SCS & Pain Pumps For spinal cord stimulator (SCS) and pain pump discussions.

 
 
Thread Tools Display Modes
Prev Previous Post   Next Post Next
Old 10-14-2010, 02:42 PM #3
fionab fionab is offline
Member
 
Join Date: Feb 2010
Posts: 487
15 yr Member
fionab fionab is offline
Member
 
Join Date: Feb 2010
Posts: 487
15 yr Member
Default

I realize it's not related to back/neck pain, but since you asked: The optic neuropathy (in my left eye) was discovered when I was having a lot of sinus infections and was going through pre-surgery testing for the eventual bilaterial frontal sinus obliteration I had Feb. 2009. My sinus problems were what led me to being diagnosed with a rare Primary Immune Deficiency Disease (genetic based) and are something I've been struggling with for years, in addition to my back/neck pain.

Neuropathy can happen in any part of the body (legs, arms etc.) but this optic neuropathy was a result of my serious sinus problems and recurring infections. I do have neuropathy in my legs and arms so if may just be all part of the picture, I'm not sure. But I know the sinus stuff played a big part in bringing it about. Before the sinus obliteration (they only removed the two sinuses in my forehead), I'd had 8 sinus surgeries. This was what made my ENT suspicious about my overall health, was referred to an immunologist, and was diagnosed with this immune deficiency disease.

I have to give myself an infusion, every morning for 3 hours, of other people's antibodies as my body doesn't make certain antibodies (ie, I can't fight off strep, staph, pneumonia). It's actually taken out of blood donations, so when folks give blood it's going to multiple uses. It's a very expensive disease to have...costs my insurance about $6,000 every month and I'll have to give it to myself for the rest of my life as it substitutes for what my body cannot naturally produce. There's a lot of auto-immune stuff that runs in the female side of my family, unfortunately. My mum died last year and my sister preceded her in death by 6 weeks, so as my husband would say I'm not one gene pool you'd want to swim in

At one point they thought the sinus infection was going to make it into my brain so I got the emergency frontal sinus obliteration to make sure that didn't happen. Was a long, horrible surgery and that post-surgery makes this SCS post-surgery seem like a cake walk (won't go into the details as it's pretty gorey how they do the sinus obliteration.)

As a result of all this, I have to periodically see my optha-neurosurgeon to monitor my left eye and when she did her testing yesterday that was when she discovered my right eye is having problems due to this increased spinal fluid pressure.

The only symptom I'm having is having a hard time focusing with my left eye. I didn't know there was anything wrong with my right eye until the tests yesterday. Still waiting to hear from pain mgmt. dr. and am hoping they don't decide to take the SCS's away from me We'll have a big fight over that one!
fionab is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
anon21816 (10-14-2010), Rrae (10-14-2010)
 


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Spinal Fluid Leak gareth847 Spinal Disorders & Back Pain 28 11-16-2012 01:27 AM
Biomarkers from cerebral spinal fluid via spinal taps olsen Parkinson's Disease 0 09-25-2010 08:14 AM
Spinal fluid leak with spinal cord stimulator lynnieg Spinal Disorders & Back Pain 0 12-14-2009 12:53 PM
Spinal Fluid Seepage Terry Joyes Spinal Disorders & Back Pain 1 01-16-2009 12:35 PM
spinal fluid analysis LizaJane Peripheral Neuropathy 5 01-24-2008 10:47 PM


All times are GMT -5. The time now is 12:53 PM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.