Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 01-01-2007, 09:44 PM #1
JOAN_M JOAN_M is offline
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Join Date: Dec 2006
Location: MASSACHUSETTS
Posts: 439
15 yr Member
JOAN_M JOAN_M is offline
Member
 
Join Date: Dec 2006
Location: MASSACHUSETTS
Posts: 439
15 yr Member
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hi lisa,
nice to meet a fellow massachusetts rsd-er. thanks for the info on the pharmacy, but i do have one right here in fall river that does the mixtures.
as far as doctors, i have stayed with my pcp. he was the medical director in the hospital where i worked, pre-rsd and so we get along very well. i have two doctors in boston, one for my hip replcement [#3] follow-ups, and one for my degenerative spine, both are at new england baptist hospital. they are wonderful but they do not get involved with my rsd. i was actually diagnoses in braintree at the rehab hospital where i was seeing a doctor for my 'hip replacement [#2] gone wrong' pain filled nerve palsy. i read alot about blocks and scs and such, but i am not willing to go that route, at least not yet, so i figure i am better off with a doctor who listens that one who doesn't because from all i have read, this is a monster who is different for everyone and no one has real answers.
i just read back over threads and see that you are now pain free? ... and maybe were misdiagnoses? oh boy. well, i am happy for you, that is for sure. when my ortho went in to do replacement #3 he looked at the nerves and for any entrapment and he cleaned off some scar tissue but i only got a litle movement back afterwards ... but a good hip, so i can't complain about him at all.
well, again congrats! and nice to meet you. joan
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