Carol has quit **
She became so bad that she would sneak out of the office to avoid setting appointments She is gone.

Help. im looking for an rsd/crps support group in the phila pa area. i have the most wonderful drs. who have treated and diagnosed me 12 yrs ago. I would see no other. they listen to everything and most of all allow my input into all my care. they have done wonders for me. Dr. Philip Sasso and the S.E. pain management team have saved my life.

But now i need something new. people!!! with same disease to talk and compare things with. In person. face to face. A support group who knows were ive been and where im going. ive been all over the net trying to find one near me but cant.

Please if anyone knows of meetings or groups in the Philadelphia/ buck county area please i need one.
So much happens with this disorder sometimes the only ones who truly understand is someone who has walked in my shoes.

when i was dx. it was still a new disease that had to be explained to each nurse or dr who treated me for anything. i carried the only explanation of rsd research with me each hospital adm. there was only one site on the internet that spoke of it. so it was a lonley road. but now im so excited to see thats all changed. and its time i not be alone anymore suffering. but find others for support and to give suppot back. pls. let me know if anyone knows of any in my area. with much love understanding and a burn for a cure as well as knowlege to give and learn. SUSAN

However, I truly hope you do find a group. community is important. Rsd - those three letters have never meant so much to me then when i was told it was my diagnosis also..... I wish you good luck, fortune, and better health. soft hug

Try Dr. Todd Bromberg in Doylestown 215-489-9170

I am a new member here with a 16 year old daughter who was diagnosed with RSD - now referred to as AMPS (Amplified Musculoskeletal Pain Syndrome) @ 3 years ago. We found a program at Children's Hospital of Philadelphia run by Doctor David Sherry. To make a very long story short, my daughter was treated inpatient and is very close to a full recovery.

yes i would like this information

You might look thru this thread for some suggestions also.
http://neurotalk.psychcentral.com/sh...534#post348534

Hi there was a Doctor Knobbe I think thats right who had RSD and treated it . I live in Oregon (excuse my spelling) I went to the Hahnneman Hospital then when another Doctor saw me I think it is called the Thomas Jefferson Hospital ,other than UCLA (its in LA scary but great hospital) and UCSF and Stanford within a days drive (long Day) in San Francisco ,I have tried every trial from the sixties util the nineties ,I was a Rabbit
But I have had RSD 45 years
Gentle Hug
rsdno