Pete good luck to you. I hope you are able to finish your letter and that you are given the help you need there. Let us know and take care, cz

I am going to chime as the "view from the other side".

I have epilepsy and RSD, and have had the epilepsy long before the RSD/CRPS.

One of the things you learn very early on in epilepsy/seizures, is that an MRI/CT scan ONLY picks up structural changes in the brain, and most people with epilepsy and seizures have perfectly normal scans. My MRI's and CT's have all been fine. Another thing to remember--- if you've had an EEG, that also came back "normal", is that EEG's usually only show seizures/epilepsy if you are actually having a seizure during the EEG. Some of my EEG's have been normal, some abnormal and I definitely have epilepsy.

Plus, Not all seizures result in loss of consciousness or "convulsing". There are several types (simple partials, atonic, myoclonics) that do not result in loss of consciousness, but rather a "funny feeling", twitching, weird sensations, dizziness, fogginess etc.

My suggestion is to not be so quick in blaming the RSD/CRPS. If you haven't already, please get a referral to see a good NEUROLOGIST (a neuro specializes in the brain, a PM dr treats pain-- I would never let my PM dr touch anything to do with my seizures/ epilepsy). He/She can guide you in the best direction. I would ask for an EEG, sleep deprived EEG and a thorough work up. The last thing you need is to be dealing with seizures--- that could possibly get worse, especially if not properely treated.

On another note, some pain medications and supplements are also known to cause seizures, so, a Neurologist would be able to help figure out if that is what is causing them....

Good Luck, but please don't give up and automatically assume its the RSD/CRPS before investigating more !

L2L

thank you for this post, as I know somethingis wrong, I had another bad one yesterday, my husband found me on the kitchen floor unconscious, so either i am having seizures or something is suddenly dreadfully wrong with myy meds. Im frightned, frustrated and trying to hang in there, I remember being like a ping pong ball banging around the kitchen trying to hang on to consciousness and then blacking out at the stove and falling. I remember the begining. See why it is hard for me to belivie im not having seizures of some kind. actually it was more like a ball in a pin ball machine, I could have been seriously hurt instead of just some bad bruises and a couple of bumbs on my head. We cant seem to find out what is happening. But I have not had any of the tests you recommended. Im trying to hang in there, thank you again. cz

[QUOTE=CZZ74;553059]thank you for this post, as I know somethingis wrong, I had another bad one yesterday, my husband found me on the kitchen floor unconscious, so either i am having seizures or something is suddenly dreadfully wrong with myy meds. Im frightned, frustrated and trying to hang in there, I remember being like a ping pong ball banging around the kitchen trying to hang on to consciousness and then blacking out at the stove and falling. I remember the begining. See why it is hard for me to belivie im not having seizures of some kind. actually it was more like a ball in a pin ball machine, I could have been seriously hurt instead of just some bad bruises and a couple of bumbs on my head. We cant seem to find out what is happening. But I have not had any of the tests you recommended. Im trying to hang in there, thank you again. cz[/QU



Hello, I have been re-searching (Seizures) I am so sorry you have these, but I am also glad I found someone else, having this same thing as I do.
I can be in the kitchen and I will fall, & my husband has came in & helped me up. I have had about 10 of these *THINGS* The last one I had was off & on for 5 days....This scarred me so much....I have fell off my toilet & hit my head on my glass shower door... The last time I had this happen, I lost a whole day,I don't remember anything of that 1 day.
And I move things, Vitamins etc & the next day I have to hunt to find the things I moved.
I have read alot about Narcolepsy & Catapletic and it does sound like these *SPELLS* that I am having. You might want to look at Brain Talk for it.
I have noticed that if I miss alot of sleep,& don't take a nap, I have one of these, *SPELLS*
I have made an appointment to see my GP Doctor, she treats me for my RSD
its in my left foot, from a fall, but has spread to my right foot also, they are
red,swollen,warm to the touch & painfull.
I sure would like to talk with you, I will try & set up my P. Message here.
Hope to hear back from you. Take Care, Ladybug10435

[QUOTE=Ladybug10435;568139]Ladybug, pm me your email, Ok. look forward to talking with you, cz

so glad i've found someone w/epilepsy AND RSD!! i've had epilepsy - like u - for many yrs before RSD. Had 2 grand mals at the outset, then petite mals, then pretty much controlled until RSD! i take Tegretol XR 200mg 4 times/day, Tegretol XR 100 mg at nite, & 80 mg Phenabarbitol at nite just 4 epilepsy. For 16 mos. i've taken 1500 mg Neurontin, 10 mg Lexapro 4 RSD and Ativan for "impending" seizures. i see a PM dr, psychol., orthoped., OT 4 therapy, & neurolog. 4 seizures. all my drs work together before trying new meds. i'm blessed. i agree w/ur entire message!! anyone having seizures needs a good work up by a neurologist. wishing all of u a pain-free night!