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SCS & Pain Pumps For spinal cord stimulator (SCS) and pain pump discussions. |
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05-30-2010, 12:22 PM | #1 | ||
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I came across this forum recently. I've had the lumbar SCS trial and am waiting ins. approval for the cervical SCS trial. If the cervical trial goes well, I'll be getting both the lumbar and cervical SCS's implanted. Dr. says he'll do it in one surgery and I'll probably have two batteries. He said he implants the batteries below the waistline in the buttock area, so will have one in each butt cheek
Any advice you can give me? I'm fairly new to all this and trying to educate myself. Fortunately I think I have a good dr. as he also trains other doctors in how to implant the SCS devices. He used to be at Cleveland Clinic until he moved here to Columbus. |
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"Thanks for this!" says: | Mark56 (05-30-2010), msdilbert2 (06-26-2010) |
05-30-2010, 02:03 PM | #2 | |||
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Grand Magnate
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WELCOME!!
SO glad you've found us!! You'll soon see that we're becomming quite the 'fun' little bunch of 'Bionic-Butts' Sharing our ordeals is very therapeutic and we'll all be glad to get to know you and share what we can, and will no doubt be inspired by YOU as well! Can't stay on long at the moment, but wanted to welcome you since I saw your post! I've got company coming, so must log off for now.... I hope you are having a good Memorial weekend! Others will be along shortly! Rae |
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"Thanks for this!" says: | Mark56 (05-30-2010) |
05-30-2010, 03:49 PM | #3 | |||
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Grand Magnate
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Hello fionab-
I don't remember reading of a member posting with both cervical and lumbar implant results and effects. What I recall reading have been postings of one or the other. Hopefully if I have missed a dual implant recipient along the way, they will chime in SOON for you. I am a post Trial patient waiting, well as patiently as possible, more like on pins and needles as we seek a calendar date for my lumbar implant to address bilateral leg neuropathic pain, numbness, BURNING, oh, and the spasms, can't forget them. I was ecstatic once the Trial proved successful. It is SO hard to wait for the real deal. If you wind up with a battery in each glute I wonder about your charging/recharging. One thing that caused my docs to persuade my change from ANS to Boston Scientific was that the BF unit recharges without wires, a recharging unit is worn around the waist when needed and it sits in a charging cradle otherwise. But, like you wrote , that may take some effort to become accustomed. May you find ALL of the input and answers you sought in posting, and as you approach the surgery, you have my every hope and prayer that it procedes to success and without ANY infection. Blessings, Mark56 |
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"Thanks for this!" says: | Rrae (05-30-2010) |
05-30-2010, 10:21 PM | #4 | |||
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Grand Magnate
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There is a member here who had both cervical and lumbar. Her name is "Vannafeelbetter"..... She hasn't been on for a few months and I miss her
She had some very wonderful informative input and was happy with hers. If you do a search and find her profile page you could look back thru her prior posts. I think of her often and hope she is doing ok...... She would be such a wonderful contributer here, as this forum was just created a few months ago and she hasn't been on here since the SCS/PP forum has been created. The only negative thing I recall her saying was that the pressure of having 2 batteries weighed on her lower back. TTYS Rae |
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"Thanks for this!" says: | Mark56 (05-30-2010) |
05-31-2010, 04:53 PM | #5 | ||
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I spent some time and went thru Vannafeelbetter's postings. Makes me feel better to know that there is someone out there that had success with getting two implants. Glad I found this forum. Will read as much as I can to educate myself. Any advice on what to do/not do after I get the permanent implants? I have a vacation planned two months after I get the permanent implants...is this realistic? Thanks
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05-31-2010, 08:18 PM | #6 | |||
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06-01-2010, 12:08 AM | #7 | |||
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Grand Magnate
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Quote:
Driving long distance? Getting 2 units at the same time is gonna put quite a demand on your body. I'm 3 months out from getting my lumbar implant and it's doing a good job of covering the pain. I'm still pretty 'protective' of the battery site and don't want to take ANY chance of getting infections. My Dr has given me the 'ok' to start swimming again. I dunno, fionab, that seems to be cutting it pretty close..... I guess, depending on what your Dr says, you'll have to really 'listen' to your body. I personally wouldn't feel in any condition to do any amount of walking, site-seeing, or riding for extended periods of time at this point. My back muscles are very weak and vulnerable to stress, which easily causes a pain trigger.....but if you are just going to be visiting someone and be in an atmosphere of comfort and 'pampering', then maybe it'll do you a world of good. Let us know how this goes! Keep sending us updates here to your thread along the way so we can 'follow along' with your journey. It'll be a good learning experience and also will help those who come to NT looking for advice and experiences we share. I wish you the best and am praying for successful outcome for you! I'm glad you've got a Dr you feel confident about. That's one of the most important part of the process....is having a very skilled Dr. Please stick around and let us get to know more about your pain battle which brought you to the point of getting the SCS. We are like family here and we build off each other's experiences. This is such a caring community So glad you're here! Rae |
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"Thanks for this!" says: | Mark56 (06-01-2010) |
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