Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 08-18-2009, 07:20 PM #1
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This post makes makes my leg and arm burn just thinking about it. I used to have this therapy for my CP, but have opted for water therapy now that I have RSD. You don't have to do the treatment if it is causing symptoms to come back. Don't be shy to say so; you are paying for the treatment and PT
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Old 08-18-2009, 08:27 PM #2
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Your body is like your car, your doc/pt is like a mechanic. Don't like the garage? Go to another. Don't want this that or the other done? Don't let 'em do it. When the end of the day comes and everyone goes home, it is YOU who must deal with the consequences of whatever repair was done, not the mechanic. Study your car. Understand what's going on with it as best you can, then tell the mechanic what you want to try.

I realize some folks are in situations where they are only nominally in control of their treatment, ie workers comp. Realize something though; if a doc sticks your spine and it damages your nerves, they stay damaged. If the doc gives you meds and they damage your body, it may not heal. Weigh the potential benefits against the potential risks, and then proceed.

If the therapy makes the pain worse, don't do it. This condition is unlike nearly any other out there, no pain no gain does not apply.
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Old 08-19-2009, 12:58 AM #3
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I concur with Smoke on this matter. Listen to your body. I hope you feel better soon

Dew
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WC Injury 03/24/07;Two Right Knee Surgeries on 5/22/07 and 01/16/08. Surgeons and Physical Therapists ignored my concerns of burning pain, swelling, and no improvement and getting worse. Diagnosed RSD/CRPS I/Sympathetically Mediated Pain Syndrome/Chronic Pain on 06/2008 by family doc;on 08/2008 and 12/2008 diagnosis confirmed by two WC PM Doctors: Both legs;hips; hands; and spine effected by this culprit. SSDI granted 01/2009.
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