SCS & Pain Pumps For spinal cord stimulator (SCS) and pain pump discussions.


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Old 04-04-2010, 09:48 PM #1
Deidre Duron Deidre Duron is offline
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Default I think I have an infection..anyone else had this??

I'm sweating all the time, the slightest movement, sleeping, sitting..I drip sweat on my face and neck. Thought it could be my thyroid, I've had Hyperthyroid before that landed me in the hospital but they said it was just a once in a lifetime thing. I don't feel any kidney pain or anything like that, just sweat..so I've been taking Augmentin (sp?) the last few days from what I had left over a while back to see if it will help, but dangit, am fearing it could be my body not liking the stimulator...and why now after all of this is said and done. I'd love to hear experiences if others have had this and what happened.
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Old 04-04-2010, 11:12 PM #2
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Default Hey there Deidre

Well DANG! I'm sorry to hear of this!

The very first thing that came to mind is: Have you stopped taking heavy pain meds since getting the SCS? Some of what you describe almost sounds like withdrawl. I'm still in the process of titrating off the Fentanyl Patch...I'm now down to the 25's.
But I've noticed when I tried quitting too suddenly, I'd get this aweful ....clammy, sweaty feeling.....

If you don't feel this pertains to you, then ....
Are you in pain? How about Fever? If you are without those two symptoms, that would be a good sign you do NOT have an infection.

Certain meds (esp Cymbalta triggered alot of sweating in me).....

And of course there will be the wonderful smiling Dr's who will look you in the eye and sayyyy "...hmmmmm you may be at 'THAT' age....."

PLEASE let us know what you find out!

I'm still trying to get used to a few things about the SCS......it's been over a month and still I have yet to get my first 'tweek' session.

FEVER would be the #1 thing that would point to infection......and pain/redness/swelling at the incision sites.
I pray this is NOT the case for you!!

Prayerfully,
Rae
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Old 04-12-2010, 12:10 PM #3
Goforth Pennysaver Goforth Pennysaver is offline
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Quote:
Originally Posted by Deidre Duron View Post
I'm sweating all the time, the slightest movement, sleeping, sitting..I drip sweat on my face and neck. Thought it could be my thyroid, I've had Hyperthyroid before that landed me in the hospital but they said it was just a once in a lifetime thing. I don't feel any kidney pain or anything like that, just sweat..so I've been taking Augmentin (sp?) the last few days from what I had left over a while back to see if it will help, but dangit, am fearing it could be my body not liking the stimulator...and why now after all of this is said and done. I'd love to hear experiences if others have had this and what happened.
Goforth;
Get to your doctor right now. If you feel they are acting irregular it is most likely because they recognize an error and want you to go away. Go to the hospital or another doctor and find out for sure what is going on inside you. If your manufacturer is the same as mine you will get no answers from them.
You are on your own from this time forward if there is a problem. Put a thermometer in your mouth and head out in qwest of answers!
FDA really needs to look into this product and the lack of knowledge on the part of those who manufacter them!
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Old 04-12-2010, 12:53 PM #4
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Hi! I'm sorry to hear of your problem. I had my SCS battery moved two weeks ago and had to go to the ER last night. I have all the symptons of you and they gave me pain med and sent me home. I went to a differnt hospital and they just told me I need to call the implanting doc and let him take care of me. They said they could only give me a dose of a med and then I was on my own. Now I must call the doctor but he is in surgery today so I will not get a call till tommorrow. Best of luck with your problem. Will keep you in my prayers.
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Old 04-13-2010, 11:26 PM #5
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Default Deidre

Hi Deidre- I don't know what more to say since I am still on the pre-surgical path other than that I am praying for you.

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Old 04-16-2010, 05:09 PM #6
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I had an infection (MRSA) with my 2nd scs. It caused me to feel bad, (but then I just had a scs taken out and a new one put in somewhere else), and I told everyone how bad and tender it felt on my side where they put the new battery. Everyone, dr, nurses, and the scs rep told me it looked fine, it wasn't hot nor was it red. Well had the staples out, (such pain when the ones in my side were taken out. I was crying and moaning and trying not to scream). 3 days or so later, I went to roll over in bed and I notice my sleepshirt was wet. UMMMM, wonder what caused that. lol. You got it. Pus was pouring out from my side, and the incision was still almost totally closed. Rushed to ER, couple of hrs later had everything taken out. Stayed in hospital overnite, then was moved to a nursing home to be taken care of. (I will NEVER go to another one in my life). The infection was under the battery, hence no swelling or redness. It had gone up my leads and were just about to go into the spine. That would not have been good. I had a low grade fever, and the last day, before my side opened, I started to vomit. Oh well, all is well that ends well. That was really the best day of my life as I swore I would never have anything done to me again. it took a year, but I went with the pain pump, and it has been the best thing in the world. I'm 12 wks out and I'm back to doing almost everything I did before rsd. Ok. not working yet, but am working on going back to work. lol doing all my barn and farm work, planted a beautiful veggie garden, and spent several hrs trying on shoes at DSW. Pretty soon I'll be getting back on my horses to ride again.

Hugs
Mary
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Old 04-17-2010, 10:09 AM #7
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I as well as others in my Support Group have these sweats all of the time .We all call it the RSD sweats. I am not saying that you could not have something wrong,but I have had exactly what you described ever since I started with RSD. Let us know-Fondly-Carol
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Old 04-17-2010, 02:08 PM #8
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Thumbs up Hello Carol !

Did you happen to notice if these sweats became worse after you got your SCS, or do you attribute your episodes to your original condition of the RSD?

So glad to see you hear again !

I think what is alarming in these cases, is that there is question as to whether the SCS is provoking some type of 'rejection' from the body or worse yet, if there might be infections going on...... ?
To some here, it is so soon in getting their units, it's not quite clear WHAT to think?!

One thing I can connect is that by getting the SCS, alot of folks are able to reduce their pain meds substantially......when I tried reducing too quickly, my body didn't 'like' that, and I had awful 'sweaty' (withdrawal-type) symptoms....
But I'm thinking, by the sounds of these posts, there is something deeper going on....... ?
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