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-   -   My SCS (https://www.neurotalk.org/scs-and-pain-pumps/132372-scs.html)

anon21816 09-13-2010 10:04 AM

Quote:

Originally Posted by pooh_ac (Post 694495)
Well, my doc told me to call my rep, (who since my unit is 4 years old last month) has changed, then they called the "new" rep who is 250 miles from me, she called me Friday late afternoon, told her what I was seeing, She had NO CLUE what the message ment, she called tech support, who told her with the things I was seeing it could be "thousands of different things" That I would have to call patient services, which was of course closed until Monday am, have called and left a message for them to call me. I tried again to charge it while on the phone leaving a message for them and lo and behold, it looks to be charging, however it feels like it is heating up so will charge it as long as I can stand then see what happens, hopefully I will be able to charge enough so I can turn the darn thing on. :eek:
I worked the last 2 days on the floor and cannot take my Lortab when I am working so..........

I do hope that you will get some answers for you SCS how awful.

When you say it gets hot, maybe put something between your skin and the charger, if you can. I have a cover that my 'paddle' sits into before I attach it to the charger belt so that its not directly in touch with my skin.

Take care

Jackie :hug:

Rrae 09-13-2010 05:46 PM

Sitting on the Edge of my SEAT
 
What's the word, Pooh?

I was glad to hear your unit started to charge......at least it still has a 'heartbeat'...... ?.....

:grouphug::grouphug::grouphug:

pooh_ac 09-13-2010 09:53 PM

Quote:

Originally Posted by Rrae (Post 694717)
What's the word, Pooh?

I was glad to hear your unit started to charge......at least it still has a 'heartbeat'...... ?.....

:grouphug::grouphug::grouphug:

Well it took all night and most of today to charge the thing. Patient services was also able to tell me NOTHING:mad:. So I have to drive to Lincoln Friday am to have my SCS, mt charger and remote interagated:cool: plan to wait until am to turn the thing on:thud:

Mark56 09-13-2010 10:22 PM

Aww Pooh!
 
I am so sorry you have to drive to Lincoln to get it diagnosed. Is it far from nowhere to there? Will you be able to make the drive OK? Do you have someone who can go with you?

Praying,
Mark56 PJ :hug:Z

pooh_ac 09-14-2010 07:09 PM

Quote:

Originally Posted by Mark56 (Post 694780)
I am so sorry you have to drive to Lincoln to get it diagnosed. Is it far from nowhere to there? Will you be able to make the drive OK? Do you have someone who can go with you?

Praying,
Mark56 PJ :hug:Z

Lincoln is 200 miles from nowhere, from my front door to my docs office door to be exact:eek:. The clinic called today and told me they (my medtronic rep) was not nor would she work Friday so I would have to come in NEXT Tuesday or Wednesday. Well that hit my Irish/German blood where it starts and I TOLD her that I did not wish to be crabby HOWEVER I am on my 3rd unit, therfore Medtronic has gotten quiet a chunck of change from me and my various insurance companies, also that my friends online, tell me how WONDERFUL thier reps are esp from BOSTON SCIENTIFIC that they contact them, return their calls and in general SUPPORT their patient, none of which I have seen and I WAS NOT HAPPY!. She (my PM docs nurse said she would "relay" the message to my rep. About 20 min later I got a call from my Rep who TOLD me that I would have to be in Lincoln at 8am on Friday IF I wanted them to look at it, I TOLD her that I would have to leave my home at 4am, get up at 3am I and I did not feel that was acceptable. I stated thay I might be willing to be there at 9am but I would have to get myself and my 3 year old neice who is once again living with us up at 4 am. She then decided that if I could get there by 10am they would strive to "find" out just what was wrong with my unit. She also told me the message she got from tech services wished her to run "some diagnostics that I have never done and am not sure I know how to do":eek: and it may take "several hours" to figure out what the problem was if they even can.
I have a feeling that she may find out just how pissy pain tends to make this old bit much:mad:

Rrae 09-15-2010 12:20 AM

Ohhhhhh Lorrrd -
 
Man, Pooh.
This stinks.
This certainly is NOT shedding a very good light on this company! :(
Almost makes me wish I could DO something! I'm only a state a way from you......and my closest Reps are in Wichita......
To be honest, I haven't had enuf tweek sessions to even give a testimony, but we both are dealing with this company and ..... this does not make me happy to see you going thru this!
Like you said! 3 SCS's!! :eek: They should be coming to YOUR doorstep!!!

Do you have a driver?

I'm so sorry Pooh...I really wish I had the words to say here...... :confused:
This is just not acceptable.
I wanna find out WHO the 'Main branch' is - or whatever it takes to get the 'top dogs' to you!

Is your Dr coming thru for you in this stressful interim? Is he getting you some pain relief to buy some time?
The more I think about this, the MORE it peeves me!!! :mad::eek::mad:

You have been ALL OvER the place helping patients, even HOSPICE services!
It's time the tides get turned around here and YOU get the help you need!

This will be very interesting to see how it plays out.
You know, one thing that has saved me from losing it during the most stressful times (and THIS certainly would fall in the category)......Would your Dr maybe give you some sort of anti-anxiety med or something? Just to help you cope thru this?
You need people pulling together on this. God Lord!

Please keep giving details.....
Especially me being a Medronics 'client/patient'.......I feel like we're in this together somehow.
Your situation obviously requires a more skilled Rep - so they should GET the more skilled Rep to you!

Ok, I'll just put this in prayer mode......
We'll talk soon, my friend.
Just please hang in there.
:hug:

Mark56 09-15-2010 12:38 AM

POOH I Feel so angry about this situation
 
ANGER floods my spirit when I see you are having trouble getting the "rep on the stick" for you. Almost wants to make me get admitted to practice in NE!!! This is maddening!!

I hope you are served well on Friday, and that you have a SOMEONE to drive you to your appt given your pain picture. You just should not have to be doing this all by yourself, anyone?

You are in my prayers for sure, Pooh, for sure,
ASAP,
Mark56 PJ :mad:

anon21816 09-15-2010 07:42 AM

Wow
 
Quote:

Originally Posted by pooh_ac (Post 695042)
Lincoln is 200 miles from nowhere, from my front door to my docs office door to be exact:eek:. The clinic called today and told me they (my medtronic rep) was not nor would she work Friday so I would have to come in NEXT Tuesday or Wednesday. Well that hit my Irish/German blood where it starts and I TOLD her that I did not wish to be crabby HOWEVER I am on my 3rd unit, therfore Medtronic has gotten quiet a chunck of change from me and my various insurance companies, also that my friends online, tell me how WONDERFUL thier reps are esp from BOSTON SCIENTIFIC that they contact them, return their calls and in general SUPPORT their patient, none of which I have seen and I WAS NOT HAPPY!. She (my PM docs nurse said she would "relay" the message to my rep. About 20 min later I got a call from my Rep who TOLD me that I would have to be in Lincoln at 8am on Friday IF I wanted them to look at it, I TOLD her that I would have to leave my home at 4am, get up at 3am I and I did not feel that was acceptable. I stated thay I might be willing to be there at 9am but I would have to get myself and my 3 year old neice who is once again living with us up at 4 am. She then decided that if I could get there by 10am they would strive to "find" out just what was wrong with my unit. She also told me the message she got from tech services wished her to run "some diagnostics that I have never done and am not sure I know how to do":eek: and it may take "several hours" to figure out what the problem was if they even can.
I have a feeling that she may find out just how pissy pain tends to make this old bit much:mad:

Isnt it just amazing how these people can treat patients who are so vulnerable after enduring pain for so long. This is NOT what you want to hear. How frustrating for you.
I hope that you will get this sorted asap and that their diagnostic will show them EXACTLY what is wrong with your system and get it back in working order.

Jackie :hug:

tchr012 09-15-2010 01:07 PM

Oh no! That is awful!
 
Quote:

Originally Posted by pooh_ac (Post 695042)
Lincoln is 200 miles from nowhere, from my front door to my docs office door to be exact:eek:. The clinic called today and told me they (my medtronic rep) was not nor would she work Friday so I would have to come in NEXT Tuesday or Wednesday. Well that hit my Irish/German blood where it starts and I TOLD her that I did not wish to be crabby HOWEVER I am on my 3rd unit, therfore Medtronic has gotten quiet a chunck of change from me and my various insurance companies, also that my friends online, tell me how WONDERFUL thier reps are esp from BOSTON SCIENTIFIC that they contact them, return their calls and in general SUPPORT their patient, none of which I have seen and I WAS NOT HAPPY!. She (my PM docs nurse said she would "relay" the message to my rep. About 20 min later I got a call from my Rep who TOLD me that I would have to be in Lincoln at 8am on Friday IF I wanted them to look at it, I TOLD her that I would have to leave my home at 4am, get up at 3am I and I did not feel that was acceptable. I stated thay I might be willing to be there at 9am but I would have to get myself and my 3 year old neice who is once again living with us up at 4 am. She then decided that if I could get there by 10am they would strive to "find" out just what was wrong with my unit. She also told me the message she got from tech services wished her to run "some diagnostics that I have never done and am not sure I know how to do":eek: and it may take "several hours" to figure out what the problem was if they even can.
I have a feeling that she may find out just how pissy pain tends to make this old bit much:mad:

Pooh, I am so so sorry that they are treating you so bad:(! I hate when anyone in charge of healthcare has an attitude like "you are wasting their time":Bang-Head:! I cannot believe you have been through 3 units and are treated like this! I agree with everyone else saying that I wish there was a way to go over their heads about it! I really wish you could get a new and better stim rep entirely! I have seen both good and bad stim reps so I know they are out there and to me everything they are doing to you would qualify you to have a new rep! I wish there was some way I could help you too...but for now I am going to send you lots of :smileypray::smileypray::smileypray:and :hug::hug::hug:! I hope that you can find someone (even if its another doctor) that would be able to help you with your pain during this frustrating time! Thinking of you!!!

hurting 09-15-2010 02:50 PM

SCS problems
 
Pooch_ac

This is a long shot but you should contact a attorney in Lincoln an have him meet you at your appointment to go over how the rep is taken care of you. If you fine the right attorney you should be able to talk to him at no charge to go over what can be done with this company. After all they were paid a fair amount of money as part of there payment the rep fee's are included as service fee's.
It's worth a try and will make the rep very nervous. Even if you have to pay the attorney a small fee for showing up at your appointment it would be worth every penny and make the rep know that you mean business. A good attorney should do it at no charge to see if you have a case against the SCS Co.
I don't know how long you have had this 3rd. one but or how long you have had any of these but they need to step up to the plate and take good care of you. Also what about the Dr. that did the implant they got paid each time you needed this replaced.
Just a thought.


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