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| Sanctuary for Spiritual Support This "Sanctuary" is a place for people of all spiritual beliefs and faiths to offer support and compassion to each other in the form of prayers, meditation, and expressions of spirituality. This forum is for support, not religious debate. |
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09-13-2011, 08:32 AM
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#241 | |||
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Wisest Elder Ever
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Thank you, Holly. Her mother is definitely an example of a Christian life. We love her dearly.
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These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here. Last edited by Kitty; 09-13-2011 at 06:05 PM. |
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09-22-2011, 07:44 AM
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#242 | |||
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Wisest Elder Ever
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Claire is awaiting her last antibody treatment.
 She has a bacteria in her central line that they are trying to identify. Please pray that this last antibody treatment can go on uninterrupted. She is almost finished! Here is a recent note from Claire's mother: "We still do not know what type of bacteria Claire has, but because it's a gram negative rod, we know it's not bacillus. So, hopefully this means she will keep her line. As soon as we know definitively, we can go home with antibiotics. It could be tomorrow. We have a lot to be thankful for. If this bacteria popped up during Claire's next treatment instead of now, the treatment would have been aborted. She would not have gotten all of the antibodies. Claire has felt great and had a lot of energy. I am exhausted from trying to keep up with her, but I'm not complaining about that. I have felt sad for the boys. They were excited about us being home for three weeks before having to go back in. They were out of school this week and we had some things planned. I wish I was a super hero and could be in two places at one time. It grieves me. I can't express the sadness and loss we have experienced these past 15 months. It is not in my nature to share such pain openly. Don't worry, I do have those that I can share with and do. This cancer has attempted to ravage every bit of our lives. We have not shared every trouble with you. You look at me and think that I am so strong and brave. The truth is that you are seeing the Lord Jesus Christ being more and more alive in me. We have loss, but He is the only thing that has become more sure and more solid. I've lost nothing that He has safely held in His hand. So I say what have I really lost compared to what I have gained? Glory to you oh Lord! Ending on a happier note...we see the light at the end! We will put to rest the pain and MOVE ON. The excitment of this time overshadows all the trouble. Please continue to pray that Claire does not get cdiff again. They have her on a powerful antibiotic."
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09-22-2011, 08:20 AM
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#243 | |||
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Junior Member
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Quote:
 Karen67
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10-08-2011, 07:54 AM
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#244 | |||
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Wisest Elder Ever
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Update from Claire's Mom:
The last round of the last antibody treatment is over! This week went by smoothly without any complications. For me, it will be over Monday when we take this central line out. Claire will have seven more days of shots when we get home and that's it. She will have her first set of scans in three to four weeks. Then they will be every three months for the first year. We are going home today sometime. I will update again soon. I am going to post some pics of some of the nurses that have meant so much to us. I am sad to say goodbye to them. A few times I have had meltdowns with them and would not have made it through those moments without their listening ears and encouraging words.
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These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here. |
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10-09-2011, 12:28 PM
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#246 | |||
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Praise God!
__________________
Dx: CNS Demyelinating Disease (2005) Take me back to days full of monkeyshines Bouncin' on a bubble full of trouble in the summer sun Keep your raft from the riverboat Fiction over fact always has my vote And wrinkles only go where the smiles have been... Jimmy Buffett from "Barefoot Children in the Rain" . |
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10-18-2011, 08:07 AM
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#247 | |||
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Wisest Elder Ever
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Latest update from Mom:
"Claire will have her scans tomorrow. She will have CT, MIBG and bone marrow biopsy all done under sedation. Today she will go to Egleston and have radioactive isotopes injected via IV for the MIBG tomorrow. We should have the results Thursday except the bone marrow which takes about a week. We are feeling a little anxious and will be glad when it's over. The truth that "no man can know the future" is both comforting and unsettling. This is why we must place our hope in the Lord alone. He DOES know the future and will be there. His glory is our hope and the grace that will sustain us. Still, we NEED prayer! CURE Childhood Cancer www.curechildhoodcancer.org sent us tickets to take Claire to Disney Princess on Ice. We went this past Saturday and had so much fun. Claire and Jude loved it! If you have an opportunity, please learn about this incredible organization. They have touched our lives from the moment Claire was diagnosed. They have also funded research for Claire's cancer, Neuroblastoma, as well as many others. We'll post the results as soon as we have them!"
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These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here. |
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11-30-2011, 10:20 AM
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#248 | |||
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Wisest Elder Ever
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Cancer free!! Look at this beautiful baby today!
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These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here. |
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12-01-2011, 03:37 AM
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#249 | |||
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Legendary
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Thank you so much for the picture, she looks so adorable. I have been thinking of her and she is doing. Thanks for the note on here. Give her a great big
 for me.Darlene
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. "Life without God is like an unsharpened pencil -- it has no point.
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12-01-2011, 04:15 AM
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#250 | |||
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Magnate
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What wonderful news after such a long road.
When you have to prayers of so many miracles happen. Di 
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. Pocono area, PA . . . |
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| "Thanks for this!" says: | Kitty (12-01-2011) |
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