[kzlrogue]

I am so HAPPY for you Tara! I just knew that your prayers would be answered!! You keep that positive attitude because nothing can stop you now.....I can FEEL it!! There still will be downs but nothing that you can't handle by picking yourself up....brushing yourself off.....and moving forward to something better.....because you have a WONDERFUL life to live!!!

[tchr012]

Well, I have been out with my husband all day so it was really nice to have a break from school and be out of the house! I got another call from my stim rep and now we know the surgeon who will be doing me surgery! So, I dont have to go to the appointment on Friday, now it is just me waiting for the surgeon's office to call! SO, I am very happy that we are getting further along and I am very thankful for my stim rep! That is the latest update, will let you know when I get more news! Thank you everyone for the support and encouragement! Thank you Rrae for the the beautiful image...I loved it You all are so wonderful and I appreciate it! Well, I had a long day and am hurtin so I am going to head to bed. Take care BIG'sTara

Oh yeah, my stim rep also told me or promised to have me out of pain so that in May I could run the mini...and I said well I just want to be able to graduate and he said he promised and that he would see to it I will WALK across the stage to get my diploma! I was so happy when he said that and truly believe it is going to happen!

[Rrae]

Originally Posted by tchr012

I will WALK across the stage to get my diploma! I was so happy when he said that and truly believe it is going to happen!

I get all goose-bumpy just picturing this in my mind!
It WILL happen TARA!!

I'm SO happy to see this moving right along for you!

[Mark56]

So Cool Tara- A nice day out capped by your stim rep giving such great encouragement!! Now lots of prayers and a surgery date soon, then you can get to the business of recovery and ultimately graduation!!

This will pass, and we will all shout for joy at your graduation! May you walk in that line across the stage to receive your diploma!!

ASAP,
Mark56 PJ

[tchr012]

Well, no news about the surgery yet, but I figure it would take a few days to get back to me? I am going to see my other pain doctor because he increased my neurontin and wanted to check up on me. I have been doing worse painwise and I had to have my husband help me get dressed this morning I am hoping that by talking with the doctor tomorrow I can figure out how this is process is going and also if there was a way to speed it up Also, my surgery situation seems to be complicated again because for some reason they keep saying I have to choose to have my new doctor or the old doctor involved. My whole plan was just for whoever could get me in sooner which at the time seemed to be my old doctor.....so, I hope I made the right decision. I did that also because the new doctor said I would have to have another revision before I would be able to get the paddles and there is no way I am doing that again because to me it just wastes more money and time especially since doing it that way will probably get messed up by me falling again. I will just talk to him tomorrow and get things cleared up and then I might call the surgeon's office too. I am just not sure how this whole process works and since it is complicated I am concerned that I need to stay on top of things in order to get this surgery scheduled and done! I guess I sort of rambled but just had a lot of things on my mind and I am sure you all understand. I will let you know what my doctor says tomorrow. Hope everyone had a great week. Take care Tara


I think I am going to tell him to take me off the neurontin because since he has increased it I feel really weird....I hear static/voices in my head, I feel groggy and tired all the time, I also get really dizzy and I don't think it is helping me with my pain

[Rrae]

I'm going to quit the Neurontin trial I've been on for 6 weeks. I've been hearing others talk about 'Depression Induced Neurontin'and I've had 2 mental 'breakdowns' and it's not doing me one bit of good.
I give up!
So, for me I guess it'll just have to be the Hydrocodone (Lortab) to be my sidekick for the pain the SCS doesn't cover. oh well The bad part about this is - my tolerance to the stuff is high! I take the maximum dose and then 3 hours later I'm getting breakthru pain again!!

It's good that you are keeping good communication going between you and your docs. I have a journal-type thing that I've jotted down notes and concerns throughout my ordeal, because, yes indeed, it IS an ordeal that drags out and twists and turns are happening all the while. It's good that you are being on the ball with this....and I know it does get frustrating....but it is up to US to be on the ball....I've learned not to 'assume' anything when it comes to what gets charted and what doesn't.
Keep your chin up and keep up the good work.
There will certainly be the 'down' days.....but the good ones do eventually roll around.....

But yeah, that Neurontin is for the birds as far as I'm concerned.
God BLess America for those it helps....but to me it's nothing more than a joke.....but I'm not laughing.....
Grrrrrrr!

[tchr012]

Originally Posted by Rrae

I'm going to quit the Neurontin trial I've been on for 6 weeks. I've been hearing others talk about 'Depression Induced Neurontin'and I've had 2 mental 'breakdowns' and it's not doing me one bit of good.
I give up!
So, for me I guess it'll just have to be the Hydrocodone (Lortab) to be my sidekick for the pain the SCS doesn't cover. oh well The bad part about this is - my tolerance to the stuff is high! I take the maximum dose and then 3 hours later I'm getting breakthru pain again!!

It's good that you are keeping good communication going between you and your docs. I have a journal-type thing that I've jotted down notes and concerns throughout my ordeal, because, yes indeed, it IS an ordeal that drags out and twists and turns are happening all the while. It's good that you are being on the ball with this....and I know it does get frustrating....but it is up to US to be on the ball....I've learned not to 'assume' anything when it comes to what gets charted and what doesn't.
Keep your chin up and keep up the good work.
There will certainly be the 'down' days.....but the good ones do eventually roll around.....

But yeah, that Neurontin is for the birds as far as I'm concerned.
God BLess America for those it helps....but to me it's nothing more than a joke.....but I'm not laughing.....
Grrrrrrr!

Thank you so much for sharing your experience with me! I am so sorry it did not work out for you...or I guess me too. I am also glad you brought up the depression because mine has definitely gotten worse to the point of um....suicidal thoughts so I am definitely telling the doctor tomorrow and getting off of this stuff! Thanks for the encouragement too and I am going to keep at it and figure out how far along the process is and how I can speed it up! Take care and good night

[Mark56]

I know Neurontin can work a deal on you. I was on 3000mg daily. Glad it is in my past..... well almost.... I guess I am still withdrawing, you know? Well, that and the morphine. But it will go away.

Now to the both of you, Tara and Rae, gee, I hope and pray that these feelings, all of them are banished from each of you. Goodness knows, you do not need depression issues induced by meds on top of the pain stuff as well!!

Tara- I hope your doc selection is for the best, and understand your hesitation about switching if the new doc was going to require another go at a revision.

Praying all will be well,
Mark56 PJ

[tchr012]

I have an appointment with my neurosurgeon on October 12 to discuss my procedure! I also was able to get enough pain medicine to last me from now until my surgeon's appointment! I am so glad I called though because I would not have even had an appointment with the surgeon's office at all! I am also glad I went to the pain doctor today because he is taking me off the neurontin and finally gave me pain medicine! I am feeling really crappy though because I did not sleep at all last night so I am going to lay down. Have a great weekend! Take care'sTara

[fionab]

Awesome news, Tara, about your new dr. and being able to ditch the old one. Hopefully your pain meds. will help.