hi there..

I have only 3 points on a fibro point system.. out of 18 done 3 seperate times, though that would explain alot if not most of my problems.

I do have pain at rest and an abnormal ecg reading or two between normal ones taken at hosp.. I will get a copy of those and ask my doc if they show the specific readings I have been reading about (thanks!!) It sure sounds like a combination Varient angina and some kind of spasming both are infact spasms.. one muscular one arterial eh.

I have had the full workups and had everthing scanned UGI normal other organs normal (though they are all acting up) these all done over the summer season.

nitro makes me very sick angiogram was to me anything but normal but I got an all clear for arteries and ventricals. I also could not take a full breath felt constricted.. blood oxygen levels dropped I think because I could not draw in fully or even much when it was happening.

I had an abnormal chemical stress test a MIBI scan 2 months ago.. small ichemic episode or area.. not getting enouph blood or oxygen GP told me .. I asked the nasty doc that had done angio an he said that it must be wrong.. very abruptly.

I think that covers it but probibly not.

Thank you thank you,
sandra

That doctor sounds just like the one that hurt me!!!! The guy cussed me out when I told him that my leg was hurting like h#!!
He kept saying "I have done over 900 angio's and none of them have ever went wrong! I dont make mistakes!".

I sure hope it doesnt get worse on you because of their freakin stubbornness
They all act like gods or something.

I have been having trouble with my heart also, and they couldnt find anything wrong with me either. Finally they found that the nervous system that controls the heart, and breathing, fight or flight reactions, and all that stuff which cannot be controlled by the conscious mind was out of control. They told me that the RSD was interfering with the nervous system.

They gave me ativan to see if it would help, and boy did it ever. Now this new doctor I have is trying to take me off of it, but every time I miss a dose it isnt long before I start having troubles. He says it is because im addicted to the drug, but I say it is the same feelings and pain that first got me on the drug. I will not stop fighting these jerks!

It is getting to the point where im afraid of all doctors. Every time they mess with me I get worse, and it never goes back to the way it was before they messed with me. It wouldnt be soooo bad if I wasnt already getting worse with no help from them.

I hope you get to the bottom of what is wrong with ya, and I will be praying for you. Dont let them bully you around, remain firm, and be a pain in the ***** if you have to because they will hurt you if you cave in and let them do it the wrong way.

Big hugs

Hi S,
You may want to take a quick look at what I wrote on the "fact & Fiction"t started by Vicc,
Hope

sandel, i am so sorry to hear that you have been in icu for the past week or so.....

i sure hope they can get your pain down............and get to the root of the troubles......at least no blockage is encouraging.....

take care and rest up..........stay positive.......things HAVE to get better.................

Hi there thanks for your replys..

So on day 11 after the angio was done, a large lump apeared on my wrist where the catheter went in.. went back to doc and he put me on antibiotics redness around arm and as I say a large lump (*******) around and over like a firm boil..

Six days later not gone.. spread awelling around wrist, pain up following the veigns along inner arms.. I say arms plural cause the other is echoing the same pain, fingers cramping and sharp jabs in my palms. Right wrist is very sore and dosnt bend all the way back or sideways by the thumb.

Doc says dont use it and spent alot of time checking for pulses and such.. my fingernail color is good and hand does not get cold..

He sent me for a dopplar ultrasound on the lump area.. but hospital refused cause they didnt have a specialist to do the ultrasound because of it being an angio complication they need a heart doc to do it aparently... they will phone me with apt time.

I will look into the Q thing Hope and get the ECG results soon. I asked my doc about varient angina and he implyed they checked, but I have requested a normal ECG and an abnormal ECG of mine done in hospital to compare them myself.

Things seem to keep going wrong.. like a downward spiral, I have to stay optomistic.

My chest pain is exaberated by use of my cane, the more I lean/rely on it the more my chest hurts.. I was using 2 before my hospital stay but now I cant with my rt arm screwed up..

My doc thinks I should look at motorised chairs, i can'r believe my life has come to this.. I am not yeat 45 and was so fit..
*enouph self pity sandra says to herself*

Chest pain has eased some though still there.. just another RSD thing methinks.

Hope things are going well for you all.
super soft hugs,
sandra

Dr didn't say to use warmth or anything for the lump?
If the redness travels up a vein in a line it could be blood poisoning.

My sis in law had a blood clot in her forearm at Christmas time- she used a heat pad, percoset and they had to inject blood thinners for a week.

Hi Sandra,
I loved what Jo said about using heat. I believe the blood could go more to the area.

If I was you, I would 100% make sure you do not have a infection as well. Hospitals in themselves can have a high infections rate. I have heard 25%.

In my case I have some kind of horrid cirulation problem going on.

Iv's are real rough for me too.

Big Hugs, Roz

The heat sounds good the tub realy helps that too, my dorky doc had the ( ) to tentativly sugest ice.. I couldn't beleive it. I set him straight i did. dork!

I hope you are feeling better soon Roz, is it me or do we all flare more and develope changes during winter?

Wonder if there are statistics somewhere. hmm..

have a plesantly sleepful night all,
Sandra

good morning Sandra:

just wanted to let you know that every time, and every place i have ever had an iv i get the lump you are talking about. (arms, hands, even foot) in my case a clot forms. i have a "condition" where my blood clots too easily. (factor 5 leiden, protein S activity, and something else, {sorry, brain fog} my mother has been tested for the same thing and comes up negative, however she gets the same lumps/clots whenever she has an i.v.
maybe your doctor could check your clotting factor. moist heat on the area, and 80mg aspirin would probably help.

hope you get some relief soon.

's and prayers

Hi Sandra,
At the cabin it snowed some and my pain levels were higher. So weather I believe can play a role.

One thing I try to do is keep every limb as warm as possiable. I am back in Temecula it's about a hour north of San Diego in CA. Now in Malibu I heard people had ice a couple days ago on their windshild in the morning. So we must be having a very rough winter.

When I was healthy. I used to go to the Carribean in December. It is so beautiful their. The weather in the winter is like summer. I would watch the specials and book a cruise for around 300 dollars.

Big Huge Hugs, Roz