Hi,i am new to this forum and would like to ask other members if they have tried Phenytoin Infusions,i have one every 3 weeks (750mm) and i find that i do get reduced pain lvls and was wondering if any other RSDs have the same results if they have tried this type of treatment.Thanks TonyG

Tony,

Welcome to the forum!!!!

Hi my name is Barb and I have had RSD for 7 years now. I have been on oral Phenytoin 100 mgs 3 times a day for epilepsy. However when I was diagnosed with RSD my doc told me that it was one of the many drugs used for tx of this horrible condition. I don't take any regular narcotics as I can't find a pain doc in PA that believes I have RSD. I was diagnosed by Dr Stanton-Hicks from the Cleveland Clinic.

Are you on a regular pain meds? Why don"t you ask your doc about oral Phenytoin also called Dilantin? Taking it orally would be much better than getting it IV as Phenytoin is definately hard on your veins. I have had it IV and wouldn't want anyone to go through that, especially every 3 weeks !

If you have any questions don't hesitate to ask.