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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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08-21-2009, 09:03 PM | #1 | ||
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Junior Member
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My pain specialist/vascular physician is recommending PRP. Anyone familiar with or been treated using PRP? Did insurance cover. He states the goal is 80% improvement in pain. Know it's being used for some sports injuries but haven't had time to really investigate. If insurance won't cover would be moot.
Haven't participated in this forum for a while. Actually had good summer until the last 4 weeks. Got up, drove to work, and worked for couple of hours before pain really set in. Now back to pain upon getting up and getting nervous about the coming winter. I've made it 5 years with RSD since my accident and goal is 5 1/2 more years to retire. But it gets harder particularly as my memory seems to shrink daily. Hope everyone is having some peace in pain and doing okay. Lynnie |
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"Thanks for this!" says: | Dew58 (08-22-2009), Vowel Lady (08-26-2009) |
08-22-2009, 10:21 AM | #2 | |||
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Member
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I've never heard of it as a treatment for sports injuries, let alone of it being a treatment for RSD.
I'm very curious as to what the outcome would be... and what the reasoning behind it is, and why it would be good for RSD.
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All the best, Marleen ===================== Work related (car) accident September 21, 1995, consequences: - chondromalacia patellae both knees - RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008 |
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"Thanks for this!" says: | Dew58 (08-22-2009) |
08-22-2009, 10:51 AM | #3 | ||
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Member
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Are you talking about Dr. Schwartz?? I heard him speaking about it at the RSD Conference this year. I talked to one lady that had it done & got worse, but everyone is different. Wish I knew more about it.
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"Thanks for this!" says: | Dew58 (08-22-2009) |
08-22-2009, 12:00 PM | #4 | |||
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Member
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PRP - Platelet Rich Plasma Treatment..never heard of it. Sounds like it could be used to boost the immune system??? I hope you feel better soon.Welcome Back.
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. A Positive Attitude Will Assist Me Toward An Active Life, Once Again . WC Injury 03/24/07;Two Right Knee Surgeries on 5/22/07 and 01/16/08. Surgeons and Physical Therapists ignored my concerns of burning pain, swelling, and no improvement and getting worse. Diagnosed RSD/CRPS I/Sympathetically Mediated Pain Syndrome/Chronic Pain on 06/2008 by family doc;on 08/2008 and 12/2008 diagnosis confirmed by two WC PM Doctors: Both legs;hips; hands; and spine effected by this culprit. SSDI granted 01/2009. |
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08-26-2009, 05:25 AM | #5 | |||
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Wisest Elder Ever
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Here is a pretty interesting article explaining the process:
http://www.aaos.org/news/bulletin/sep07/research2.asp How it would pertain to RSD? Haven't found that yet..still looking.
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All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
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"Thanks for this!" says: | Dew58 (08-26-2009), Vowel Lady (08-26-2009) |
08-26-2009, 03:43 PM | #6 | ||
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Member
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I found this.http://www.treatingpain.com/diagnosi...diagnosis.html
My wife went to this place who made her worse because they did absolutely nothing. And to add insult to injury they refused to sign her disability papers on top of that which caused her to lose her job. |
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"Thanks for this!" says: | Dew58 (08-26-2009) |
08-26-2009, 08:33 PM | #7 | |||
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Member
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Jimking,
I am so sorry this happened to your wife and you. I am confused why the doctor not signing the disability papers caused the loss of your wife's job?? Usually, it is when the disability papers are signed that the loss of job comes after. Please share what the doctors dx. your wife with, and what treatment or tests did the doctors perform. The site you posted is a really slick advertisement page. I can see why you went to see them as the ad for the clinic is alluring and hopeful. Again, I hope this gets resolved soon. I have missed seeing your posting, and letting us know how things are going. Welcome Back Dew
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. A Positive Attitude Will Assist Me Toward An Active Life, Once Again . WC Injury 03/24/07;Two Right Knee Surgeries on 5/22/07 and 01/16/08. Surgeons and Physical Therapists ignored my concerns of burning pain, swelling, and no improvement and getting worse. Diagnosed RSD/CRPS I/Sympathetically Mediated Pain Syndrome/Chronic Pain on 06/2008 by family doc;on 08/2008 and 12/2008 diagnosis confirmed by two WC PM Doctors: Both legs;hips; hands; and spine effected by this culprit. SSDI granted 01/2009. |
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08-27-2009, 07:58 AM | #8 | ||
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Quote:
Suzy was relieved because she knew with precession that her treatment would now improve. We picked up coverage from my work and with in a week we found a doctor who has taken good care of her these last 3 years. |
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"Thanks for this!" says: | Dew58 (08-27-2009) |
08-27-2009, 08:32 AM | #9 | |||
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Member
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That is good to know. Glad she is getting proper care.
__________________
. A Positive Attitude Will Assist Me Toward An Active Life, Once Again . WC Injury 03/24/07;Two Right Knee Surgeries on 5/22/07 and 01/16/08. Surgeons and Physical Therapists ignored my concerns of burning pain, swelling, and no improvement and getting worse. Diagnosed RSD/CRPS I/Sympathetically Mediated Pain Syndrome/Chronic Pain on 06/2008 by family doc;on 08/2008 and 12/2008 diagnosis confirmed by two WC PM Doctors: Both legs;hips; hands; and spine effected by this culprit. SSDI granted 01/2009. |
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