Sinead ... This can be our thread .. I'll edit the title. X x x xumm .. How do it do that. Can someone think of a

SCS Journeys ........from across the Pond
 

That sounds like a great idea.

It really is so sad to have to go thru so much pain and suffering. Prayers that both of you will soon get some good relief. Too many good times yet to be had.

(Ger):grouphug:

I'll get my daughter to take some pics of my incision sites and the previous infected ones so that people can check whether theirs is ok or not ...

What is freaking me out at the moment is that I can feel the paddle ... Leads aswell ... Do not like.

Saffy
 

Is the doctor aware you are feeling the paddle and leads??? That does not sound too good. Hopefully, he has some answers. Has the infection been completely cleared up?

As always....Prayin,

Ger

I think so. Tried two lots of oral anti biotics and didn't like the side effects. Decided in hospital anyway that if two weeks on iv anti biotics didn't work then it's fate and they should take the lot out.

Not seeing my rep till April 30th so no, no one knows I can feel the paddle and leads, but it's probably because I'm slight with not much padding.

Am really low .. My husband has invited his brother, his wife and a very very energetic five year old son to stay next Saturday. Let me put it this way, even my mum knows to only visit me for half an hour as I tire very quick and don't want to socialize. I am absolutely dreading it and wish there were some way I could get back into hospital lol.

Editing Your Thread Title- CHEMAR
 

Cherri can assist in a well warranted rename of a thread as when my major thread was originally ANS St Judes Mini Rechargeable. If you recall, when I originally began the thread, I thought we were headed into ANS territory, had finished all of the research, prepped the mind, the emotions, the soul for a OK here we go, only to arrive in surgery prep where I met this shining smiling young man hand all extended as though he had brought the prescription for "the cure" announcing he was from Boston Scientific. Duh!

I found myself reeling from the "what about all of my prep" panic and "who is this dude" and "I can physically muster the strength to manhandle you outta my life buddy" boar grizzly bear which comes out of me when in protection mode for self, family, or client [the kind of emotion Cleo has witnessed once to her horror on a roadside as I tore into a highway patrolman for inappropriately stopping her on a foundationless charge]. She bought me a grizzly bear sculpture for my office thereafter.

SO..... long story short, once the poor Boston Sci rep survived my cross examination, I relented, took the stim, and have been thrilled ever since.

The name of the thread being inappropos at that time, I asked Chemar to help change it to more accurately reflect the Boston Scientific mechanics which had found their insipid way into my body. She helped. I smiled. Thereafter the thread took off with Boston Scientific given the credit for my success.

NOW TO SAFFY- glad you are home, and sorry about the pic line port for med administration. I have only known cancer patients as friends who received those for direct stream administration of meds for rapid dispersement of the med to the system. You have been one dearly ill FRIEND! I send squeezes through Sinead since we Skype unawares whether you were in receipt.

All of the meds and the Methadone, I have been prescribed at one time or another..... made me wonder if I would become a Meth head, but then my teeth did not blacken and fall out, and my smile is not toothless, so I reckon I did not sink deeply enough.

So glad infection is under control, and I hope your dread gaping incisions are now tightly shut!! I feared for and stood at your bedside spiritually in prayer, wanting you to pull through. Hoping to pull up alongside you and your Tootle as you speed down the road, I in my Eagle Talon, a fun ride to turbo. Zipping along with the top open to feel the Spring air, and my little car would fit your roads, although the wheel is rather on the wrong side for your land.

Be well, my friend, be well,
Prayin,
Mark56:hug:z:grouphug:

Saffy,
 

Is there some way possible for your husband to let his brother know that you are still having a rough time This may not be a good time for this kind of visit; but as soon as you are up to it, he will let him know. Gosh......for your own health and your husband needs to understand what affects you; affects him as well because of all the additional pain you are already dealing with, you don't need to add anything that might make things worse.

(Ger)

Hi Saffy
 

Hope the infection is gone. If you are feeling the device that much that it is bothering you, don't hesitate to call your doctor. Hopefully this will resolve and you will have the help you need. So sorry you have had to endure such pain. ginnie

Am seeing my rep at the end of the month. When I sleep on the side my lead is, I wake with a dead leg .. Having fallen when trying to get to the loo, much to everyone's amusement .. Will bring this up with her.

First I have to deal with the ultrasound exam and biopsy tomorrow of my womb and the see surgeon for op. am going to tell him to take the whole lot out!!!!

Lol

After that I feel a need to scour this forum a bit more and offer support to people who need it.