Hi Karen,

I'm sorry to hear your Dad in law is so sick, it's a very difficult time for you and your family and it's always very difficult to see your family like that, unfortunately I too have witnessed too much of this horrible disease in my family.

Please God his pain will ease and we are all thinking of you and Mike and pray that you find the stength to help you cope, it must be especially difficult when you're so far and frustrating when you know you have other family that are so close and yet do not visit.

Take care and i'm glad you're girlie problem has finally sorted itself out :)

Sinéad xxxx

Me too!
 

Yup, Sinead said it quite nicely. I also appreciate your deference to me Saffy on that more personal matter, but those things do happen, and I am glad you could sort it out.

I wonder if'n we can ship our little white car over the isles sometime and tour the countryside with friends from your area Saffy, Sinead, Jackiey, Jenna, PatriciaB and more and more [y'all are growing quite the group thereabouts]. Of course, my steering wheel would be on the wrong side, and I would probably frighten Cleo out of her wits attempting to drive on that OTHER side of the road [not to mention myself].

Memories Made
MRidder 20110910

Time seems so long when from young eyes we see
oblivious to life, straining hard to be free
then clocks march right on and those years do pass
and mid all of the stuff of life even blossoms don't last.
Thus we learn to make time for the tender and right
episodes in our life thus to do before night
lest with passage of sun, moon, and stars we forget
meeting up with life's loves fill us full, no regret.
So a pie take to papa, and a grin and a kiss
sharing love every moment knowing one day we'll miss
being able to visit and hold hands with love
as we look upon God who consoles from above.
Some will fail to take in even time for a rose
mere blossom to them, and it's covered in thorns
but we'll know as reflection takes us back to good times
that we made memories last and they're good for all life.

So Karen [seems more fitting to call you by your name right now], you and Mike blessed and felt blessed in return though the travel was long, hard, and with pain. We, too, Cleo and I will travel this next weekend to our parents all three, checking in and as to my Dad, sharing his 80th birthday with him, although with his Alzheimers so advanced, he will scarce remember. But you know what? With the blessing of the computer in my backside, I will be able to lean close to my Dad one more time and whisper into his ear "I love you Dad." THAT is what you and Mike know life is all about. Perhaps others may learn from your lessons...... I can surely hope!

Blessings on you this evening,
Mark56:hug:z

Ill pass thanks :D give me croissants anyday!!!;)


Did you know that black pudding is make from the inners of cows(and God knows what else!) and lots n lots of blood!!!! :D.....couldnt put that in my mouth!!:eek:

I dont really like fry-ups myself as they say 'a moment on the lips a lifetime on the hips :D!!! ;) but I believe great cure for a hangover!!!


Saffy Im very sorry to hear that you father-in-law is fading. How awful for him and for your husband. I will pray for him and for you both also.

Take care

Jackie :hug:

Saffy, I can't do better than anyone else here has, but my mom had multiple myeloma and passed away in July, so it's still very fresh in my memory. My heart goes out to you and Mike and to all of Mike's family (even the ones who aren't acting as we think they should-they may turn out having some deep regrets in their lives).

Please know that you have friends here who will always listen if you need to talk.:hug:

Mark, that was wonderful. xx

Thank you for all your kind wishes.

I am driving myself down to Eastbourne on Thursday as Mike can't get the time off at the moment but I have a feeling inside me that I am needed.

The MacMillan Cancer Nurse said he is indeed in the final stage, but has a good pulse and colour at the moment, but he has been saying he sees his Mum at the bottom of the bed .. and he said last night that he'll be at the end of it this week .. so I have a feeling I am needed to be with Pauline, even if this is not the case.

He agreed previously, if things got bad he would go in the Hospice to die and I don't want Pauline going through this on her own.

Of course if anything goes bad then Mike will drop everything and come down, but at this stage, who knows how long Ray will hang on. I just hope in a way, it's not long .. for him and for Pauline.

Bless them, the dentist has managed to get me in today and I am at the Doctor first thing in the morning, so I may even go straight after that .. I need to get my meds sorted and speak to my Doctor a little.

I know you will all be thinking and praying and I feel so blessed to have your love and caring, even though we have never met.

God bless Karen,

Were all thinking of you, Mike, Ray & Pauline and praying....

You take care too on your long drive

Love

Sinead xxxx

Without a Doubt
 

We are praying as well for the full lot of you. Such a time is hard. I remember sitting with my paternal grandmother when she was seeing family members gone before at the foot of her bed and conversing with them. God grant all of you beloved souls abiding peace, contentment, strength, and shoulders on which to cry. You have met us all in the spirit, and that is where our help will assure you of prayers as you are away.

Hugs a many,
Mark56:grouphug:

You are all so lovely ... I told my Mum In Law today, about the support and care I have been given on this forum .. she was very touched.

:grouphug:

Am going down in the morning and going to stay a little while .. as long as I can .. but we have our daughter going to University a week on Saturday so I need to get back up to help move all her stuff over to her campus.

LOVE TO ALL xxx

Karen:hug:

Take care in your journey to you in-laws. I hope you get plenty of rest when you arrive. Im sure the driving will be tough. I dont know how you do it. I find driving any distance very hard. I certainly wouldnt be taking a journey like you say as I just wouldnt be able to sit that long. I did change my car last year to an automatic and it definitely makes a huge difference, but still wouldnt be able for long journeys..........

I pray for you all and that you Father-in-law is comfortable and he certainly has a lovely family around him

Thinking of you at this sad time

Jackie :hug:

Thanks Jackie. I am planning lots of stops .. trouble is, it's the stops that can be a killer as getting in and out of the car is a bugger. I've got no choice .. my heart tells me I need to go and I've GOT to do it somehow.

Am hoping it will be better than last week where we went down on the Wednesday and came back on the Thursday. I was crippled for two days after and in bed .. and got a good telling off from the Doctor.

She has given me Baclofen instead of Diazepam to help with the spasms - please god I wont get one driving .. lol. Could be dodgy!

Up to the utmost on Tramadol .. in fact I was taking too much 150mg every 4 hours when the max is 100mg every 4 hours .. but this helped me with the journey. Will have to see how I go this morning.

She offered me Zomorph again but I said this made me sleepy which is what I DON'T want .. (though the doctor doesnt know I'm driving or she would not advise it). The Tramadol seems to made me buzz .. lift my spirits somehow, and this helps me cope with the constant pain.

So grateful for Tootle as I can keep wriggling about in the car seat when my back starts locking as I dont have to deal with cluthces and gear sticks.

I think Pauline will have to prise me out of the car at the other end .. though to be honest, I live on adrenaline there ... I'm thankful I'm not dying ... what pain is mine, to that?

I don't know how I do it either Jackie .. I love driving, I think that helps .. I love that I still have my independence. If I was unable to drive it would depress me so much.

I've a nice cozy bed for when I arrive.

Ray is now in his Hospital bed .. put in their main bedroom with their double bed at the side and his commode at the other. We are hoping to get him catherterised today so that he doesnt need to get out of bed as this is causing great agitation and pain.

Please god, he can stay at home now.

Mike has done him a CD (Ray LOVES music) and I am going to play that to him later today and Mike has written down all about the tracks he has on there and why and I will read it out to him even if he is "asleep" ... I believe the last faculty to go before death is hearing.

I feel your love around me like a gentle hug. Thank you everyone.

Hi Karen

Take care hun, I know I couldn't do such a long drive and I love driving too but that was a long time ago!
I'll be thinking of your family through this tough time. It's so tiring and stressful and this doesn't help with pain levels and yet there's nothing you can do.

Lots of love

Sinead xxx

Watching this proud man so utterly diminished by this disease is horrible. So sad.

My thoughts are with you...
 

Hi Karen,

It's so so hard but I bet you're happy to be there and i bet Mike is happy you're there too.

I'm thinking of you... I hope you've recovered from the drive I was going to text you until I saw your message.

Take care

Sinéad

Saffy- So Glad YOU are There
 

Hi Karen- I just write to provide a long distance hug and let you know I am glad you are there at the side of Ray and Pauline, giving of yourself in such a profound way. May God hold all of you in tender embrace at this most difficult of times.

Hugs abounding,
Mark56:grouphug:

Karen
 

Ray died in our arms yesterday morning at 6.45. I told him we were there, that we would look after Pauline and God Bless you Ray.n

So sorry Karen
 

So sorry to hear about Ray, may he rest in peace,

Love to all, and we are all thinking of you and your family through this sad time, if I could be there I would to give you a hug,

Sinead xxx

http://dl3.glitter-graphics.net/pub/...yhjnsdp84j.gif

My deepest condolences, dear Karen.
May God bless you and your family. You've done a wonderful thing by giving of yourself during his last days.

Bless you and be painfree as you honor his life with all of the family and friends who cared so much...

:hug: Rae :hug:

Prayers for you and family Saffy
 

One final breath and peace arrives
the Lord takes home one weary worn
and brings embrace to ones left in this life
comfort comes though loss is borne
the thoughts of memories bring some smiles
as words are shared and photos shown
the record of blessings from this dear life
we move along and bear the grief known
and carry the treasure of the one now gone
deep in our hearts, for he'll always be along.


Karen, may your family live through this time filled with recognition and warmth of the blessing Ray brings even now into your lives.
Many warm hugs,:hug::hug::hug:
Mark56

My condolence Karen
 

My deepest condolences Karen at this very sad time. Ray is now in a much better place and at peace. We will all be thinking about you and praying for you and all you family at this time.

Take care

Jackie :hug:

I'm sorry that I saw this so late, Jackiey. I hope that you and your family are surrounded by love and warmth that heals you and leaves you with your fond memories of Ray.

My deepest condolences,

Joan

Karen, I meant I'm so sorry for your loss. I'm still learning about all of you and get a little mixed up.

Joan .. that's quite allright, I knew what you meant x.

Well the burial is on Thursday so Tootle and I have another journey to make to Eastbourne on Wednesday, then back on Friday. Dreading it. Seriously am .. but what can you do?

Ray is having a lovely burial .. if there is such a thing. A woodland burial .. a tree planted once the grass and wild flowers have established and he will be overlooking a view he loved .. the Jack and Jill windmills near Hastings, Sussex.

I've so much to tell you all ... but need the energy and enthusiasm to sit down and do it.

Take care everyone .. see you all soon xx

Saffy, I hope that it went well. Thanks for understanding my befuzzlement.:o

What!? That's a word!


Isn't it?

Words?
 

Gorguffle sperifta caplardy trifftee
belipta endrangopt wuderly
quendiltry ongwemdo doxlefziy

Omigoodness, I think my fingers got lost on the keyboard!!! Could be a side effect of working..... ya think?
Yo,
Mark56:D:D:D

Everyone knows I'm a sucker for silly words...
 

Apologizing beforehand, just so's everyone knows Joan started this :p
This is Karen's thread we are messing up now!

BOMBILATE! We should change the name of this forum to this word! Look it up, you'll see why!

Not to be confused by Borborygmus,
.... which is what Mark is good at :D

If you're too lazy to look these words up, then you are a genuine Gongoozler! yea, I said it!

Extra credit to anyone who can tell us what Zenzizenzizenzic means!

Har Har Har
 

Rrae, our dear esteemed prestidigitator, how kind of you to remind me of the flatulence..... nay, the very Montezuma'a Revenge I endured when withdrawing from the meds:D:eek:, oh, and the notion that we would only include buzzers and NOT our dear pain pump folk.......:eek::wink:, But those onlookers should be dropped into a math class such as I took in the pre-calculator days to calculate pi to the 8th power using pad an dpencil.......

Wow, do you remember those silly SRA things we did in elementary school? No, wait, I am a bit.....older than most, so, I digress.

Ever your historically flatulent co-hort in humor,
Moi:hug:zzz

Befuzzelment!
 

Befuzzelment! LOL:D I like this new word Rae,

Returning to our Regularly Scheduled Program.....
 

Hello Saffy/Karen..... please forgive us for the hijacking of your thread on your SCS journey. You have been through much, so much, and we pray you and your family are doing well surviving the passing of Ray.

Many many hugs,
Mark56 :grouphug:

In my opunie, it's a sign of usin' yer blimbort, you ol' snerfwazzle, you!

(you're not gonna sue me for slibel for that, you being a barristtourney, are you?)

Methinks Not
 

Humor is paramount in producing one who can place their pain into perspective more healthily, and even if I am the focus of some of that humor so much the better!

: o)
Yup,
a Barribuzzersolicitationist:winky:

Hey, no fair! You're using actual words!

I did actually know what borborygmus meant...I'm not sure if it officially qualifies as onomonopia, but it looks like it should. Is there a classification for words that look like what they are?

Gongoozler...normally I'm of the opinion that there can never be too many words, but I'm having a hard time making a case for this one's reason to exist. Or if we were to allow it to live, it should instead mean a duplicitous vendor of used nautical vessels in Venice.

Zenzizenzizenzic...I just don't know how I feel about that. It sounds kind of spicy and exciting, unlike what it' really all about. Now take zeroth, on the other hand, which leaves you with little (well, zero, actually) inspiration for any flights of fancy. So now that I've compared and contrasted, I'd say that your word is zenzizzlelicous!

But I've bloviated quite enough in Saffy's thread--sorry hon! I don't officialy have a thread of my own, but if you see any that sort of look like mine, you can come in with muddy shoes, spill coffee/wine/chocolate milk eveywhere and drop crumbs on the floor. I might even help you!:D

Joan
 

You really oughta start a thread of your own, that way you'll have a chronicled experience you can look back on!

I used to keep a 'journal' but then i thought, why?
All i have to do is look back thru my posts, and THAT's the journal!

I dare you to start a thread, and name it something extremely
Zigzagilatingly unique!

Heh ... ya cheeky wee devils .. at least you're keeping my thread alive.

Sorry I've not been around .. I've been lurking .. I need to get stuff down on my blog about Ray's last days.

Am still waiting to hear from my Neurosurgeon .. he did say October, so I'm just waiting to hear. I dont want to hassle him, but I'm getting quite tearful and stressed thinking about it and hoping that this will work.

However .. I am still smiling .. especially today when it was windy and cold outside and I could lie on my bed and read my book and not have to go out.

xx

Welcome Home Saffy
 

Yes, we have missed you, and understand full well the whole of the process surrounding Ray's advancement beyond this plane of life. I am sure getting all of those special moments and thoughts entered in your blog is project paramount for now, and from one blogger to another, my friend, may you write just exactly the words you wish to impart as you describe all.

Being a bit cheeky and befuzzled hereabouts we figured would bring a smile or two or three to your lips, and if we succeeded, so much the better, although I readily admit at times it seemed as though something or someone from the fourth dimension had invaded your thread.

You are in my continuing prayers regarding your needs through your neurosurgeon and that through this you may TRULY be helped back into line with the expectations you brought to the process! God bless you in all ways!

CARING LOADS, :grouphug:
Mark56

P.S. Stay warm and comfy with that book!

I'll be back with you all soon .. Let that be a warning. Lol

Wish everyone could be....
 

...like our dear Saffy. A heart of gold you have my dear. :hug:

I'm gonna toot Karen's horn and brag about her :D. I've noticed around the other forums she is finding people inquiring about pain pumps and such and she is pointing them to our little corner. I really wish we'd get more pump
discussions. They seem so few and far between.
She found a few in the Chronic pain forum (I wouldn'ta thought of that)

I enjoy welcoming newbs in the New Member Introductions, and I notice alot of them come here asking about our units. It's amazing how many of us there really are!

Anyway, here's a grouphug :grouphug: to us for being so wonderful and reaching out to help others.

MWAH to the lot of you!