Rae omg sounds like this little fella will be out in no time. You will be so wonderful as a nana too. I'm really looking forward to hearing ALL the details

Good to know you have the patches on standby. Nothing worse than being caught out is there!!!! But you will be soooo excited that you almost forget your pain because you experience such euphoria when this special little bundle of joy arrives.

Not long now

Jackie

Don't you find that having something to look forward to helps you deal with them pain ...

Christmas time babies ... yay!

Well it certainly takes your mind off it a lot. Thats why I spend most days on the couch with my laptop. It takes my mind off my worries and pain for a while. I get so engrossed in the internet its like it nearly disappears I wish.......

But I love Christmas Time. And Rae is going to have a ball when her new grandson arrives. She really is. Its such a joy to be a nana. And it is also a joy to have your grandchild here with you all day and play and coo over them, its just wonderful ...................................BUT and this is a big BUT/BUTT.........its also lovely to hand them back too and get a good nights sleep, (well as good as you can have)


This is such a wonderful life really

Well we had our granddaughter Christened on Saturday and it was a fantastic day

Everyone had a lovely time and Cara (my grand-daughter) was just great she was so well behaved. Bless her she is only 4 months old today.

It was a true test for my stimulator. I will say I was a bit disappointed. I had it turned up to full tilt. But I didnt get a lot of relief. After the service about 1.30pm we went to our local pub where my daughter and son-in-law had organised a small party. I arrived about 2.30pm as I wanted to be able to stay as long as possible. But by 4pm I wasnt able to continue sitting. I was up and down like an elevator!! I tried my best though not to let it show, but my husband knew by me that I was suffering. I tried to change the settings and at times it did help somewhat, but not enough! My daughter told me to go home if I wanted to, its only over the road, but I knew if I went then I wouldnt come back. So I held out for another hour and then I went home. ANd I was SOOOO glad to see my couch. I lay down with my stim on and it was heaven. But it did occur to me that maybe I wont get rid of that awful pain I get in my butt and back while I sit.yes its great for my legs but I just wish I could get it to help my butt/back.
My Dr did say its not always successful for the back. Does anyone else have this problem? Just wondering if maybe it might in time or is this it?
Sorry for the negativity!! but I just wanted to share that experience with you all as its the first time Ive been 'out' as in socially since my operation which was 3 months ago on the 5th Nov.
Thanks Jackie

Jackie!
Congrats on your Grandaughter's special day!
But so sorry it was clouded with that all-too-familiar pain that can set in as a major flare and not let go!!
It sounds as though we are dealing with the SAME thing! I get wonderful coverage in my legs and am reluctant to go for tweaking because I don't want to mess up a good thing.......but the lower back pain is incapacitating at times!
Not sure how I'm going to pursue this, as I don't think it has to do with the SCS, but can't be sure. I'm afraid to go running to the Dr who did my implant because he is a needle jockey and.....well.... I may take this to my GP and show them the recent xrays that only indicate 'multidimensional degeneration issues' in the lumbar. No specifics. I'm just told that this is something that 'most' people face as they age and that the pain may not get worse in time.
So, I'm kinda just waiting this out.......don't want to start booking appointments when I have a little guy gonna be making his first appearance any week now!

I've tried to figure out WHAT triggers this horrible low back pain!
The weather? Sitting too long at work? Laying around too much on days off?
Over-doing it at the swimming therapy pool?? Standing too long? Sleeping in a wrong position???? ARRRRRG......I just can't get anything to add up!!
So, I embrace your frustration.
I hope we can get answers to begin to unfold for us!

Rae

Jackie and Rae, I am sorry that you are both still having pain in your back. I do know that they say it is the hardest to tackle with the SCS and it took me a while to notice improvement even after I was all healed up. I think my back hurts especially worse when I have been sitting too long which makes it very difficult to do school work I also have more problems when I have not had enough sleep the night before (usually because of pain). I really hope that your doctors can help you figure out how to get better pain relief in your back! Have you tried using heat or hot baths? Besides the pain meds, heat helps me the most and of course it also matters if my stim is working right . I hope you both get some help and I would definitely talk to the doctor and also your stim rep because sometimes the reprogramming can affect it too! Take care'sTara.

Rae it is indeed exciting times ahead for you. How wonderful. This little guy will almost make you 'forget' your pain. I use that word loosely

My pain comes from sitting or standing too long. It starts in my butt and travels up and down but almost impossible to put my finger on it if that makes sense. It gets do bad while sitting that I'm practically sitting on my right butt only with my hand tucked under my left butt to keep it off the chair !!!!

Like you Rae I have a programme that works for me out of the 8 I have. So at my next tweaking session I intend to keep that one and they can play around with a new one. Not letting that one go .
I also have some degeneration in my lumbar region plus I was told some arthritis. But then I'm not getting any younger either

Tara I've tried those heat patches but don't get much relief. A bath is wonderful though. But the best relief of all is my bed or couch. Well I can't do that all the time.

One thing I do notice though A week before 'that'time of the month I can be in agony. Not sure if there is any relation to that but I do feel a lot worse then. These are more questions I need to ask.

Have to say, my doctor told me the stim will only help the butt and leg pain. I do get chronic back and have to stop walking and bend as far as I can from the waist forwards ..... Even though this hurts but it eases the initial pain. My physio - who shall be known from now as the lovely Norman, said this is because I am opening the disks which wll relieve tha pain briefly.

Hope you are all well. I havent posted for a couple of days as we decided to go to Belfast in the North of Ireland. And we just came back today. IM WRECKED!!!! It took us about two hours up and back. My husband has a jeep with reclining seats so that was a blessing. I just lay back and put on my stim and hey presto By the time we got to Belfast the storm (which was forecast for Monday, didnt realise there was one on Thursday too) was taking hold, as it would. So my daughter, granddaughter and myself hit some of the shops. My son-in-law and hubby went their own way doing their shopping for tools Now we only stayed out for bout an hour and a half as I was just exhausted and needed to lie down. So back to our hotel and we stayed put til the boys came back at about 6.30pm. AS it was so wet and windy we didnt venture back out until this morning and just did another hour of shopping and then hit the road home PHEW!!!!. I was glad I had the stim though especially for the lying down and relaxing. It was great.
So overall, Im glad we went although I did find the journey tiresome because although I was 'lying' down, well as much as I could...it was still painful.

Now I need to rest to get my energy levels back up again Is there any word on Sarah and how she got on? I havent read through the other posts yet, will do after this.

Take care

Jackie

jackie glad to hear you got a break away !! my friend keeps asking me to go north but as she and i never discuss whats wrong with me i doubt she would understand my 10 mins of shopping and then i need to go rule!! only family can understand that but honestly thing my hubby is happy with our 1 hour max in dundrum shopping centre as it saves him a fortune!! was reading a note rae sent me and really think it might help me she suggested a butt cushion do you have one of these would you know where i can get one?? loving chatting and getting to know you jackie and so glad i have my fellow irish lady to support me throught this!!