Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 10-26-2018, 04:42 PM #31
survnrsd2008 survnrsd2008 is offline
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Join Date: Sep 2018
Location: Tulare, Ca.
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5 yr Member
survnrsd2008 survnrsd2008 is offline
Junior Member
 
Join Date: Sep 2018
Location: Tulare, Ca.
Posts: 7
5 yr Member
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I am hitting 11 years diagnosed with type ll CRPS, I have been searching for answers myself due to the fact I don't have support with the medical field. It makes me sad and angry. Anyway, I just recently researched Gabapentin and finally talked my Pain Specialist to try me on. I was on LevorDorman for the pass 4 years but due to the copay $1,000 is a month I had to drop cold turkey, not easy and really hard but that actually did make a difference. Now with this new doctor I was thrown at 2 years now he pushes Methadone, which I have been on too for the pass 6 years but he has me on 9 doses a day at 10 mg. I feel like the Gabapentin (not the greatest as the levordorman) but hey it's a start. Now I suffer brain shudders as well since I received 2 Stellate Ganglion blocks. I left unable to speak for 3months and now I have brain shudders unannounced. I can't walk, talk, function. I am bed ridden until they wear off but my loss of speech is the side effect that can last days to months. My thoughts are with you. I hope the Gabapentin help you!
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