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-   SCS & Pain Pumps (https://www.neurotalk.org/scs-and-pain-pumps/)
-   -   Charles Jenkins new SCS Implant (https://www.neurotalk.org/scs-and-pain-pumps/131371-charles-jenkins-scs-implant.html)

anon21816 09-09-2010 02:02 PM

Good luck
 
Quote:

Originally Posted by charles jenkins (Post 693544)
Well I have been turn on so i'm buzzing along with you guys, I am thinking it will take a couple of day before the SCS really start to work, I seem to remember in the trial it took a few days before it work? I got four program and will be program again next wednesday the 15th any ideas or suggestion?



Hi Charles

Great to hear that you have finally been turned on. You should be able to feel it working almost straightaway. I got great relief when I first had the trial and when I had the permanent one done (5 weeks today) it was turned on immediately and I felt great with it. I would say I have at least 60% benefit from it. So fingers crossed it continues. :)

I also went in to have it reprogrammed today so Im much better now this evening.

I hope this all works out for you. There are a lot of positive posts here too which is fantastic....

Take care

Jackie :)

fionab 09-09-2010 07:26 PM

It took me a few days to feel relief, as I was dealing with post-surgery pain. I remember that during the trial it also took me a couple of days to get past the "trial surgery" and begin to feel some help from the unit. Even though I came home from the surgery for my implants turned on and working, I kept them low due to feeling sore. A few days later I started turning it up as I was getting beyond the surgery pain. I remember Mark was made to wait about 10 days, I think, before he was allowed to turn his on for daily use, but then he had a more in-depth surgery (He had a paddle rather than leads).

What you may notice first is that you don't need to take as many pain meds. and that you can do a few things here and there (hopefully sleeping better is one of them), that were difficult or painful prior to the implant.

Keep the stimulation at a comfortable level and increase it as you feel is beneficial. It's easy for me to cross the line and turn it up too much and it actually makes me hurt more as it makes my muscles tighten up. So we each have to find that "right" level and even then it may change from day to day, from activity to activity. Sometimes I have to turn it down when I sleep, other times I find myself turning it up a little. Some people just set theirs at a good level and the remote lays there gathering dust and they just have it at the same level 24/7.

Good luck with your new toy. Just don't get it mixed up with the TV remote :D By the way, while the leads are scarring in (for first 3 or more months), you'll probably noticed increased or decreased sensation depending upon how you move. Can take a little getting used to, but if you get good pain relief the weird feeling is easy to get used to.

Mark56 09-09-2010 09:47 PM

Applause to Fiona and Jackie
 
Advice is good there, I have nothing to add, except I HOPE IT WORKS WELL FOR YOU CHARLES JENKINS!
Mark56:hug:

Rrae 09-09-2010 09:53 PM

And the NEW ButtBuZZ Award goes to.....
 
YOUUUU!
....................http://dl2.glitter-graphics.net/pub/...hovpmzlqh4.gif

Congratulations Charles!

The others have given the best advice there is !!

DO NOT SWALLOW THE SUPPOSITORY

DO NOT LET YOUR BATTERY RUN DOWN!!!

Rae
:hug:

Mark56 09-09-2010 10:00 PM

Oh Rae-
 
:mfr_wha::vomit2::Ponder::Blush2::Doh::Doh: Swallow the suppository? Eew.....
Mark56:D

Rrae 09-09-2010 10:13 PM

AS IF!!!!! :eek:

Your depiction of eating from the 'other end' omg
That one tops em all dear Bro ! :ROTFLMAO::ROTFLMAO:

I did a serious ROFLMAO and not to mention thus causing another BUTTSURGE

:rolleyes:

charles jenkins 09-09-2010 11:17 PM

thanks, you answer so many question
 
:Ponder::Ponder::You-Rock:fionab thanks a bunch I was wondering why when I turn my butt buzzer up high and then I move around it decrease in volume, I also was wondering if I should sleep with it on? I take pills to help me sleep currently, so I am assuming in the first couple of weeks the intensity level that I can handle will vary , and not totally helping me in my primary pain area, but you answer quite a few of question I waited 15 days after surgery to have mine turn on post surgery pain was bad

Quote:

Originally Posted by fionab (Post 693685)
It took me a few days to feel relief, as I was dealing with post-surgery pain. I remember that during the trial it also took me a couple of days to get past the "trial surgery" and begin to feel some help from the unit. Even though I came home from the surgery for my implants turned on and working, I kept them low due to feeling sore. A few days later I started turning it up as I was getting beyond the surgery pain. I remember Mark was made to wait about 10 days, I think, before he was allowed to turn his on for daily use, but then he had a more in-depth surgery (He had a paddle rather than leads).

What you may notice first is that you don't need to take as many pain meds. and that you can do a few things here and there (hopefully sleeping better is one of them), that were difficult or painful prior to the implant.

Keep the stimulation at a comfortable level and increase it as you feel is beneficial. It's easy for me to cross the line and turn it up too much and it actually makes me hurt more as it makes my muscles tighten up. So we each have to find that "right" level and even then it may change from day to day, from activity to activity. Sometimes I have to turn it down when I sleep, other times I find myself turning it up a little. Some people just set theirs at a good level and the remote lays there gathering dust and they just have it at the same level 24/7.

Good luck with your new toy. Just don't get it mixed up with the TV remote :D By the way, while the leads are scarring in (for first 3 or more months), you'll probably noticed increased or decreased sensation depending upon how you move. Can take a little getting used to, but if you get good pain relief the weird feeling is easy to get used to.


charles jenkins 09-12-2010 12:18 PM

checking in
 
Just checking in getting use to constant buzzing, working as expected reducing about 70% of pain able to stand longer and walk longer its a good positive start of me, just have problem sleeping seen to have developed pain on both side wondering is it because I might have stimulator up to high. I guers my leadfs are not stable very aware of hight I move wrong movement can seen you some serious buzzz:icon_surprised::Wave-Hello:zzzing

Quote:

Originally Posted by charles jenkins (Post 693754)
:Ponder::Ponder::You-Rock:fionab thanks a bunch I was wondering why when I turn my butt buzzer up high and then I move around it decrease in volume, I also was wondering if I should sleep with it on? I take pills to help me sleep currently, so I am assuming in the first couple of weeks the intensity level that I can handle will vary , and not totally helping me in my primary pain area, but you answer quite a few of question I waited 15 days after surgery to have mine turn on post surgery pain was bad


Mark56 09-12-2010 03:48 PM

Turn down for sleep
 
Quote:

Originally Posted by charles jenkins (Post 694377)
Just checking in getting use to constant buzzing, working as expected reducing about 70% of pain able to stand longer and walk longer its a good positive start of me, just have problem sleeping seen to have developed pain on both side wondering is it because I might have stimulator up to high. I guers my leadfs are not stable very aware of hight I move wrong movement can seen you some serious buzzz:icon_surprised::Wave-Hello:zzzing

Hi Charles-
I soon arrived at the realization that turning the silly thing down to a tolerable lying down level for sleep enhanced my sleep experience. Of course, I have yet to resume pre-wreck sleep habits since withdrawing from all pain management meds, but in due time..... in due time. I still awaken after about 5.5 to 6 hours when 7 used to be my norm. Reaching for that goal....
Your leads should scar in sooner than later so that minimal movements do not send you up the proverbial wall each and every time. That will come. In the meantime, try turning down at bedtime, not off, but down.

Best,
Mark56 PJ :)

Rrae 09-16-2010 07:16 AM

Howzit goin Charles?
 
Just wondering how you're doing and if you are sleeping ok!
Has the pain on your sides gone away?

I hope you are getting used to some of the settings.
I also get about 70% relief from my stim. Hoping to find something that fills in the other 30% without having to reach for the breakthru Lortab as often.

Heading to some aqua-therapy this morning!
My doctor gave me the 'ok' to swim about 8 weeks after surgery, but I waited til about 12 weeks.

Let us know how it's going
:hug:


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