[fionab]

While I've tried to remain optomisitic and positive about this whole thing in my posts, I've been struggling with a few things that have me wondering how this is all going to, or is supposed to, play out.

I've had very bad nausea for the past 3 days and the phenergren isn't even coming close to helping it. Haven't been able to eat. It's the same kind of nausea I'd get when my neck was really hurting and was usually accompanied by lightheadedness. Fortunately I don't have the lightheadedness this time but now my neck is starting to hurt on top of feeling nauseous. I mentioned the nausea at my post-surgery consult on Monday but then went on to speculate that maybe it was one of the remotes that needed adjusting. The nurse didn't comment and just left the room so the rep. could work on reprogramming me. We opted to reprogram the lumbar remote as I was getting coverage up into my sides and abdomen and was hoping that getting rid of that would help the nausea go away. Unfortunately that hasn't happened and the two new lumbar programs aren't working out so great either.

So, I'm not sure what to do. I called my rep. but got his answering machine as it was around 9 p.m. Unfortunately the rep. I got this last time wasn't the guy I like and usually request, and I got the feeling that putting requests in for specific reps. isn't a typical thing and that you get whomever is there that day (I think they believe they are equally qualified, so probably don't understand my asking for one specific individual). Did any of you have this nauseau? What's strange is that the first 10 days post-surgery I didn't have it...has only come on here in the past few days. Has me concerned that something isn't going right here.

I know that getting 2 implants at once is a bigger deal, and hope that my dr. wasn't overconfident about doing 2 at once. He didn't do two incisions as previously planned (one to put the cervical leads in and the other to put the lumbar leads in), but put all four leads in through the lumbar incision. Makes me wonder how he connected the cervical leads when he had to thread them up through my spinal space.

Should I call the office tomorrow and let them know what's going on or do you think this is just the typical post-surgery stuff and I should just tough it out? I'm usually the type to just tough it out but with the phenergren not even touching the nauseau, that has me concerned.

[Leesa]

Hi ~ I'd certainly let the doc know since the nausea meds aren't even touching it. You can't keep going on like this. How can you eat when you're sick all the time??? Get ahold of him first this this morning and see what he has to say. It doesn't hurt to ask. God bless and let us know what he says, ok? Take care. Hugs, Lee

[Rrae]

Like you said, getting the 2 implants at the same time certainly puts you in more of a unique league, let alone the fact that all your leads were put in thru one incision!
And the fact that you are getting these nausea episodes that didn't seem to be there at first.......this certainly would raise questions and your Dr needs to know that something just 'doesn't seem right' .
This is Wednesday and if you are persistent, I'm hoping they'll get to take a look at you before the weekend gets here, so you can get some anwers and if something is beginning to go wrong, it can be nipped in the bud.

Do you have a fever?

There is no doubt that you've been toughing this out, but I honestly feel that you need to be watched very carefully because of the fact that your procedure is unique to most!
PLEASE call today! At least for peace of mind and reassurance, since you are barely even 2 wks out from surgery, and I bet he's gonna attribute much of this to post op swelling........but you seem to be developing symptoms which weren't there the first 10 days.... he needs to know this.

And maybe, just maybe it's just a matter of you may have tried to do a bit too much too soon and put a bit of stress on those neck muscles?

Ask if there may be a chance that you could have a slight CSF leak, which wouldn't be the end of the world....but would sure explain the late onset of this discomfort you are getting?
I dunno, my friend.......just please call ok?

Good morning everyone. My you are up very early

Fiona I'm so sorry to hear you are unwell at this stage if your recovery. I certainly would get this sorted asap

Rae what is this 'leakage' you mentioned?


Jackie

[Rrae]

Originally Posted by jackiekennedy

Rae what is this 'leakage' you mentioned?


Jackie

Central Spinal Fluid Leak - here's a link talking about it....
http://www.nlm.nih.gov/medlineplus/e...cle/001068.htm

I don't want to speak this into existance in Fiona's case.....
it's just that I've heard it is somewhat of a risk factor while the leads are being placed in the dorsal column........

It's temporary, but very uncomfortable........

Originally Posted by Rrae

Central Spinal Fluid Leak - here's a link talking about it....
http://www.nlm.nih.gov/medlineplus/e...cle/001068.htm

I don't want to speak this into existance in Fiona's case.....
it's just that I've heard it is somewhat of a risk factor while the leads are being placed in the dorsal column........

It's temporary, but very uncomfortable........

Thanks Rae

Interesting read! At least now I know what you look out for. Definitely dont want anything like this for Fiona OR indeed anyone of us who have our implants!

Hope your good today my friend

Jackie

[Mark56]

CALL, Fiona. TODAY

Got your attention,
now, call,
Z
Mark56 PJ

[fionab]

I called the dr.'s office the morning and was sent to the nurses' station voice mail so left message. I was up all night feeling like I was going to hurl (NOT one of the icons I've been wanting to use) and was worried what that type of action could do to leads. Fortunately was able to keep things down although it took some effort.

My rep. just called and he said to turn the cervical remote off to see if the nausea and pain gets better or if I need to turn it back on for pain relief. He said that while vomiting isn't good for the leads, if one has to do it then one has to do it. I think I'm past that point as I have not eaten anything, just drinking 7up which is helping. I'm sure it's not a bug as it's definitely related to motion. I finally laid down at 7 this morning (was scared to any earlier as had vomit catcher close by), and when I got back up the nausea felt better. But several minutes later, after moving around, it's back again.

Thanks, guys. I'll let you know what the dr. says. By the way, I don't have a fever...in fact, my temp. is going the other way. I typically run at around 97.4 and when I took it last night I was down to 96.0

[tchr012]

fionab, I am so sorry you are so nauseous. Sometimes, I get like that with my other health problems and have to resort to warm gingerale and occasionally crackers. I agree with everyone that you should call and maybe even bug them until they can help you. When phenergan does not help me they put me on compozine (not sure how to spell it) and that helps me get through it enough to eat again. I was extremely nauseous after my surgery but I think it was because all the pain meds I was taking until I healed up and then like I said my other health issues are also known to cause me nausea so I never really know what is causing it. I hope you get to feeling better. Try to take it easy and maybe you can put a cool rag on your forehead too, that also helps me.
Oh yeah, I also wanted to comment about the stim reps. I know exactly what you are saying because after my revision they gave me a new guy and I did not like him as he took off my sleeping setting! But he was only there for that surgery thank goodness and I was able to be back with my usual guy who I like very much. Do you have your stim guy's phone number? I have mine and when I have issues I call him and he arranges time to meet with me or sometimes I would tell the nurse at the doctor office I wanted him at a certain appointment. Hope you get to feeling better really soon, and make sure you take it super easy! Tara

[Mark56]

As your doc said. If you must, then you must. I did while withdrawing. Gut wrenching. Didn't seem to affect anything, and I "assumed the position" over the toilet so as not to tweak my posture too much while throwing..... I do recognize you have cervical and well as lumbar implant, but if you can take a position which allows you to brace for minimal movement then.... there you go.

Compazine. Those nasty little suppositories. Yep, they do work wonders. Getting me off the nausea from the withdrawal. Still use them, by the way.

ANY STIM GUY deletes a program without my permission, they had better be beyond my reach! So glad you got back to your regular and right person for restoration of the setting you prefer for sleep.

Take care my friend,
Prayin'
Mark56 PJ