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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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#1 | ||
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it is written in several medical journals, that the dose of neurontin for rsd patients should be no more than 400mg three times a day, and that anything over that dose really does not help and can be dangerous. i take that dose and do well with it. i did try to up it when my pain got worse and got very confused and felt awful.
it is better after the 400mg tid, to try adding something else. hope you are feeling better |
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#2 | |||
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Junior Member
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Wow. I'm glad they have done more extensive studies obviously on neurontin since I was on it in 2001 because I was up to 3000 mg a day... no wonder I was a zombie.. Neurontin was the reason I stopped taking so much medication becuase of how "drugged up" I felt.. I couldn't function on it.
-Heather
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Heather I found I could say things with color and shapes that I couldn't say any other way... things I had no words for.-Georgia O'Keefe |
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#3 | ||
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Member
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kathy...the last time workman's comp played around with me they told me that when they go into your case file they only read the top page..they don't want to be bothered checking the date or what else is in the file..so if someone looks at something in your file and doesn't put it back on top you usually will have a problem..i have called them myself and left several messages until the problem was corrected..i know it is very stressful to deal with them and all our other problems but the best advise i can give you is to never give up...that is what they want and we don't want them to win...so keep on trying and don't give up...linda
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#4 | ||
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Member
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yes, topomax replaced the neurontin for me. Only it has worked much better. Depending on how I have done, it has been lowered or upped on dosage. You have to go slowly with it also. Some people think they will not be able to take it -- it does make you feel funny at first. But, you do get used to it, and those feelings go away.
I have had RSD twice.. I first had it in my foot, and it gradually went away almost completely. I was down to 50mg of topomax a day then. When I was re-injured, and RSD came back, I was able to go up fairly quickly to 200mg, and now I am at 250. I really believe this medication is why I have not experienced any burning feeling this time - since I was already on the medication when RSD came back. Between Topomax and calcitonin nasal spray, it covers the worst of my pain. I do have some problem with not being able to SAY a word now and then with the topomax, but my thinking is fine. Jules |
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#5 | ||
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Quote:
Could you please tell me about these studies/ medical journals (like, the names and such so that I can try and look them up)?? I am interested in learning about the use of neurontin in RSD patients with dosage and such. Thanks. |
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