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-   -   scs and what to expect (https://www.neurotalk.org/scs-and-pain-pumps/142696-scs-expect.html)

Mark56 03-06-2011 07:06 PM

Interesting point Jackiey
 
I have continued to notice strong variations in signal strength as I move about, maybe it is the paddle method used in my situation. The manifestation is quite pronounced when I lie down after having stood or sat.

Now, Rae, I do believe you have decided to refrain from hay tossing..... well, at least of whole bales..... right?

Patty, all will be well,
Mark56:hug:

Lisa in Ohio 03-12-2011 02:30 AM

Question Again. I seem to be having very positional stimulation. My lead is implanted in my neck and sometimes if my head is in the wrong position I get zapped down into my legs, and boy, I had better be close to a restroom!. Does a paddle lead help with this? What are the benefits of a paddle? I did have better luck charging today, only took about 1.5 hours, but some really odd communication problems with my remote, would a paddle help with that? I really appreciate all the help that I am getting form this group, you are all just great. Thanks, Lisa

Mark56 03-12-2011 02:53 PM

Paddles provide migration security and coverage
 
HOWEVER you will, with paddles, still find the stimulation which will make it imperative that you are near a restroom...... pronto. So, this as an issue no matter the relation you have to your stim, whether paddle or lead. I am glad for my paddle install due to coverage [even my lumbar spine] and the tendency of permanence of install so as to avail of better post surgery movement once scarring has occurred.

:hug:z
Mark56

stressedout 03-29-2011 01:14 PM

I love the scs but have been having pain flares lately and I have to keep turning it up. After the trial I was able to open my hand which cramps closed and I thought that I'd be able to open it again with the perm one but no. I go back to the Dr next wk and hopeing he sends me to pt to get this hand open. I was also told that the scs would block the RSD pain and my hand would go back to looking normal but that hasn't happened. Still swells and turns colors, parts of my arm are hypersensitive. The majority of pain itself is gone and makes it easier to use. Sometimes the burning gets through yet other times (like now) my hand is ice cold.

I guess I thought that the RSD and all it's ugly symptoms would go away.







Quote:

Originally Posted by Mark56 (Post 752453)
HOWEVER you will, with paddles, still find the stimulation which will make it imperative that you are near a restroom...... pronto. So, this as an issue no matter the relation you have to your stim, whether paddle or lead. I am glad for my paddle install due to coverage [even my lumbar spine] and the tendency of permanence of install so as to avail of better post surgery movement once scarring has occurred.

:hug:z
Mark56


Mark56 03-29-2011 01:21 PM

Unfortunately......
 
Quote:

Originally Posted by stressedout (Post 757372)
I love the scs but have been having pain flares lately and I have to keep turning it up. After the trial I was able to open my hand which cramps closed and I thought that I'd be able to open it again with the perm one but no. I go back to the Dr next wk and hopeing he sends me to pt to get this hand open. I was also told that the scs would block the RSD pain and my hand would go back to looking normal but that hasn't happened. Still swells and turns colors, parts of my arm are hypersensitive. The majority of pain itself is gone and makes it easier to use. Sometimes the burning gets through yet other times (like now) my hand is ice cold.

I guess I thought that the RSD and all it's ugly symptoms would go away.

No promises are made regarding the final and true benefit derived from the SCS. For most about 50% pain remediation, for some little, for some more, and a tiny few, quite a bit. I can understand how you would hope that if the SCS is gonna help with the RSD pain what about the other symptoms.... That hard question really has to go before your doc. I don't recall reading other post references to the visible symptoms of RSD and how they are affected, if at all, by SCS.

I hope..... so hope for you that your situation evens out to a point where you can feel at peace with the SCS benefits. Handling the pain is truly a BIG one.
Blessings,
Mark56:hug:Z

Rrae 03-30-2011 09:39 PM

Opening your hand....
 
Hmmmm. How disappointing this is!
For sure I'd bring this up at your next visit......as to why you were able to open your hand during the trial.....but are not able to now?

I SO want this to work for you!

Rae
:hug:


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