[bringontherain28]

Hi, my name is Kristy. I am 35 years old. I will attempt to make my long story short. As a result of 2 rear end accidents, I am fused from C4 to T1. I have been out of work for a year. I want my life back. As a result, I am undergoing the SCS trial. I have many questions. The biggest one at this point is do you ever become accustomed to this buzzing sensation? I would love to talk with people that have the cervical SCS. Thank you for reading and hope your day has been wonderful.

[Rrae]

Welcome!

I'm sorry about your accidents. I sense the determination in your post when you say you want your life back. Keep believing in that!
You have found a fantastic place for support, understanding and care. No doubt you'll be getting alot of good feedback.
So, are you in your trial now as we speak?
It is a strange feeling, but such a welcome relief to me when I first turned mine on and the burning in my legs turned into a soothing 'buzz'.
The good thing about the stimulation is that you can control it....and even turn it 'off' if the 'buzz' gets a bit irritating. The amplitude pulse/width will adjust so that it presents itself as a constant buzzing, or turned down, it will feel more like a 'thumping'. I'm 3 yrs into mine and most of the time I am unaware that it is on.

Here's hoping that your trial is a complete success! Please keep us posted!

It's really nice to have you here

Rae

[bringontherain28]

Originally Posted by Rrae

Welcome!

I'm sorry about your accidents. I sense the determination in your post when you say you want your life back. Keep believing in that!
You have found a fantastic place for support, understanding and care. No doubt you'll be getting alot of good feedback.
So, are you in your trial now as we speak?
It is a strange feeling, but such a welcome relief to me when I first turned mine on and the burning in my legs turned into a soothing 'buzz'.
The good thing about the stimulation is that you can control it....and even turn it 'off' if the 'buzz' gets a bit irritating. The amplitude pulse/width will adjust so that it presents itself as a constant buzzing, or turned down, it will feel more like a 'thumping'. I'm 3 yrs into mine and most of the time I am unaware that it is on.

Here's hoping that your trial is a complete success! Please keep us posted!

It's really nice to have you here

Rae

Rare,

Thank you for your quick response. The scs was placed for trial on Monday. If I look up or down, the frequency increases. I can't tel if my fingers are still numb, if it is the buzz sensation, or a combination. My occupation involves computer usage. If the permanent is the same, I will have more sleep but I don't know that I will be able to work. I want to tell you more, but hurts to even type on the touchpad. Am I doing something wrong? I want this to be my answer.

Thanks.

[Nanc]

to what Rae said!

You can have the stimulation set to a pulse/sensation you are comfortable with and adjust it up and down. During my trial I felt relief, but didn't think I would be able to deal with that constant "buzzing" feeling all the time...I was wrong!! I got used to it in no time!!

BTW, I have both cervical and thoracic stims and am so thankful for them

Take care and wishing you the best with your trial.

Nanc

[bringontherain28]

Originally Posted by Nanc

to what Rae said!

You can have the stimulation set to a pulse/sensation you are comfortable with and adjust it up and down. During my trial I felt relief, but didn't think I would be able to deal with that constant "buzzing" feeling all the time...I was wrong!! I got used to it in no time!!

BTW, I have both cervical and thoracic stims and am so thankful for them

Take care and wishing you the best with your trial.

Nanc

Is the additional restriction of neck motion without the jolt something that fades? Is it better with the permanent?

[Nanc]

Originally Posted by bringontherain28

Is the additional restriction of neck motion without the jolt something that fades? Is it better with the permanent?

For me it was much improved with the permanent. Not so many jolts now, but they do happen occasionally, depends on how far I turn my head or lean it back

I am a Finance & HR Mgr, I look down at work all the time working on financials, etc...had so many jolts and had to be so careful with the trial. I do not have that problem at all with the permanent.

[Rrae]

Originally Posted by bringontherain28

Rare,

Thank you for your quick response. The scs was placed for trial on Monday. If I look up or down, the frequency increases. I can't tel if my fingers are still numb, if it is the buzz sensation, or a combination. My occupation involves computer usage. If the permanent is the same, I will have more sleep but I don't know that I will be able to work. I want to tell you more, but hurts to even type on the touchpad. Am I doing something wrong? I want this to be my answer.

Thanks.

You're doing just fine, Kristy!
I understand the pain, so don't push yourself.
As far as the increased stimulation when you look down, like Nanc said, it won't be near this sensitive when you get the permanent. Keep in mind that you aren't sutured in very well for this trial. When you look down, you are simply pulling on the leads, thus the increased stim.
If/when they install the permanent, the leads will be anchored in much better to the dura within your dorsal column. Or, even better, he may want to do the laminectomy. This will surely secure the leads in and there won't be so much 'give' as what you are currently experiencing.

Lead migration is very common, there's no denying that. It's imperative that we mind the post-op restrictions until the leads have a chance to scar in.

I hope your pain eases up by morning! If it's too painful to type right now, feel free to sift thru alot of the previous posts and threads. Lotsa good info to be found. Feel free to ask anything you'd like. No such thing as a silly question.

Rae

[CoralToe]

Before I had my trial - I too was very worried about the buzzing feeling...and if that would be better or worse than the pain. BUT after my permanent implant, and self-programming, I have found just the right amplitude and frequency - that now I actually LOVE how it feels. For me it is this nice, gentle massaging feeling, and I too have gotten to the point where most of the time I forget that it is on

As for the jolts...I have a thoracic unit, so can't comment directly on the neck moving issue, but I can tell you that there is MUCH less jolting with the permanent, due to both better securing of the leads, AND eventually scarring in of the leads. When my unit was first implanted I had to change programs every time I changed position. Now, I rarely change the program at all, as the leads are no longer super sensitive to my norma movements.

Hi and welcome to this great forum.

I have my unit nearly two years (August) and have to say wouldn't be without it now. I have it for Failed Back Syndrome pain in my lower back and legs Yes in the beginning I noticed the smallest movement sent the stimulation in a different direction. It was no big deal because after a few days I got so used to the sensation it was ok. There are different sensations with my stim. A st Jude's stim. It's like constant buzzing/slight thumping but so relaxing. I love at night when I'm lying down how relaxing it is. It has made me more relaxed and mentally in a much better place than where I was two years ago. It's also given me more energy too. I dont feel as tired as I'm massaged all the time with the stim. Also in the past couple of months I feel the coverage much better and I'm putting it down To the fact that my leads are well scarred in and aren't moving around so much which means that the sensations are more localised. Which bring so much more relief.

I didn't get back to work in the bank unfortunately, but there are plenty here who did. So good luck with the rest of your trial and hopefully you will have a better understanding of it and decide which way you want to go.

Best of luck and keep the questions/concerns coming

Jackie

Originally Posted by Nanc

For me it was much improved with the permanent. Not so many jolts now, but they do happen occasionally, depends on how far I turn my head or lean it back

I am a Finance & HR Mgr, I look down at work all the time working on financials, etc...had so many jolts and had to be so careful with the trial. I do not have that problem at all with the permanent.

Originally Posted by bringontherain28

Hi, my name is Kristy. I am 35 years old. I will attempt to make my long story short. As a result of 2 rear end accidents, I am fused from C4 to T1. I have been out of work for a year. I want my life back. As a result, I am undergoing the SCS trial. I have many questions. The biggest one at this point is do you ever become accustomed to this buzzing sensation? I would love to talk with people that have the cervical SCS. Thank you for reading and hope your day has been wonderful.

[eva5667faliure]

he

Originally Posted by bringontherain28

Hi, my name is Kristy. I am 35 years old. I will attempt to make my long story short. As a result of 2 rear end accidents, I am fused from C4 to T1. I have been out of work for a year. I want my life back. As a result, I am undergoing the SCS trial. I have many questions. The biggest one at this point is do you ever become accustomed to this buzzing sensation? I would love to talk with people that have the cervical SCS. Thank you for reading and hope your day has been wonderful.

hello kristy

welcome
so sorry
when i hear
younger person
life stop

i am on the fence
about my pain pump

you are among the right
group of friends i have
had such the honor of meeting
with experiences and share of
their road to a SCS OR PAIN PUMP

MANY MANY MANY
WISHES OF A WONDERFUL
ROAD FOR YOU

someone who cares