SCS & Pain Pumps For spinal cord stimulator (SCS) and pain pump discussions.


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Old 10-12-2010, 02:11 PM #21
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Default My nausea problem

I think I've tracked it back to either having my cervical stimulator up too high or bad posture and having put a strain on my neck muscles. It seems that as I'm healing I'm having to turn the cervical stimulation down during the day....less inflammation? leads scarring in a bit? Probably a bit of both. I guess I'm the odd duck here as I have to turn both my remotes up when I go to bed or I don't get enough pain relief to sleep. I've definitely noticed I'm sleeping better these days and I'm a nicer person to be around
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Old 10-12-2010, 04:20 PM #22
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Fiona Im sure you were/are a nice person with or without the stim

Its interesting what Rae said, via Fiona, in relation to not getting too bogged down on the sensation of the stim etc. I must say at times I dont even notice I have the stim on.....and in that way Ive come to realise that I dont notice the pain either at times. Its only really when I turn it off, when I charge it, or like Rae if its getting on my nerves that I realise, gosh it does help with the burning I have in my leg etc. how odd!!! I just wish I could get it to help me walking. I do walk btw its just I have it so high its impossible to feel comfortable.......but...........I WILL be patient
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Old 10-12-2010, 06:02 PM #23
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I actually like the stimulation feeling in my legs and lower back as I know then that my hip pain is being greatly reduced. If I turn it down to where I don't feel stim. then I really feel it in my hip and legs. Conversely, I have to not feel it in the cervical area or that's when I run into trouble with nausea. Funny how we all need it differently...and a few weeks from now, as our bodies continue to adjust to being bionic butts (haven't heard that phrase in a while, Rae ), we may even do more adjustments. My remotes are becoming like another appendage always with me.
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Old 10-12-2010, 07:02 PM #24
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Shocked Oh DEAR!

Quote:
Originally Posted by fionab View Post
bionic butts (haven't heard that phrase in a while, Rae ), .
YOU ARE RIGHT!!!
We must NOT lose our HUMOR!!!
<<--BIONIC BUTTS FOREVER!!........
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Old 10-13-2010, 01:57 PM #25
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Well this Bionic Butt is buzzing away today. But I must say the area around the battery for some reason feels very tender todayNow havent felt that for a few days. I know Ive upped my activities though So I think I need to 'slow down' ahem But thats easier said than done. Im now almost 10 weeks post surgery. And do feel well in myself. I get the odd twinge from my upper back. Ive also noticed that since I was tweaked that I cant actually turn on one of the new programmes because it seems to affect that upper part of my back. (if I recall Rae said she thought she had some issue with that too).....so Ive decided not to use it again. Nearly knocked me sideways when I turned it on.


TOTALLY OFF TOPIC....but isnt it just fantastic to see all those brave miners being rescued today. It just makes me feel so lucky to be alive. Its so emotional. I hope the remainder will come up safely too.......
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Old 10-17-2010, 07:53 AM #26
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I have now decided to ditch the two new programmes that I was given at my last tweaking session as they dont help me at all, if not make me feel worse. Even though I have a balance button where I can reduce or increase the stimulation and strength its just not working for me the way I want it to. Im getting awful pulses in my stomach and it feels like its attached to something down in my ankle with one pulling against the othersooooo uncomfortable.
So Im sticking to the one programme which 'helps' me the most and will wait to hear when my REP will be over again and hopefully sort this problem out. I was so hopeful this time ...........so will just wait and see
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Old 10-17-2010, 02:45 PM #27
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Default Me too Jackie.....

I'm way overdo for a tweak, but I have been using the only program that seems to work, yet I know there is an improvement to be had!
It's just a matter of me hooking up with the office, which is usually a ZOO, and for one reason or another, I've had to put it off......

Use whatever works for now.....and there IS a better program waiting for you.
You'll land on it. Sometimes we gotta weed thru the 'not-so-good' ones to find out which ones ARE better. I also believe (but not confirmed) that as our scar tissue is forming, it is affecting our coverage.....thus the need for revisions in the program settings.
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Old 10-17-2010, 08:32 PM #28
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Rae: I agree about the scar tissue and it affecting our coverage. I've noticed just in the last day or two that I'm now having to turn down my stimulators to get the desired affect as how I've had it set is now just too high...assuming inflammation is going down and scarring is progressing as planned.
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Old 10-18-2010, 09:21 AM #29
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Quote:
Originally Posted by fionab View Post
Rae: I agree about the scar tissue and it affecting our coverage. I've noticed just in the last day or two that I'm now having to turn down my stimulators to get the desired affect as how I've had it set is now just too high...assuming inflammation is going down and scarring is progressing as planned.
Im hoping it all happens rather sooner than later. I wish it was 'sorted' and I could get on with having it reprogrammed properly and doing the full job its supposed to
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