By the way .. can I point you all in the direction of You Tube where this lovely lady has made video blogs of her fusions, her SCS and so on ... very informative .. her name on there is

Life As Alina

You are Blanketed in Prayer
 

From the World over, now that is quite an impressive group of folk praying all will be well. So turn away from the nay sayers and give it a go.
Love showers over you from many continents,
Mark56:grouphug:

Yes Karen!
 

Blanketed in Prayer indeed!
We've got your back! You know it!
Keep moving forward and keep that chin up!
Look UPward and ONward my friend!

We're all so very proud of you!

Rae
:grouphug:

Just to let you know ... I waited at the Hospital 8 hours, only to be told that the surgeon before mine over ran and so there was no time for my op. Cancelled.

No!
 

Oh Karen :( I am so very sad to hear this :(

I can only imagine how down in the dumps you must be feeling right now. I don't even know what to say.
A (((HUG))) is all I can give.

This is just unfair. Unfair....

Rae
:hug:

I am so sorry
 

you are being put through all of this. My thoughts and prayers are with you.

(Ger)

It wouldn't have felt so bad had they said an emergency had come in .. But they have emergency theatres running 48 hours .. It's just the staff who didn't want to work past 6pm.

I am normally a very laid back person Saffy but that kind of cruelty would have set me off. :eek:

Do they have a department of water boarding?

Well .. Rang Michelle, my surgeon's secretary. It's either the 15th or 20th of Feb .. She's got to sort it with him yet. I WILL definitely get it done that day as he's putting me first on the lost. She said, it's no consolation iknow, but he was really peed off that this happened too.

SAFFY how awful :(
 

Saffy Im so sorry to read that your op was cancelled!!!! how bloody awful for you. I would have refused to leave the hospital !:mad:

At least you now have another date, but its awful after building yourself up for the op only to be told SORRY!!!! its really not good enough is it!

How long now are you waiting since you were first told that they would be doing this op? its months isnt it???/


Jackie

That's all the more
 

reason why Saffy needs our prayers for the strength and courage to cope with all this. This is all so stressful for her. God love her. We all are heavy hearted with her; but thankful she will be first on the list.

(Ger)

Saffy!!!
 

PRAYING FOR YOU SAFFY!!!!!
Mark56:hug::grouphug:

Thank you my lovely friends ... I have a new friend .. he's a hand puppet, and he's going to come to the hospital and video everything .. Well, everything he can!

http://www.youtube.com/user/Saffy1999?feature=mhee

So sorry for all the mess you are dealing with. They shouldn't have let you sit there for so long.
Hopefully the time will go by quickly . Sending prayers your way. You've been through so much.
Sandy k

Puppet
 

I should say he has the most delightful voice for a puppet, although the timbre is a bit in the high register! So, if your puppet was running that video, it was an enjoyable look at a fine day on a nice bay!

Mark56:grouphug:

Saffy
 

Hi Karen,
It's true, the crew just didn't want to work past 6pm, and I don't think they care about the persons thats been building themselves up all day, your hungry ****** off, cause your just waiting, and then to be told later on in the month. What's wrong with the next day.

Either way hun I hope all goes well and I'd love a date too for my second SCS. I truly hope you feel better soon and you get a date that doesn't change, I hope they put you on first thing in the morning.

Chat soon

Sinéad xxxxx :):hug:

Hello my lovely friends .. well, here I am again!

Received a phone call yesterday from a colleague of Mr. Yianni's secretary Michelle, as she wanted me to know as soon as possible that another date has been sorted. Michelle had had to go home with this winter vomiting virus that is doing the rounds.

I am booked in on 17th February and have to be at the Hospital for 7am .. as I am first on the list ! I'm not crossing my fingers .. nothing can go wrong this time ... "cough"

I was in such a state when I came home the other week that the Doctor prescribed me Zopiclone to help me sleep. I've been wondering why I've not been able to do anything but sleep all day every day since and decided to look them up on the internet .. Hahah .. I didnt know they were akin to Rohypnol. I wont be taking them quite so regularly now.

Pain wise, at the mo it is draining me. The weather here in the UK is cold .. for us .. and I'm not able to get out and am stuck in the house ... my body siezes into a big spasm with the cold, so I am have been pretty boring and doing .... nothing. I feel I have to apologise to my husband because I feel so useless .. he's cool with it ... but I still feel guilty that I am unable to even walk around the house without feeling as though I am going to conk out with exhaustion.

Anyway .. thought you would like to hear the news ...

Mr. Yianni told me last week that I would have another scar .. bigger than the last .. I said .. DO I CARE? Hahah .. not at all .. and they are going to have to do two incisions in my side to get the two leads into the battery this time instead of one.

Hey Saffy
 

Hi Karen,

Please God nothing will happen with this date and your surgery goes ahead as planned on 17 Feb, it's very close just over a week and something to look foward to, they aren't going to change your date now, not after after the last time.

Please God in a few weeks you'll be on your way to getting better and stronger and you can walk? Do you think they'll send you to a Rehab hospital afterwards?

Stay in touch and I'm extremely happy for you x x x x x


Sinéad x x x x x x :):hug: :hug: :hug:

Hey Saffy n Sophie
 

Well, it is about time, and I truly hope your doc does not have to fly off to another piano concert [Oh, just a slight similarity of names to the pianist]...
anyway Karen, I am with Sinéad on this and I truly pray please God that your date is FIRM, for REAL, and not a PUT OFF......

And oh, by the way, while I am at it, Sinéad, you dear lady, may you soon find out about your Nevro situation!!

Methinks you BOTH could do with pain management Relief!!

Prayin,
Mark56:hug::hug:

I should be in hospital .. Mr. Yianni says up to 10 days, but 7 is the usual, so I will do most of my recuperating there.

The programming re my stim will start from scratch on the Monday following the operation. Yayy. I am determined not to feel a nuisance, and rush things, but to,take my time this time, and ensure they get it as good as they possibly can.

Done Deal!
 

Yep, Karen, it's a DONE deal! This really IS going to happen and I'm so happy for you. You've been thru this before and you know what to expect, so there shouldn't be any anxiety. You'll be the first one for surgery even! Everything is lined up and you will be the priority.

Will be sending many prayers across the sea, dear friend :hug:

Rae
:hug:

Bag is getting packed ... little snacks packed (to keep me going through the NHS Hospital food) ... films downloaded to my I pad ... I pod full of books .. mobile at the ready ... bring on Friday!

God bless and may you have the results you need.

My original foray into SCS research has led me to the world of pain. I had no idea. Being forced to become aware that so many people have life altering pain (like me), maybe I can become a little bit of an advocate for pain management.
I'm also grateful I've found people who actually understand just how much this has hurt me without even asking!

Now if Dr. Smith [just a handle, not a Dr.]
 

Yes Paul, were he here, you would read the famous "oh the Pain, the Pain" which is that charybdis haunting of all of us who have chronic issues. Even if managed as mine well is by the Boston Scientific implant I DROVE through to programming myself with its fantastic success is present, as it is, I am ever aware the pain remains, just managed, for I do fatigue earlier than I did without the pain.

BUT and this is huge, I have returned to my profession with the the clessing of the Boston Scientific SCS. People thought I was promoting a particular brand, but I do not, for my belief is all are probably capable of delivering results such as mine IF THE PATIENT IS ALLOWED TO DRIVE THE PROGRAMMING SESSION as opposed the inane game of 20 questions with a rep at the controls. Funny that, Brent, who lives but an hour from my home is a rep, and I had hoped to do a "meet and greet" with him, however it seems I blew that one by suggesting we have coffee. Oh well......... I am just an ardent champion of LET THE PATIENT DRIVE THE PROGRAMMING SESSION. No mystery there.

Saffy/Karen you sound SO ready, and I pray, I pray, I pray this goes well for you so you may float on clouds of relief and realize your goal. Oh, and just in case you did not catch it.... You are in my prayers, Karen.

Godspeed to a recovery which brings you to the Heaven of relief,
Mark56:grouphug:

Thnk you .. x

Gosh, I am sat here with tears in my eyes. Am starting to get a lot on anxiety/panic feelings which I guess is normal.

Saw my Mum today and she was upset, so that obviously upset me.

Scaredyville now ...

Prayer Chain!
 

Yep, Karen, you know that's one of our strong points here. No lack of prayer warriors, that's for sure!

I'll specifically pray for PEACE to fall upon both you and your mum and that your anxiety level go down to a bare minimum. It's natural to have some anxiety, but please Lord, don't let it get the best of our Karen.

Caring Deeply,
Rae
:Heart:

For Karen and Mum
 

Resolute in the passage to the next phase to manage pain in a better way, guidance in the doctors and assistants who will minister to our beloved Karen, for healing once all is finished, and for restorative awareness that all is better,
Lord hear our prayers,
Mark56:grouphug:

Saffy/Karen
So happy you are ready for your procedure. I pray for comfort and peace in your days ahead. I hope you feel the hugs and love from your internet friends.

Sandy Kay:grouphug:

You are all wonderful ... and I know those in the shadows who aren't feeling too good themselves will be thinking of me too .. that's the thing with this board.

All ready .. enjoying a glass of wine ... err it didn't say anything about NOT drinking alcohol the night before on my letter. *grin* Just got to get all my bits and pieces charged up .. I Pad, I Pod, Phone .. will try and keep in touch.

God Bless you all .. and may you feel my smile, right now.

To let you all know. Am ok. The stim.is covering well but I have to have a brace fitted.for my.drop foot. Am also getting use of a wheelchair which should have been today.but I am very unwell from the op and.anasthetic.

Just.wanted to.pop and say.hi.Xx

Hey Saffy,
Hope you are doing well and are surviving through the NHS food :winky:
Hope it's all gone well and you recover from the post op stuff soon. I had my permanent put in 2 and a half weeks ago. You have been through so much xx
Thinking of you :grouphug:

Glad to hear you're doing well, Saffy! Let's hope you're on a roll!

GoSaffyGoSaffyGoSaffyGoSaffy!

Saffy
 

I so love seeing your report and learning coverage seems good, may all be well.
Prayin,
Mark56:hug:

Got a wheelchair to use today. Gosh it was great.to.be able to go a good.way down the corridor without having to stop through pain. Getting leg brace fitted tomorrow. Got to have another operation on a prolapse due to my having to.push down so much to wee. Never mind.

The stim is covering well but have to admit I still feel the.sciatic pain but its a blessing to have This lovely massage feeling. Love to.all ...

By the way, I felt your prayers. Thank you. Xx

Yes
 

So good, so good, but still praying though!
Yup,
Mark56:hug:

Thanks for update!
 

It's SO good to hear that you are out of bed moving down the halls! :icon_cool:
You've waited soooo long for this....it just HAS to work for you! We'll all keep the faith that a tweak here and there will set you up right.
Meanwhile, just get the rest you need and let the surgical pain ease up. I pray that the scar tissue won't play tricks on your healing and that this goes smoothly.

When will you need to be getting this other surgery?

Caring, and Caring some more,
Rae
:hug::hug::hug:

Hi Rrae, its a prolapse so need to be referred to another department. Luckily our private health care should cover this so I can be seen when I'm ready.

Getting fitted for foot brace today.

Still smiley

HOME. No foot brace as the department forgot about me and it would mean me staying in till Monday .. So instead my GP is going to refer me.

Aching seriously from the journey but so glad to be home. Have so many stories to tell ...

Love LOVE, Karen. X x