kathy...the last time workman's comp played around with me they told me that when they go into your case file they only read the top page..they don't want to be bothered checking the date or what else is in the file..so if someone looks at something in your file and doesn't put it back on top you usually will have a problem..i have called them myself and left several messages until the problem was corrected..i know it is very stressful to deal with them and all our other problems but the best advise i can give you is to never give up...that is what they want and we don't want them to win...so keep on trying and don't give up...linda
moonstar is offline   Reply With QuoteReply With Quote
Old 12-30-2006, 07:49 PM #4
daylilyfan daylilyfan is offline
Member
 
Join Date: Oct 2006
Location: ohio
Posts: 405
15 yr Member
daylilyfan daylilyfan is offline
Member
 
Join Date: Oct 2006
Location: ohio
Posts: 405
15 yr Member
Default yes

yes, topomax replaced the neurontin for me. Only it has worked much better. Depending on how I have done, it has been lowered or upped on dosage. You have to go slowly with it also. Some people think they will not be able to take it -- it does make you feel funny at first. But, you do get used to it, and those feelings go away.

I have had RSD twice.. I first had it in my foot, and it gradually went away almost completely. I was down to 50mg of topomax a day then. When I was re-injured, and RSD came back, I was able to go up fairly quickly to 200mg, and now I am at 250. I really believe this medication is why I have not experienced any burning feeling this time - since I was already on the medication when RSD came back.

Between Topomax and calcitonin nasal spray, it covers the worst of my pain. I do have some problem with not being able to SAY a word now and then with the topomax, but my thinking is fine.

Jules
daylilyfan is offline   Reply With QuoteReply With Quote
Old 12-30-2006, 08:31 PM #5
InHisHands InHisHands is offline
Member
 
Join Date: Dec 2006
Posts: 808
15 yr Member
InHisHands InHisHands is offline
Member
 
Join Date: Dec 2006
Posts: 808
15 yr Member
Question

Quote:
Originally Posted by JOAN_M View Post
it is written in several medical journals, that the dose of neurontin for rsd patients should be no more than 400mg three times a day, and that anything over that dose really does not help and can be dangerous. i take that dose and do well with it. i did try to up it when my pain got worse and got very confused and felt awful.
it is better after the 400mg tid, to try adding something else. hope you are feeling better

Could you please tell me about these studies/ medical journals (like, the names and such so that I can try and look them up)?? I am interested in learning about the use of neurontin in RSD patients with dosage and such. Thanks.
InHisHands is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Long Term Side Effects Of Neurontin?? lookingup58 Epilepsy 26 06-24-2013 01:40 AM
Question on Neurontin lookingup58 Meralgia Paresthetica 2 10-07-2006 01:49 AM


All times are GMT -5. The time now is 09:23 PM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.