Does your daughter still have RSD, and if so, has it improved? How did she get it?

Thanks for the replies everyone... you were of help.

Venessa,
My daughter was 16 when injured, she is going to be 30 yrs old in May. Her life is pain managing it and getting through one day at a time. A lot of the CRPS is touching items like terry towels, makes zaps up the hands and freaks here...too much stimulation. She has occasional flares of RSD that her arm will swell and it is triggered by change of seasons or heat. If she didn't have me as an advocate for her treatments the last 13 years, I am not sure what would happen to her.....

She had multiple surgeries; she almost did a lidoderm IV with Dr.Schwartzman but her bipolar would not be good her for her to be there ten days. Also, Dr.Schwartzman is not supportive for narcotic therapy, he wnated her to detox when she was done completly, not reduce or change meds.
But, in any other manner, he is the man. Paternal, grandfatherly, caring, supportive and dedicated!

There have been many surgeries, from CT, to breast reduction, to first rib removed, scar matter cleaned up from nerves....But as you and I chat here, she has difficulties. She can share where her pain is, activities that make it worse, only thing she ahd no anser to is how do you live, get up in the morning and pretend not to be disabled. Not even pretend, but, unable to make the most of her day. A good pain rehabilatations center to help her gain what she can, show her how to reduce what makes it hurt would be best...

I am hoping she will go to a place in Maryland. It is called I think Messa Clinic, or Mennsa. They do an overhaul, take you to medical centers for test and figure out what is tehre and an what more to do for your life.
I really would like her to decide to go there by spring.

De has Allodynia, hyper sensations to the brain. If you touch her with a tiny tip that has one end with three picks, and the other end a tiny paint brush tip, she could nto decern what is touching her, it all hurts.

She has a brachial nerve injury across the traps and into the arms from a stretch injury to the arms and uppper back and neck.If she is not looking a t a glass in her hands, she can not feel it, the lack of the brain focusing on it the hands do "feel" it and it dropps, big time droppsies are frustrating.

I would say she would talk to you....she is not really computer minded. But, if I can get her a better day I bet she will email.
You can feel free to ask about her treatments, mducation combos that worked and didn't.

THe hardest thing for her and our family is a life that has known pain since being a teen. She never really grew up, maturate normally. It has been a life of workers comp battles, applying for Social security. She has emotional problems triggered from not having good chronic pain psych support to how to grow uo, and manage a life with disability.Bi-polar.

I had gone to the same psych and he was the greatest. I was injured in 2000 and unable to return to my job as apolice Chief. I was so upset and hated not being thought of with respect anymore. To my coworkers I was a deadbeat on disability.
I also have TOS, herniations in neck and lumbar, rsd in the feet, carpal tunnel in hands, cervoigenic headpains.

With adaptive support from voc rehab and a great college system I retrained at 50 years old and work part time. I supervise court ordered visitations. Many of my clients were spouse or child abusers, predators, also mental disabilities.
I use a hot tub, valium as a muscle relaxant, topomax, lidoderm patches, toradol for flares and percocet. Biofreeze rub on, heating pad, and ice on neck.

I do feel as I was removed from work with in weeks of my injury, I did not get as bad as many others.
For me, I do not act limited at home. I do ask family to do hard chores, I do neglect chores, I am always involved mentally. In legal fronts as an advocate for mentally disabled, for a community recreations centr, even emergency management committies for our local area.

Also the forum, my friends on here have been a lifeline of information and support for ten years.
my email is dimarie11@yahoo.com
Dianne

...WOW you said in NY? I am living in NY and I have been trying to find one. Can you give me information please?

That would be wonderful. Thank you.

Emily

Dr. Schwartman is retired? I have an appointment with him in May 2007.

I am close friends with a person with advanced CRPS and she has been very happy with Dr. Getson in NJ (suburbs of Philadelphia PA) because he listens carefully, and is very gentle (even uses a head lamp so patients can lie down in a dark room during the exam!). He used to practice with Dr. Schwartzmann at Drexel.
Dr Philip Getson 100 Brick Road, Suite 206 Marlton, NJ 08053
Tel: (856) 596-5834

interesting site I ran across: "Personally Recommended RSD Doctors" (I can't vouch for this personally)
http://members.fortunecity.com/ducky50/id40.htm

Dr.S will never truely retire , he is in Germany much doing research, it takes months for an appointment as he only sees a few patients anymore. HE is doing the Ketamine more often though.

Dianne

I just wanted to post and say that Dr Getson (in Cherry Hill/ Marlton, NJ) will not be a treating Dr.. He will evaluate you and work with your treating physician by making recomendations regarding interventional modalities, medications, hospitalizations, procedures, etc...

The intial visit is $300.00 (not covered by insurance), and he does follow-up evaluations every 6 months at $150.00 a visit.


I read somewhere on here (I think) that someone wanted to see him, and wanted to give the info I knew.

There is a waiting list, and you can contact his office at:

Chronic Pain Consultants
100 Brick Road, Suite 206
Marlton, NJ 08053
Ph. (856)-983-7246

If you wish to see him, you have to have his office send you the paperwork, and you have to go on a waiting list.

Hope this is helpful to someone out there...

Here is Dr Getson's website:
http://www.thermographicdiagnosticimaging.com/

Could you please give me his name and everything??? PM me, if you can. Thanks so much!!

I spent 4 appts over the summer up until Nov 29, 2006 with Dr. S.He is not retired and from what I was told is not retiring.... Please do not be misled. Or maybe I'm wrong but that is what he told me...
Ann...