I really need help! I went to a new PT DR. yesterday and he started Anadine (led light therapy) the paddle type and I had a terrible flare up afterwards. I have RSD in right leg and foot. I had the "burning " under controll for several months and this treatment brought it back. I am supposed to go again tomorrow, But i really do not want anymore of these treatments. Has anyone out there tried these treatments?? I have looked thru old threads and cant find anything. I was going to PT agian because I am loosing flexibility in foot and have developed bad heel pain recently. Please let me hear from you all! Thanks

Light therapy? For RSD? *astounded, somewhat angry & feeling totally clueless*

[QUOTE=edever34;553458]I really need help! I went to a new PT DR. yesterday and he started Anadine (led light therapy) the paddle type and I had a terrible flare up afterwards. I have RSD in right leg and foot. I had the "burning " under controll for several months and this treatment brought it back. I am supposed to go again tomorrow, But i really do not want anymore of these treatments. Has anyone out there tried these treatments?? I have looked thru old threads and cant find anything. I was going to PT agian because I am loosing flexibility in foot and have developed bad

Edever, I have never hear of this type of therapy. Your response is your body telling you something is wrong! Please tell your Dr. Do you have water therapy available. pt is how I got the use of both my arms back, and part use of my hand backl I did massage therapy on my own dime just before pt. The pt should have knowledge of rsd and go lightly accordingly....
Your symptoms are not good-have you tried swimming or water therapy? Water needs to be 86 degrees. Let us know how you are doing. Hope the best for you, Your friend, loretta soft hugs

Thank you for the input. I am going to have a good talk to the Dr. tomorrow and have pretty much decided NOT to have this therapy again. But the pain in my heel is really bad.Thanks again

This post makes makes my leg and arm burn just thinking about it. I used to have this therapy for my CP, but have opted for water therapy now that I have RSD. You don't have to do the treatment if it is causing symptoms to come back. Don't be shy to say so; you are paying for the treatment and PT

Your body is like your car, your doc/pt is like a mechanic. Don't like the garage? Go to another. Don't want this that or the other done? Don't let 'em do it. When the end of the day comes and everyone goes home, it is YOU who must deal with the consequences of whatever repair was done, not the mechanic. Study your car. Understand what's going on with it as best you can, then tell the mechanic what you want to try.

I realize some folks are in situations where they are only nominally in control of their treatment, ie workers comp. Realize something though; if a doc sticks your spine and it damages your nerves, they stay damaged. If the doc gives you meds and they damage your body, it may not heal. Weigh the potential benefits against the potential risks, and then proceed.

If the therapy makes the pain worse, don't do it. This condition is unlike nearly any other out there, no pain no gain does not apply.

I concur with Smoke on this matter. Listen to your body. I hope you feel better soon

Dew

My PT has been using some sort of red light/laser therapy on my shoulder (site of my original RSD) with the paddles, and applies hand held beams of red light on the back of my neck. My RSD spread last fall to my cervical spine and my head and I suffer from excrutiating headaches, especially after I use my arms for anything too strenous.

My PT has been my lifesaver, when no one else believed in my pain, he did. He has his doctorate in his field and I trust him to know his stuff. And he hasn't hurt me (at least not on purpose), whereas my ortho's PT's hurt me all the time and didn't believe me when I said I was in pain (my RSD is likely the result of 2 shoulder surgeries with really aggressive PT before and after each). So far the laser therapy has kept my RSD from spreading to my other shoulder and arm, and it has never caused me any pain.

Did your PT session include anything other than the light therapy? Exercises, etc? Perhaps it was something else that brought on your pain.

I hope you find relief soon - good luck. Sandy


PS - in response to Daniella's posting - he places the units very gently on my upper back. I don't let ANYONE touch my shoulder, except my husband when he puts my Lidoderm patches on in the morning (he asks me what I plan to where first, so he knows how to place them so that they are hidden).

I know what you mean about people touching you. I avoid it as much as possible, and haven't allowed my PT to touch it. Doubt I ever will....I'm not tough enough for that.

Again I truely Thank all of you for your replies!!!!

I am not familiar with this. I think you need to tell your doctor how you feel and ask about other possible treatments. Now this is for me but I will tell you that I don't allow anyone to touch me even in my rsd areas actually the whole legs now. All the doctors who have dealt with rsd like Stanton Hicks etc have understood. I hope you can find the treatment that assists you to finding relief