SCS & Pain Pumps For spinal cord stimulator (SCS) and pain pump discussions.

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Old 10-11-2010, 08:49 AM #1
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Default Good Luck Fiona

Good luck today Fiona with your unplanned tweaking session

Hope you get it sorted out and that the nausea will subside. Ive the opposite to you in regards to sleeping, I have to turn it down somewhat as the pressure on my spine at night sends the stim into overdrive. And then in the morning its back up to full tilt.

We WILL get there eventually
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Old 10-11-2010, 07:36 PM #2
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Default Oh yes yes yes....

Quote:
Originally Posted by jackiekennedy View Post
I have to turn it down somewhat as the pressure on my spine at night sends the stim into overdrive. And then in the morning its back up to full tilt.

We WILL get there eventually
I remember at the time of my surgery I asked if he was going to leave some 'slack' in the leads, so they won't pull too tight on bending and such and he indicated that yes, he accounts for that.
Like you, I turn mine down for sleeping and then during the day, I usually have it set to where I don't even actually feel the stimulation.....but yet it does cover that horrid burning pain....
I recall recently (Fiona I think) saying that her doctor said that we shouldn't concentrate so much on how much stimulation we are feeling....but instead, concentrate on the amount of pain relief we are getting.....
I thought that was brilliant input and even stuffed it in my left pocket so as not to forget....
It's easy to be more consumed and intrigued with the stimulation sensations...but in essence I have found that if I just have the unit on enuf to cover over the pain, alot of the time I don't even realize the stimulation is happening.....
BUT....there are the times when I'm in major FLARE mode , so I crank it up and the intense stim comes as a welcome relief......

Sometimes, the stim gets downright irritating, so I turn it off for awhile.
(that creepy crawly feeling - but I think in my case part of that has to do with the BT meds wearing off and it could be a withdrawal issue)
Nonetheless, for the most part, the unit is becoming 'second nature' to me and I am very appreciative for what it does.

I'm actually farther along than 6 months! I got mine implanted on Feb 24th, so my math was off a bit.

Fiona, I sure hope that your nausea lets up!
You give such good input every time you get tweaked......I absorb it like a sponge......
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Old 10-12-2010, 02:11 PM #3
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Default My nausea problem

I think I've tracked it back to either having my cervical stimulator up too high or bad posture and having put a strain on my neck muscles. It seems that as I'm healing I'm having to turn the cervical stimulation down during the day....less inflammation? leads scarring in a bit? Probably a bit of both. I guess I'm the odd duck here as I have to turn both my remotes up when I go to bed or I don't get enough pain relief to sleep. I've definitely noticed I'm sleeping better these days and I'm a nicer person to be around
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Old 10-12-2010, 04:20 PM #4
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Fiona Im sure you were/are a nice person with or without the stim

Its interesting what Rae said, via Fiona, in relation to not getting too bogged down on the sensation of the stim etc. I must say at times I dont even notice I have the stim on.....and in that way Ive come to realise that I dont notice the pain either at times. Its only really when I turn it off, when I charge it, or like Rae if its getting on my nerves that I realise, gosh it does help with the burning I have in my leg etc. how odd!!! I just wish I could get it to help me walking. I do walk btw its just I have it so high its impossible to feel comfortable.......but...........I WILL be patient
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Old 10-12-2010, 06:02 PM #5
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I actually like the stimulation feeling in my legs and lower back as I know then that my hip pain is being greatly reduced. If I turn it down to where I don't feel stim. then I really feel it in my hip and legs. Conversely, I have to not feel it in the cervical area or that's when I run into trouble with nausea. Funny how we all need it differently...and a few weeks from now, as our bodies continue to adjust to being bionic butts (haven't heard that phrase in a while, Rae ), we may even do more adjustments. My remotes are becoming like another appendage always with me.
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Old 10-12-2010, 07:02 PM #6
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Shocked Oh DEAR!

Quote:
Originally Posted by fionab View Post
bionic butts (haven't heard that phrase in a while, Rae ), .
YOU ARE RIGHT!!!
We must NOT lose our HUMOR!!!
<<--BIONIC BUTTS FOREVER!!........
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Old 10-13-2010, 01:57 PM #7
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Well this Bionic Butt is buzzing away today. But I must say the area around the battery for some reason feels very tender todayNow havent felt that for a few days. I know Ive upped my activities though So I think I need to 'slow down' ahem But thats easier said than done. Im now almost 10 weeks post surgery. And do feel well in myself. I get the odd twinge from my upper back. Ive also noticed that since I was tweaked that I cant actually turn on one of the new programmes because it seems to affect that upper part of my back. (if I recall Rae said she thought she had some issue with that too).....so Ive decided not to use it again. Nearly knocked me sideways when I turned it on.


TOTALLY OFF TOPIC....but isnt it just fantastic to see all those brave miners being rescued today. It just makes me feel so lucky to be alive. Its so emotional. I hope the remainder will come up safely too.......
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