Just Wanted To Say Hi. I Found This Site Today And Like The Set Up ... Lots Of Good Info.
I Have Had Rsd For 10 And 1/2 Years Now. I Awoke From Hip Replacement Surgery And Had Nerve Palsy And Then Rsd ... Of Course I Was Not Diagnosed For Months ... So I Have It In The Left Leg And Now The Right Foot To A Lesser Degree.
I Am 54, And Wife And Mother Of Two, And Grandmother Of 6 Boys. I Read, Crochet, Quilt And Do Gardening In The Warmer Months. I Was A Registered Nuse Before Rsd ....
So Glad To Read All Your Info, One Never Knows When She Will See Something Helpful.
Joan_m

Welcome Joan!

You will find a lot of really GREAT people here.
Please feel free to jump in and talk to anyone and any thread, share your thoughts, successes & failures with RSD, if you need to vent, scream, rant, rave...you're welcome to do that also.... everyone here understands.

The more the merrier!!!!

Abbie

Thank You Abbie. Nice To Meet You. I Am Always Hoping To See Something I Don't Know About ... Some Comfort Measure Or Even A Nice Miracle Med! I Am Also Up To Sharing What I Have Been Through And What Works For Me.
So Again Thanks For The Welcome.

You'll learn a lot here and maybe be able to find new things to help with the RSD pain. We're all still waiting for that miracle drug though so we'll just all have to sat here and wait for it together. LOL

What have you been through to get the RSD in some control. We all have different stories with it.

It's interesting to here that you had a hip replacement and ended up with it. That is one surgery that is on my list to have but my Dr. wanted to wait until I got a little older because they had said they didn't last long. That's been a few years back though and I have heard that they have better material to do the hip with.

I'm 55, had RSD since 98 and I have mine pretty much in control except the pelvic area or more near my left hip bone. I have it in my right arm and hand left arm and hand where it's mirrored over and in my right foot up to my hip. I've had blocks though that has been a Godsend to me. Some I've had with my surgeries so that helped keep it from spreading more in those areas. I also have it in my right side. Funny how it bounces around all over the place.

Anyway, I'm glad you found us and stick around and you will learn a lot.

Ada

Hi Ada,
I Had My First Hip Surgery In 1974 And It Lasted 22 Years! I Had The Second One That Was Done Wrong And Had To Come Out ... That Was The One That Left Me With Nerve Palsy And Rsd. I Had My Third A Year And Half After That One And Have Had That One For 9 Years Now And Am Doing Fine With It.
What Works For My Rsd ...hmmm ... Well 400mg Of Neurontin Three Times A Day For Sure, Tranxene To Sleep And Stop The Leg Cramps At Night, Four Ibuprophen At The First Sign Of Swelling And Also Before Car Trips Or Any Other 'overdo' I Plan To Do, The Wood Stove! Fleece Socks, Elevating My Legs Several Times A Day. And Knowing When I've Hit What I Refer To As 'the Rsd Wall' ... When I've Had It And Am Over Tired And Hurting ... I Give In To It. Als In The Summer I Have To Stay Out Of The Humidity .. It Causes Swelling For Sure.
So That Is My Story Sad But True! Ha! Oh, And Keep My Sense Of Humor!
I'm From Massachusetts, Where Are You From? And What Is Your Cocktail For Comfort?

Joan
Welcome!

You will find this a great place to be!!

May I mention one thing? Many of us have had the RSD affect our eyes. I know I have. Even without the RSD making my eyes alternately blurry and sharp and sometimes jittery... I already was extremely nearsighted, needing very strong contact lenses - plus trifocal glasses over them.

Reading all caps, or initial caps (like your messages are typed), or type that is colored red, orange, purple, blue etc... is very difficult for many of us. It is much easier for me to read if a person types in all lower case rather than initializing every word.

Usually I will take a message like yours and copy it into another program and convert the text. I have a little utility on my Mac that I copy text into that will turn all caps, Initial caps, etc... into "sentance case" so I can read it easier so that helps on the messages when people type in all caps too. I don't know if there is something similar for Windows.

Some people that use certain colors for their type - I cannot read their posts at all here on the forum. Standard black type is still easiest for me to read. If they post something I really want to read, I copy their words into another program, then change the type color to read it.

But, if you are using voice software to type, that is fine. We will figure it out.

I know you will find this forum very helpful to you! Most of us used to belong to another forum. When I found it - I began to get a grasp on my RSD. I knew what to ask for, what to turn down etc. when seeing the Dr., therapist etc.

Welcome! So sorry you had to find your way here..meaning that you have RSD/CRPS.... but this is the best place on the net I have found. I think I am a member of 5 or 6 forums, but this is "home".... !

Jules