SCS & Pain Pumps For spinal cord stimulator (SCS) and pain pump discussions.

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Old 10-18-2010, 03:52 AM #1
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Default Hey There!

SO GLAD to hear from you Wherewolf!

Your ambition amazes me! My eyes almost popped out of my head when I read that you've FALLEN a couple of times!!

There are a couple of SCS'ers here who are going thru some pretty bad times because of falling and it messed their SCS up pretty badly and now they are having to get revisions.
PLEASE consider taking life a bit more slowly for now!! Do you ride on level terrain or do you do trail biking (bumps, curves, slopes) ?

If your SCS is working good for you, you want it to STAY that way!
Once leads get pulled or migrate for whatever reason, there are some hard times ahead, not to mention a few regrets of how good you had it in the beginning. Just caring! I've seen too much I guess.

It breaks my heart that I can't take care of my horses the way they deserve, won't EVEN think about riding......maybe SOMEday......but my complete focus right now is to get as pain-free as possible and not have to take all those meds that messed with my mentality.

Just please be careful

Your testimony is an amazing one! People seeing this can realize the potential they can possibly get with getting an SCS......we want our lives back!! You are living proof that this can happen

Please keep us updated.
Love hearing from you
Rae
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Old 10-18-2010, 07:28 AM #2
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Did you have physical therapy a while after your SCS implant? My pain mgmt. dr. says he has his patients do it, and he ONLY allows them to work with a physical therapist who has been trained on working with patients with SCS units in them.

I'm wondering if one should go that route before venturing onto endeavors that are more physically demanding, not only to rebuild one's body back up but to have a sounding board for what activities one can do, at what time in recovery etc. It's great that you want to get back out there and grab life, but am concerned that you may overdo it and hurt your implant. Just a thought (and concern).
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Old 10-18-2010, 09:16 AM #3
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As far as Im aware I dont think I will be having physio. I have to admire you for trying though. I cant believe you are on a bike and lifting weights I can barely lift myself!! BUt as the others say do take it handy. Some people on here have had terrible trouble with their SCS after falling.
but well done for the effort you are putting in!
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Old 10-19-2010, 02:32 PM #4
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I hope you've had your SCS long enough for scar tissue to form around the leads, or else you might be looking at migration of them ~ and that means more surgery. Please be careful and don't get TOO ambitious. LOL I don't think you want to go back under the knife. LOL But you sure are energetic! I only had my SCS for 6 months - it had to be removed. But that thing wore me out! LOL I think it tired me out as much as the constant pain did.

Anyway, best of luck ~ you're one in a million! God bless. Hugs, Lee
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recovering alcoholic, sober since 7-29-93;severe depression; 2 open spinal surgeries; severe sciatica since 1986; epidurals; trigger points; myelograms; Rhizotomy; Racz procedure; spinal cord stimulator implant (and later removal); morphine pump trial (didn't work);now inoperable; lumpectomy; radiation; breast cancer survivor; heart attack; fibromyalgia; on disability.



Often the test of courage is not to die, but to live..
.................................................. ...............Orestes
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