SCS & Pain Pumps For spinal cord stimulator (SCS) and pain pump discussions.


advertisement
Reply
 
Thread Tools Display Modes
Old 04-04-2012, 08:02 PM #391
ger715 ger715 is offline
Magnate
 
Join Date: Jul 2011
Location: Illinois
Posts: 2,180
10 yr Member
ger715 ger715 is offline
Magnate
 
Join Date: Jul 2011
Location: Illinois
Posts: 2,180
10 yr Member
Default Saffy

Quote:
Originally Posted by Saffy View Post
Am seeing my rep at the end of the month. When I sleep on the side my lead is, I wake with a dead leg .. Having fallen when trying to get to the loo, much to everyone's amusement .. Will bring this up with her.

First I have to deal with the ultrasound exam and biopsy tomorrow of my womb and the see surgeon for op. am going to tell him to take the whole lot out!!!!

Lol

After that I feel a need to scour this forum a bit more and offer support to people who need it.

That falling does not sound too amusing. Try standing up and staying in that spot for a minute before starting to walk. I have to do that myself or I am unstable if I start walking too soon. Too risky.

Let us know how the ultrasound and biopsy turn out. A while back, it sounded like you might have a bladder prolapse. I had surgery a little over 3 years ago for that (cystocele).

Do you still have the company coming for Easter? I hope the plans have changed and you can enjoy a quiet Easter.

(Ger)
ger715 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Mark56 (04-06-2012), Rrae (04-05-2012)

advertisement
Old 04-05-2012, 03:13 AM #392
Saffy's Avatar
Saffy Saffy is offline
Member
 
Join Date: Oct 2010
Location: Derbyshire, UK.
Posts: 758
10 yr Member
Saffy Saffy is offline
Member
Saffy's Avatar
 
Join Date: Oct 2010
Location: Derbyshire, UK.
Posts: 758
10 yr Member
Default

At the moment no, the company is still coming, but I think they will understand if I say I don't feel like it.

I am totally stressed about today ... I know it's silly, but I would rather have a dozen back operations than this. I've not even had a smear test in over twenty years so this is going to be horrendously humiliating for me. And I know thousands have had them before and son on, but I haven't and I am feeling sick with horror at the thought.

It's the bowel wall pushing through from all that there constipation and latterly from pushing so hard just to pee.

I'm actually going to ask if he can just do a flippin hysterectomy whilst he's at it lol.

I'm getting a biopsy done too as have had some unusual bleeding.

One day I'll be fit and well again.

Still smiling though .. But might be wincing later. I'll be fine without you all there tonight thanks .. Perhaps you can just wait outside. Hahaha x x x
Saffy is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
eva5667faliure (04-05-2012), Mark56 (04-06-2012), Rrae (04-05-2012)
Old 04-05-2012, 03:14 AM #393
Saffy's Avatar
Saffy Saffy is offline
Member
 
Join Date: Oct 2010
Location: Derbyshire, UK.
Posts: 758
10 yr Member
Saffy Saffy is offline
Member
Saffy's Avatar
 
Join Date: Oct 2010
Location: Derbyshire, UK.
Posts: 758
10 yr Member
Default

Rectocele, that's what it is.
Saffy is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
eva5667faliure (04-05-2012), ger715 (04-05-2012), Mark56 (04-06-2012), Rrae (04-05-2012)
Old 04-05-2012, 04:18 AM #394
Saffy's Avatar
Saffy Saffy is offline
Member
 
Join Date: Oct 2010
Location: Derbyshire, UK.
Posts: 758
10 yr Member
Saffy Saffy is offline
Member
Saffy's Avatar
 
Join Date: Oct 2010
Location: Derbyshire, UK.
Posts: 758
10 yr Member
Default

Oh poop! I thought my battery site was a tad tender today ... looks like the infection is returning. Time will I guess .. Not fused. This time if I get an infection I believe it's my body telling me it's not meant to be.
Saffy is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
eva5667faliure (04-05-2012), Mark56 (04-06-2012), Rrae (04-05-2012)
Old 04-05-2012, 07:56 AM #395
ginnie ginnie is offline
Elder
 
Join Date: Aug 2010
Location: Anna Maria Island Florida
Posts: 6,278
10 yr Member
ginnie ginnie is offline
Elder
 
Join Date: Aug 2010
Location: Anna Maria Island Florida
Posts: 6,278
10 yr Member
Default Hi Saffy

I had the same thing as you about ten years ago. The bowel coming down, as well as my bladder. Things just wern't right. I did indeed have the hysterectommy at the same times as , anterior, posterior and birch proceedure. If anthing is discussed involving Mesh, to hold things back up, do some research on that one.
the prolapse is sometimes treated with mesh, and that has failed in some cases. My proceedure was quite extensive, but it was worth all of it to get fixed. I wish you all the best and a perfect outcome! ginnie
ginnie is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
eva5667faliure (04-05-2012), ger715 (04-05-2012), Mark56 (04-06-2012), Rrae (04-05-2012)
Old 04-05-2012, 09:46 AM #396
ger715 ger715 is offline
Magnate
 
Join Date: Jul 2011
Location: Illinois
Posts: 2,180
10 yr Member
ger715 ger715 is offline
Magnate
 
Join Date: Jul 2011
Location: Illinois
Posts: 2,180
10 yr Member
Default Saffy

Quote:
Originally Posted by Saffy View Post
Rectocele, that's what it is.
I first had the cystocele surgery for the bladder, then the small bowel came down and pushed against the wall . Almost two years ago, had the Rectocele surgery. Did have a complete hysterectomy many years ago. Did not prevent these other things from happening.

I do believe, in my case, so much straining because of the narcotic pain meds I take, has lead to the cystocele and rectocele surgeries.

Ginnie is right on about the mesh. The doctor that did my cystocele used mesh. The urogyny that did the Rectocele said the first urologist should not have used mesh. My rectocele was done without the use of mesh and my own body was used to close the surgery. Too many things tied in to problems with the mesh.

Oh, Saffy, just read about the possible return of infection. I hope it is just tender and not another infection. You have been thru so much.


Hope you are able to spend a nice quiet Easter.

(Ger)
ger715 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
eva5667faliure (04-05-2012), ginnie (04-05-2012), Mark56 (04-06-2012), Rrae (04-05-2012)
Old 04-05-2012, 06:56 PM #397
Rrae's Avatar
Rrae Rrae is offline
Grand Magnate
 
Join Date: Nov 2009
Location: i thought it was in my left pocket
Posts: 4,117
10 yr Member
Rrae Rrae is offline
Grand Magnate
Rrae's Avatar
 
Join Date: Nov 2009
Location: i thought it was in my left pocket
Posts: 4,117
10 yr Member
Crazy

NO INFECTION!!!
We will NOT accept this! Infection is not allowed anywhere
NEAR your body!!



Rrae is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
eva5667faliure (04-05-2012), ger715 (04-05-2012), ginnie (04-06-2012), Mark56 (04-06-2012)
Old 04-06-2012, 12:47 AM #398
Mark56's Avatar
Mark56 Mark56 is offline
Grand Magnate
 
Join Date: Mar 2010
Location: Colorado, USA
Posts: 4,706
10 yr Member
Mark56 Mark56 is offline
Grand Magnate
Mark56's Avatar
 
Join Date: Mar 2010
Location: Colorado, USA
Posts: 4,706
10 yr Member
Heart OK

I understand this is very much a womanly discussion and I will barge in anyway..... Saffy, you dear lady, you are wrapped in the arms of this group love and prayers as you approach these matters with trepidation, humiliation, ick, and anything else I could through in this regard. You, my friend, need care, love, hugs, shoulders on which to hang or cry or just receive some knowing strength, and we all have those as original equipment, so I walked by to give you a figurative flower [I had purple pansies in mind, the pansies with that touch of yellow and white, small, yet effective], be not dismayed at the medical stuff, it will go away, and infection, well...... Rae has beaten it out of you, so I reckon I need to step to the kitchen and put together some of Cleo's birthday cookies for you......... got milk?

Love and Prayers,
Mark56
Mark56 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
ger715 (04-06-2012), ginnie (04-06-2012), Rrae (04-06-2012), Saffy (04-06-2012)
Old 04-06-2012, 01:45 AM #399
Saffy's Avatar
Saffy Saffy is offline
Member
 
Join Date: Oct 2010
Location: Derbyshire, UK.
Posts: 758
10 yr Member
Saffy Saffy is offline
Member
Saffy's Avatar
 
Join Date: Oct 2010
Location: Derbyshire, UK.
Posts: 758
10 yr Member
Default

Ha ha .. You lovely lot you. Kiss kiss.... Hug hug ...

Things weren't quite as simple after the ultrasounds.

They found a polyp on my cervix and unfortunately a cyst on my ovary with dark patches that means it is "menacing" ... Hopefully. Or too menacing but they will be doing a biopsy on that.

Once he gets the all clear from my stim surgeon I am having a hysterectomy, and the ovaries takes out by lapascopy and then the TWO prolapses. .. Trust me to not just get the one, sorted. My cervix has prolapsed and indeed the bowel is pushing into the vagina wall.

I did have one laugh yesterday though. The man doing the ultra sound was waiting for a chaperone and I asked ..l won't my husband do? Haha .. So he who is so squeamish had to co,e in with me, whilst I lay there legs akimbo. His face. Haha .. Don't think I've ever seen anyone go as gray as to match his hair.
Saffy is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
ger715 (04-06-2012), Mark56 (04-06-2012), Rrae (04-06-2012)
Old 04-06-2012, 08:50 AM #400
Saffy's Avatar
Saffy Saffy is offline
Member
 
Join Date: Oct 2010
Location: Derbyshire, UK.
Posts: 758
10 yr Member
Saffy Saffy is offline
Member
Saffy's Avatar
 
Join Date: Oct 2010
Location: Derbyshire, UK.
Posts: 758
10 yr Member
Default

Oh my. Because the time has come when my free prescriptions run out, I admit to stockpiling. I have about three hundreds 50ml tramadol caps that are going to be thrown away as they changed my meds. Even if I take them back to the chemist all they do is destroy them, even if theyve not been opened. What a waste.
Saffy is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Mark56 (04-06-2012), Rrae (04-06-2012)
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
My journey to SCS twinmom SCS & Pain Pumps 28 05-14-2011 07:02 PM
Welcome Saffy! Rrae SCS & Pain Pumps 9 11-01-2010 11:45 AM
Hello .. I'm Saffy .. from the UK and very new ! Saffy New Member Introductions 5 10-27-2010 08:54 PM
My journey with RSD Cindioh1 New Member Introductions 4 09-22-2010 12:28 AM
My Journey! ConnieS Myasthenia Gravis 32 07-10-2009 09:47 AM


All times are GMT -5. The time now is 07:27 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.