SCS & Pain Pumps For spinal cord stimulator (SCS) and pain pump discussions.


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Old 03-06-2010, 01:46 AM #1
Kakimbo Kakimbo is offline
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Kakimbo Kakimbo is offline
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Default Hopkin's study on...me!

Hi everyone!

I went to John's Hopkins yesterday. Want to give me a SCS, which is great! They also want to do a trial on me. I am to be monitored for my experience and evaluated with my progress. Does anyone have experience with this?

fmichael; I think this is right up your alley! Any help would be most appreciated!

Thanks in advance.

Kim
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Old 03-06-2010, 11:24 AM #2
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Rrae Rrae is offline
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Laugh Congrats!

Hi Kim
I'm thrilled to hear of how well you've been treated by the medical personnel. It's always SO good to hear positive things like this!
I share in your excitement and will be praying for you every step of the way.
It's a scary issue to have to weigh and I only wish that the success stories would speak up more, but it seems we only hear of the failed trials. I know there are alot of folks lives who have been changed tremendously for the better, but it seems perhaps that they no longer feel the need to be on a pain forum and they go on and live their lives.
Seek these people out the best you can! Go to the website of the company providing this unit and ask to speak to the patient advocates. You'll hear both sides of the experiences.

Ask alot of Q's regarding the possibility of a spread and make sure they've got you covered should something go wrong.
This is your body, your life.

I know you are in good hands. Take the trial very very seriously B4 doing anything permanent.

Truly Caring
Rae
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"Thanks for this!" says:
Kakimbo (03-23-2010)
Old 03-07-2010, 01:40 AM #3
ALASKA MIKE ALASKA MIKE is offline
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ALASKA MIKE ALASKA MIKE is offline
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Default

Quote:
Originally Posted by kim ames View Post
Hi everyone!

I went to John's Hopkins yesterday. Want to give me a SCS, which is great! They also want to do a trial on me. I am to be monitored for my experience and evaluated with my progress. Does anyone have experience with this?

fmichael; I think this is right up your alley! Any help would be most appreciated!

Thanks in advance.

Kim



everyone gets a trial before a scs is put in.
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ALASKA MIKE
ARACHNOIDITIS,CRPStype2/CAUSALGIA since 2004
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Kakimbo (03-23-2010)
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