SCS & Pain Pumps For spinal cord stimulator (SCS) and pain pump discussions.


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Old 11-04-2010, 04:55 AM #91
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Jackie .. what are you on!? It's next Monday, not tomorrow/today. (Checks calendar .. yup .. Monday .. heheh! My husband and my youngest daughter who will be caring for me in the first week or so are coming in to see the Nurse with me)
. Oooooooooops. Well good luck Monday then am getting all confused in my old age
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Old 11-08-2010, 01:29 PM #92
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Thumbs up

In 48 hours or so, I will be sitting in the surgery center room getting ready to head home. I am so excited that I don't even really have the right words. I am thrilled that time has passed so quickly... and on Friday I changed pain medicines and I have been getting a bit of relief--that sure has made this time a bit easier.

I'm excited, nervous, and a lot of other things. It's finally almost here, though. I am so so so ready for this!

I would appreciate any and all good thoughts and prayers. Thanks, everyone! <3

After surgery, it may be a while before I come on here and update.. it all depends on how I am feeling. The one place that will definitely be updated is my CaringBridge website. If you'd like the link, please let me know and I will send it to you. Even if I am not up for updating, my mom will be updating that for me. So until I am feeling well enough to come back here and update, look there for updates!

<---- Me, excited and ready!

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♥ "Hope is more than a word; it's a state of being. It's a firm belief God will come through. Life brings rain... hope turns every drop into the power to bloom like never before." -Holley Gerth ♥

My name is Sarah and I am 25 years old. I have a lot of chronic health problems. Peripheral neuropathy and POTS (postural orthostatic tachycardia syndrome) keep me bedridden the majority of the time. I also struggle with degenerative disc disease, disc desiccation, spondylolisthesis, arthritis, polycystic ovarian syndrome (PCOS) with insulin resistance, allergies, sound sensitivities, and other health problems.
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Old 11-09-2010, 11:12 AM #93
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I'm thinking of you .. sending those good vibes. (They're my prayers .. they come straight from my heart, so they're the same thing really!)
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Old 11-09-2010, 01:48 PM #94
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Heart Good luck tomorrow!

Sarah, I hope you get a great night's sleep (although I know you are anxious and excited) and get plenty of rest for your big day tomorrow! I hope the surgery goes well and remember each day you will keep feeling a little bit better as you are healing. I am very proud of you and so happy that you are going to get some much needed pain relief! Remember, to take things easy as you recover and if you need me to pass on a message let me know...Sending many happy thoughts and prayers your way! I am so glad we get to be surgery buddies Love you, Tara
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Old 11-13-2010, 05:18 PM #95
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Ugh. What a journey it has been since surgery.

I've been in a LOT of pain. Since oral meds don't help me, I am pretty much just dealing with the pain on my own. I'm taking tylenol #4, but I don't feel ANY relief at all.

My feet are hurting so badly because the SCS hasn't been turned on yet... so that pain is between an 8 and 10 constantly. Then I am having extreme pain from where the bone was removed and where the paddles were inserted. So adding the two pains together is really making this difficult. Nobody has been able to come up with another solution... but this was my biggest fear-to go through with the surgery and have to deal with the pain with no relief. I know it won't last forever, but it is hard.

The one positive is that where the battery was placed, I only have pain if I push on it. I know it was just cutting through skin and not muscle, so that's why... but I am relieved to not have pain there in addition to my feet and back.

I am going to go rest for a bit--it hurts to be on here typing. But I will update more when I am feeling better.

Hope everyone is doing well.
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♥ "Hope is more than a word; it's a state of being. It's a firm belief God will come through. Life brings rain... hope turns every drop into the power to bloom like never before." -Holley Gerth ♥

My name is Sarah and I am 25 years old. I have a lot of chronic health problems. Peripheral neuropathy and POTS (postural orthostatic tachycardia syndrome) keep me bedridden the majority of the time. I also struggle with degenerative disc disease, disc desiccation, spondylolisthesis, arthritis, polycystic ovarian syndrome (PCOS) with insulin resistance, allergies, sound sensitivities, and other health problems.
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Old 11-13-2010, 06:44 PM #96
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Hi smae
been following your thread since i joined this site and praying that you get some relief soon. everything was so great for you during the trial i remember reading about you going shopping and only hoping that i will get that relief when i get the scs trial and implant in december. i hope the pains begin to ease soon and that you can turn on the scs soon for the relief you need
jenna
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Old 11-15-2010, 03:36 PM #97
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Quote:
Originally Posted by smae View Post
Ugh. What a journey it has been since surgery.

I've been in a LOT of pain. Since oral meds don't help me, I am pretty much just dealing with the pain on my own. I'm taking tylenol #4, but I don't feel ANY relief at all.

My feet are hurting so badly because the SCS hasn't been turned on yet... so that pain is between an 8 and 10 constantly. Then I am having extreme pain from where the bone was removed and where the paddles were inserted. So adding the two pains together is really making this difficult. Nobody has been able to come up with another solution... but this was my biggest fear-to go through with the surgery and have to deal with the pain with no relief. I know it won't last forever, but it is hard.

The one positive is that where the battery was placed, I only have pain if I push on it. I know it was just cutting through skin and not muscle, so that's why... but I am relieved to not have pain there in addition to my feet and back.

I am going to go rest for a bit--it hurts to be on here typing. But I will update more when I am feeling better.

Hope everyone is doing well.

Sarah, I am so sorry you are having a rough recovery! I don't understand why you have to wait to have your stim turned on. Every surgery I have had they turn mine on right away and that is why my stim guy is going to be there. I feel very sad that you are hurting so bad and it also makes me start to be a bit nervous for mine that is coming up. I hope that they can do something for you soon! Take care of yourself sending lots of hugs and prayers! Love you, Tara.
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Old 11-25-2010, 12:54 AM #98
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Well, the stimulator was turned on one week ago.

And the staples were taken out on Monday (25 of them).

I am feeling great--as far as pain goes, anyway. I have a host of other medical problems and symptoms that I am struggling with... but the SCS is doing wonders for my pain.

I am in awe of this thing.

I am tapering off of 3 of my medicines and so far it is going well. Pretty soon I will be off all but one of my pain meds! Woohoo!

I am tired so I'm going to leave this message at that, but I am feeling back to normal (after only 2 weeks) and I will be back again soon!
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♥ "Hope is more than a word; it's a state of being. It's a firm belief God will come through. Life brings rain... hope turns every drop into the power to bloom like never before." -Holley Gerth ♥

My name is Sarah and I am 25 years old. I have a lot of chronic health problems. Peripheral neuropathy and POTS (postural orthostatic tachycardia syndrome) keep me bedridden the majority of the time. I also struggle with degenerative disc disease, disc desiccation, spondylolisthesis, arthritis, polycystic ovarian syndrome (PCOS) with insulin resistance, allergies, sound sensitivities, and other health problems.
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Old 12-01-2010, 10:21 PM #99
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Heart Oh Sarah, please forgive me for not being there

When you had your surgery and post surgery, where was I? Down in the valley, the valley so low..... I am so sorry to have been away during your crucial time, and now I am sending up prayers for you dear Sarah that the SCS will truly deliver and your healing will progress and come to the point that you have relief.

Prayerfully,
Mark56
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Old 12-05-2010, 02:00 PM #100
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Quote:
Originally Posted by Mark56 View Post
When you had your surgery and post surgery, where was I? Down in the valley, the valley so low..... I am so sorry to have been away during your crucial time, and now I am sending up prayers for you dear Sarah that the SCS will truly deliver and your healing will progress and come to the point that you have relief.

Prayerfully,
Mark56
Hey, it's okay--I understand. Just glad to see that you are back now. I haven't been on much since surgery. The first two weeks were filled with pain and then I was ecstatic because I was doing SO WELL! Left the house for hours each day... total change from being completely bedridden. But in the last week things have gone downhill and I am really struggling.

I have been avoiding NT because I just don't feel like anyone I have met here can relate to what I am going through right now.

The pain has come back full force and I almost feel like I haven't even had the surgery at all.. and that breaks my heart.

So I've been MIA.

Not sure what the future holds anymore... I was SO hopeful.
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♥ "Hope is more than a word; it's a state of being. It's a firm belief God will come through. Life brings rain... hope turns every drop into the power to bloom like never before." -Holley Gerth ♥

My name is Sarah and I am 25 years old. I have a lot of chronic health problems. Peripheral neuropathy and POTS (postural orthostatic tachycardia syndrome) keep me bedridden the majority of the time. I also struggle with degenerative disc disease, disc desiccation, spondylolisthesis, arthritis, polycystic ovarian syndrome (PCOS) with insulin resistance, allergies, sound sensitivities, and other health problems.
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