NeuroTalk Support Groups

NeuroTalk Support Groups (https://www.neurotalk.org/)
-   SCS & Pain Pumps (https://www.neurotalk.org/scs-and-pain-pumps/)
-   -   Saffy: My Journey to SCS (https://www.neurotalk.org/scs-and-pain-pumps/138676-saffy-journey-scs.html)

Saffy 05-09-2012 05:59 AM

Bah! No, I'm not joining the gym as we are in the middle of the month nearly. I am utterly confused taking morphine.

I have a breast screening on 11th .. Then my pre op on the 17th .. I think .. Looks at paper, yes, the 17th. It's my birthday on the 18th and on the 25th I have my hysterectomy .. So no point really wasting money we dont have on the gym.

Up until end of April I was allowed to get ESA which is called Employment Support dunno what the A is for .. Asses probably. Now that has run out we have lost £400 a month in income.

As I said before, am seriously contemplating returning Tootle which as I claim Disability Benefit would give me £208 spare .. That is taken up for the car at the moment. It if I give it up I,will get it in cash.

I LOVE my little Tootle Two but perhaps it's not so good in winter. We will see how we go.

Mark56 05-09-2012 09:45 AM

Saffy
 
May all be well with your outcome; besides, feeling better with medical issues you now experience, other than the nerve pain which brought even us guy folk here in the first place. I know my wife and niece, sisters-in-law, and friends have felt better with the Hysterectomy done and out of the way. Yes, I realize it is quite an invasion and a personal assault, but the person you are is set between your ears, and she is the friend we all cherish.

Tootle, well, were it me, I would also be considering the release of the little car if it would replenish coffers and restore cash to the bank rather than making payments. Cash is King or Queen, however one looks at it [economically speaking].

Prayers for you in all things,
Mark56:hug:z

ger715 05-09-2012 09:47 AM

Mark,
 
Quote:

Originally Posted by Mark56 (Post 877635)
I will not pretend to know or have experience with the finer points of the surgery you discuss; however, I know when my beloved had such surgery I remained with her night and day until she was discharged. Nurses [Please forgive me Pooh] in that particular floor of that particular hospital were useless. Oh, they did the obligatory writing of the name on the board at shift change, but other than checking vitals, I was my wife's nurse. She needed something, I obtained it. She needed help to the restroom, I helped her. Water? I got it. Ice? That as well. So, up close and personal, I remained at my wife's side until I could take her home.

Now as for something I may help with: Gerry, that delightfully beautiful name of a mutual friend can be reproduced by you merely highlighting her name on a post and copying it. Then when you are ready to print the name of our dear friend Sophie, place the cursor wherever you desire and press the right cursor, and paste, then, voila Sinéad appears! Just like that.

We remain here in NC, DIL refuses to take any of the guidance you all have suggested, or that my wife suggests, so, it seems she lays around knowing full well she is not a bed rest patient in order to interpose delay. Fine by me, since Samson's birthday was predicted as May 20. The odd thing is, she has spoken out loud about her hope he does not come on 16 May, the date of the stillbirth last year. Something seems awry with her method and the declaration of Lily's passing. Attention is at issue, methinks. I pray for my wife, our children, and our grandson hoping all remains well through the process. Doc appts for her tomorrow and the next, verifying the status of the baby, who still seems quite healthy.

I return home on Saturday, a blessing in itself, as I have been fairly consigned to the guest room to avoid upsetting the young mama.

Blessings to you dear ones all,
Praying,
Mark56:grouphug:



A couple of things. Number One:
Not sure you saw my post previously sent to you regarding my going into" false" labor (that what it was called back then) three weeks before my baby was due.

Oddly, my baby was due May 20th and on May 20th, she did arrive. When I had gone into early labor (5 min. apart) three weeks earlier, I called the doctor, he told me to stay put because he felt it was "false" labor pains. I'm glad he did that because the pains eventually subsided some; but when May 20th arrived....Did we ever have to get to the hospital quick. I had started preparing dinner and finish; but whoooo.....I knew I better get out quick. Made it to the hospital in time, but My doctor didn't. I don't know who delivered her because my doctor's name was put on the certificate and I was awake the whole time and knew when he came it. It was all over. Mother and baby were fine.

Number Two:
Thank you for trying to help me put the dash in Sinead's name. I really have never pasted and have no idea what pasting is about. So, at this point, Siinead still does not have the dash above her name. I hope she does not mind.

I can understand your daughter-in-law's concern. It sounds like your daughter-in-law is in the hospital all this time.

Praying for healthy, beautiful, happy delivery,

Gerry

Mark56 05-09-2012 10:08 AM

Thank you Gerry
 
I do understand your post regarding the false labor scenario, and despite the doc having said to DIL get to the base hospital on Ft Bragg a week ago Monday, nothing happened. Dilation stopped at 4cm. She was sent home with a tired hubby, and my wife at 2:30 the next morn. She remains at home, with my wife attending doc appts with her. I believe you when false labor is indicated, for that must be exactly what she experienced. She is due 20 May. Not so long from now, true?

Yup, we sit and wait, and I will return home Saturday, as my vacation time is over then.

Now as to Sinéad I tried the ctrl alt e maneuver she proposed, and on my pc based laptop, that did not call up the required e, so just type her name knowing she respects your attempt.

Blessings on all,
Praying,
Mark56:grouphug:

ger715 05-09-2012 10:09 AM

Mark....
Commented to hubby about using the cursor and pasting Sinéad. He was able to show me how it is done. Thanks to both of you....success !!!

I was so very surprised when you mentioned the date...May 20th, and the circumstances being much the same.

Still prayin

Gerry

ger715 05-09-2012 11:12 AM

Sinéad
 
[QUOTE=Sophie_;877676]Hi Gerry,
Thank you for such kind words and I think Karen will be pleased with the sound advice you posted earlier.
I'm to meet a surgeon next week to discuss my options. I have tons of pain at the Sacro iliac joint, lower back into my bum, my hips hurt like hell and my left leg burns and throbs and is numb in places. For a long time they couldn't find what was causing my pain until the last MRI Scan I had which showed at least two disc protrusions and a whole lot of scar tissue pressing on the S1 nerve root and it is this scar tissue that next to get sorted. I'm desperately praying that the surgeon will agree to help me in some way as many have said no. Of course I had to have my SCS removed so I could have MRI and other tests but I imagine my pain Dr will agree to put another in. I still have the battery in from the last one.

How about your status, you've probably posted it already like me but I missed it. I hope your pain is manageable, I'm on so many strong meds and I hate them.

************************************************** *****************************************


Sinéad....I did it...Yea !!!!!

I had spinal fusion, badly crushed nerve, and a laminectomy about 5 1/2 years ago. Still had considerable amount of pain. Eventually went to Pain Specialist. Of course, one of the big side effects is constipation. Didn't realize a woman who had a complete hysterectomy could push bladder out. This required Cystocele Surgery (bladder put in mesh sling) (in 2008 FDA warned doctors not to use mesh in that area for women). Within two weeks after surgery, developed severe swelling, edema of legs, ankles and feet. Take meds daily to control. Also at that time, my ankles, then feet started discoloration and lesions under the skin. Found out that is Statis Dermatatis. Those lesions can become ulcereated. This stops at the knees. So far, i am up to the knees. With all of this, periphereal neuropathy, from the waist to the toes developed. Much pain in the legs, feet and ankles, a lot of burning.

Then to top it off, when the bladder is placed elsewhere, the small bowel comes down causing a Rectocele. Had that surgery done as well. Three urogynocologist said this should not have been necessary. First, my urologist, who did the Cystocele should never have used mesh, then second...the wall should have been reinforced so as to prevent a Rectocele from happening. Rectoceles have a tendency to return. With my using such a high dose of narcotics, it has already started to return.

But getting back to your S1 scar issues. My Pain Specialist did many procedures in day care and the last being a precedure to remove any scar tissue in the S1 area. Unfortunately, this was not the problem for my pain and did nothing in my case. The procedure was next to painless. Just hope this can be of help for you.

Take care and glad we're friends,:hug:
ASAP (Always Say A Prayer) for you,

Gerry

Sophie_ 05-10-2012 05:16 PM

Hi Gerry,

You've certainly been put through the mill with all of your procedures, it has hard to imagine that constipation could cause all of those problems. I'm sorry to hear that some of those problems are recurring. What levels was your fusion? I'd like to avoid that one although it has been discussed on several occasions.

Ill keep in touch when I meet the surgeon and please say a rpayer for me that he will agree to help in someway.

Sinéad :) :hug:

ger715 05-10-2012 11:01 PM

Fusion/laminectomy
 
Quote:

Originally Posted by Sophie_ (Post 878209)
Hi Gerry,

You've certainly been put through the mill with all of your procedures, it has hard to imagine that constipation could cause all of those problems. I'm sorry to hear that some of those problems are recurring. What levels was your fusion? I'd like to avoid that one although it has been discussed on several occasions.

Ill keep in touch when I meet the surgeon and please say a rpayer for me that he will agree to help in someway.

Sinéad :) :hug:


I had fusion/laminectomy surgery about 5 1/2 years ago. It was at the L4-5 level with a badly crushed nerve (surgeon said he had never seen such a red angry nerve like that before) My spinal cord was also in need of some of the covering removed (laminectomy) to allow a little more room. Still areas that are not good; but this being the worst.

The main reason the narcotics causing the constipation and awful straining enabled the bladder to come almost out was because of something I had never known or been told about. When a woman has a complete hysterectomy (I had several years ago) the bladder, with extreme straining was able to to be pushed out enough to be visable. A few other methods were used to try to push the bladder up did not work and the need for the surgery was the only way to keep it in place. The bladder was put in a mesh sling (2008 FDA warned doctors mesh not to be used in this area because of eroding causing almost impossible removal and pain); but my urologist used the mesh in the sling, as well as closing the surgery. (within less than 2 weeks developed swelling of legs, ankles, feet - edema. Taking Lasix daily to keep swelling under control. Also, within two weeks developed Statsis Dermatatis;the discoloration and lesions under skin of ankles, feet and now up to knees .

When the bladder is moved to another position; it leaves space for the small/lower bowel to drop down. Had the urologist reinforced the vaginal wall; this would not have happened. Three urgynocoligst all said this should have been done because if not; the lower bowel will definitely come down. Also, all three said they would have never used mesh. A year after the Cystocele surgery, had to have the Rectocele surgery.

Hope this helps to be a warning to women who, as far as I know, are not even aware the bladder could be forced out like it was when you have undergone a complete hysterectomy.

Between the Fusion/crushed nerve and the Cystocele surgery, developed the PN from the waist to the toes. Not nice. Had a failed trial stimulator done a couple of years ago. My Pain Specialist wanted me to do another; but now that there is a chance for additional Rectocele surgery, is not a good idea because having stim could be a problem should the need for surgery arise.

Well, you sure have opened a lot of doors. As Mark said it well....you had a good idea in starting this thread; sharing info that many of us are in one way or another experiencing.

Gerry

Saffy 05-11-2012 08:17 AM

I really don't think they know half of what they are doing over here in the UK. I feel like a Guinea pig. One thing I am going to do now .. This minute .. Is right the pain clinic and ask Donna my nurse, if there is some form of corrective surgery for that lump.. I'd rather have a ten inch scar than this deformed body, will let you know ...

Mark56 05-11-2012 11:37 AM

A good thing to pursue
 
Disfigurement at the hand of a surgeon is actionable in the US even IF the scarring was produced in the body of the patient, thus surgeons are ever proud when they provide ultimate results with a minimalistic scar, for thus disfigurement is not an end result. Toss the word disfigurement over the net to the performing surgeon and discover whether it engenders any interest. Can't hurt.

Yup,
a simple country comic with naught but a laugh and a smile, but no brain,
I must follow Dorothy to OZ,
Mark56:eek:


All times are GMT -5. The time now is 07:45 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.