Eee I'm fine .. Rob offered an opt out there and then ... but I said, I had the battery inside me, I might aswell give it one more go.

I know that if they can limit the sensation to just the one leg, that I will be far more positive. I told him that it's distracting being in my good leg too, as I feel even more disabled .. he agreed. Plus the buzzing between my legs is not good either and has the tendency to make me incontinent so I don't use the stim now at all, which he fully understands.

I'm still smiling .. x x

It is possible to limit the stim to the one leg, bypassing the trouble between the legs which can be more trouble than worth as you mentioed. No need to take healthy tissue and render it susceptible to those kinds of things. So, keep that smile, it should be susceptible to resolution, either by programme tweak or a revision if that becomes necessary. I know one of my programs works only a single leg, and I set it up that way purposely, and this is while my paddles are also programmed to hit other areas as well. Thus for me it is a selection between programme.

Keep your smile,
Mark56z

No .. he tried every which way, but was unable to get the stimulation out of both legs.

He feels if they put in another lead that I will still end up with the same so they think a paddle will be better for some reason?

You and on target...... I was forgetting, you are leads, and I am paddles. I am able to select between the two in order to limit sensation to one leg or the other or both with the low back or without. Paddles for me, and maybe for you.

z
Mark56

Too hoo, just popping in to say hi. Still waiting on a call as Rob is on holiday till next week.

Am having probe with my battery .. When I bend over it nearly flips over in my stomach and clips mynribs. Does anyone else get this?

Hi Karen,

I've just been reading through some of your posts, hopefully they will sort things out for you sooner rather than later. I sometimes feel like my battery is going to flip over when I move a certain way, it's down too low to clip my ribs but the sensation is very weird. I do sometimes have to move the battery, almost push it a certain way if you know what I mean. I asked the technician the last time I met her if it could flip over and she said that it is almost impossible, she showed me on one she had in her bag where it's stitched into in my abdomen so that gave me some confidence. I think, i think it could happen so I worried about it but the reassurance helped.
Do you have any problems with your waterworks. I notice when I'm in alot of pain that I find it difficult to go even though I feel the need to, does this happen to you?

Chat soon,

Sinéad xxx

OOh Sinead .. thanks for the reply .. that's reassured me !

Re. the waterworks .. I agree totally .. I sit on the loo and have to tell myself why I'm there. Haha. It's almost as if your brain wont connect.

Tired all the time now I'm back on the meds .. and with feeling a bit low. Will get there though. xx

Hi Karen,

i'm not doing so good either, maybe im still recovering from the revision surgery two weeks ago. My back is killing me again, it's like someone is stabbing me at the site of the surgery every time I lift my left leg and try to walk, this means i'm not walking.
Since the surgery my left leg is also kicking up a stink again and not only am i getting the nerve pain there but muscle spasms in my left leg thigh. I still have that ring of pain around my hips.
A pair of a crocs me thinks.

Lets hope the pair of find some relief shortly and the necessary adjustments can be made. I believe your surgeon is now thinking of switching to paddles, I wonder why they can't just use paddles from the first instance instead of messing around, it's alot of messing for the patient and the health service.

Chat soon hun,:group hug:

Sinéad

Oh, hell fire, I'm so sorry you're having problems. We should all get-together really as I've been in bed all day after my back went into a mahoooooosive spasm. Trying to knock myself out with diazepam, tramadol and amatryptilline butmam also suffering hot flushes ... Yup, it's that time of life for me.

He he .. Heres to a better day tomorrow. Xx

Oh Gee whiz..... Golly it sounds awful you have been in these recent predicaments. Yes, there have been incidents of others with battery placemenets which did go awry although they should have fully scarred in. Revision surgery was called for in order to better situate the battery in each case, and I hope and pray that is not required in your situation Saffy!

Pain in the legs sounds awful for you, thus, I pray the pain moderates for you and soon. When this occurs for me, I use my remote to increase the signal so as to overcome what I now know as a pain spike as I no longer use pain management meds.

The waterworks...... well, I have not written of this, but it can be an issue for those of us who have lower body placement for remediation of pain, as the nerve bundles which serve the lower body do include those as well. With you there is an interruption and with others there can be some leaking. I have found that if I adjust the signal before entering the WC so the signal is lower, I have better control, take care of business, and THEN after a good wash of the hands, up the signal once more.

Oh, and you might be interested I made a trip from our home in Colorado via plane yesterday to Wisconsin, where I acquired an Eagle Talon Tsi all wheel drive sports coupe. A used vehicle which needs a little cosmetic care, but that Turbo..... WOW! Additionally, at highway speed, 26 miles per gallon- I don't have time to work the kilometers per liter conversion since I need to get back on the road [about a third of the way back home to Colorado].

I will tell you one thing. It is joyous being able to feel good enough to make such a trip again, as I keep my SCS working right along to manage pain throughout.

May each of you have a blessed rest of the day!
Mark56
P.S. I am glad of the windshield, because with that grin, I would be catching bugs in my teeth. He He!