SCS & Pain Pumps For spinal cord stimulator (SCS) and pain pump discussions.

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Old 11-01-2010, 10:07 AM #1
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Default Have you named your SCS?

I was thinking a while back, when the term Spinal Cord Stimulator was first introduced to me, and someone said .. "Hmm, how would you feel with a foreign object in your body?"

That actually made me stop and think as I actually hadn't considered it .. I just thought of it as a surgical intervention.

I sat a good while pondering this .. worrying that I would have it implanted then think .. "Erkkkk ALIEN .. get it out! Now!" Then I realised that if I was going to go through with this I'd better come to terms with the fact that there's going to be a little friend with me (hopefully) for the rest of my life if it makes my life more bearable than it is.

So .. I have decided to name it. It's definitely going to be a "he" rather than a "she" ... Felix after my first loved rabbit? Or Arthur after my Dad?

OOOh decisions, decisions.

I just wondered if any of you guys have named your little companion?

Saffy xx
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Old 11-01-2010, 01:41 PM #2
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Nope never thought about it-However I did have the bad vibes of having foreign entities in my body. It was the worst part of my decision-Carol
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Old 11-01-2010, 02:50 PM #3
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Well SAffy I know a few have names for their SCS. I havent at the moment but I think maybe I should startdont want to be the odd one out.

Have to say its taking a bit of time getting used to this whole battery under my skin. eeewwwwww. Im just a bit queasy at the mere thought of touching it..........

Im thinking that as its in my butt, thats my left butt maybe I should call it something like 'Butt light rear' what ya think?????

Jackie
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Old 11-01-2010, 10:48 PM #4
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Indeed I have! In fact, I just officially named it today--and I don't have it yet! 9 days and I should, though!

I named it/her Hope! Not only is it my favorite word, but it is what this implant is giving me... hope for a better future... a better life without so much pain... and a chance to one day be up and walking around instead of being bedridden. =)

Have you decided between Felix and Arthur yet?
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♥ "Hope is more than a word; it's a state of being. It's a firm belief God will come through. Life brings rain... hope turns every drop into the power to bloom like never before." -Holley Gerth ♥

My name is Sarah and I am 25 years old. I have a lot of chronic health problems. Peripheral neuropathy and POTS (postural orthostatic tachycardia syndrome) keep me bedridden the majority of the time. I also struggle with degenerative disc disease, disc desiccation, spondylolisthesis, arthritis, polycystic ovarian syndrome (PCOS) with insulin resistance, allergies, sound sensitivities, and other health problems.
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Old 11-02-2010, 12:18 AM #5
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Grin You ROCK Jackie!

Quote:
Originally Posted by jackiekennedy View Post
Well SAffy I know a few have names for their SCS.

Im thinking that as its in my butt, thats my left butt maybe I should call it something like 'Butt light rear' what ya think?????

Jackie
BUTT Light rear!!
That brings back memories of one of my twin sons back when he was about 4 years old (age 15 now)......he just HAD to have a 'Buzz Light Year" for Christmas after the hit movie "Toy Story" had come out.....
I'll never forget the look on his face when he saw his Buzz Lightyear under the tree!

SAFFY! You are SO on the ball!!
YES!! Actually we did a 'chat party' one night up in the chat rooms (top of page) and several had named their Buzzers.....
Mark's is "PJ" (Praise Jesus).....
Others named theirs as well
I 'think' I named mine that night, but I forgot what it was....... .....emmmm...were we partaking in the wine cellar that nite ?
Actually I think I named mine in honor of a horse that Pooh had recently lost, so it was a bittersweet spontaneous thing.....

None the less! We ARE the BIONIC BUTT BUZZERS !
We take pride in our new super powers

Oye Mates! The fun never ends!
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Old 11-02-2010, 05:01 AM #6
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OOh .. will we all have butt batteries? Can you choose which side? I've read of someone who had theirs in their tummy.

Butt Light Rear .. love it !

I'll know when I see it, whether it's a Felix or an Arthur! (chuckle)

Can you feel it/see it? What does your partner think when they touch it? (The battery !!!!!! )
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Old 11-02-2010, 06:05 AM #7
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Default Oh I say !!

Quote:
Originally Posted by Saffy View Post
OOh .. will we all have butt batteries? Can you choose which side? I've read of someone who had theirs in their tummy.

Butt Light Rear .. love it !

I'll know when I see it, whether it's a Felix or an Arthur! (chuckle)

Can you feel it/see it? What does your partner think when they touch it? (The battery !!!!!! )
Im more nervous of him touching it than he is You can see the outline of it yes.! Im still getting used to the idea that its actually in there. Its literally just under the skin yuck!!!!

I know of one person who has the battery in their tummy, she has it for her arms. I think the more common place is in your butt. Dont know if you would get a choice. My pains are more in my left side so hence the battery is positioned in my left butt

Im sure you doctor will be able to tell you. Not long now!!!
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Old 11-27-2011, 08:03 PM #8
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I had my SCS implanted 4 days ago. I have named it 'Buzz' . Lots of pain so far and it needs programmming, shocks me whenever I change position, have decided to wait for programming and just try to recover from the pain of the implant...
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Old 11-27-2011, 10:52 PM #9
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Smile Welcome Beanierose!!

And a hearty welcome to Buzz! For me, I was told to wait two weeks beyond the implant surgery before we could program the permanent implant. Mine is PJ. Once the surgical pain had eased, the reason for waiting a couple of weeks, we got together, the rep, his computer, PJ and me, and we set about to program. I did not experience shocks during the waiting period which preceded programming as the unit was shut down completely until that programming appointment.

Sitting in the appointment, the rep said something like "I know you are somewhat computer savvy. What do you think about driving the computer as you program yourself?" I could think of NO BETTER way to approach this as pain is absolutely subjective to the sufferer. I am absolutely impatient at games of 20 questions, so I took up the rep on the thought. Sat at the computer as he adjusted the connection to my remote which sat in a programming cradle as I recall. Then, I proceeded to WOW myself with this change, that tweak, such a charge up, and a variety of programs. Rep asked what I thought, and I was good to go!! Never have had to have one of those frequently mentioned tweak sessions you read about on these threads.

I use my unit 24/7, charge every 10 days to 2 weeks, and live LIFE. I have been able to secure work, albeit pro bono for now, and I feel re-enlivened! Awakened from a Sleepy Hollow slumber, removed from the prison of my bed where I had lain in pain, and returned to living in joy and celebration of God's miracles.

You can call me grateful while I pray your surgical pain abates so you can reach that moment of programming which will bring relief such as you have probably not known it in years!
Prayin,
Mark56
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Old 11-28-2011, 12:33 AM #10
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Laugh Hello!

Quote:
Originally Posted by beanierose View Post
I had my SCS implanted 4 days ago. I have named it 'Buzz' . Lots of pain so far and it needs programmming, shocks me whenever I change position, have decided to wait for programming and just try to recover from the pain of the implant...
Welcome!
I was hoping you'd find your way over here!
So, "Buzz" it is!

You will probably be sore and tender for several days still. Hopefully 1 or 2 tweek sessions will get your stimulation straightened out.
So, what type of coverage are you needing? Mine is for lower extremeties.
I've had a few bumps along the way, but all in all I'm pretty happy with it.

It's sure great to have you! Stick around and let us know how you are getting along. There's plenty to read here!

Rae
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