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SCS and shocking pains..Anyone else?

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Old 01-13-2011, 01:19 PM #1
Keepinbusy Keepinbusy is offline
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Originally Posted by Rrae View Post
Welcome to the forum!
As seems a unanimous response, CALL. It is in NO way putting a wrench in your Reps lives, this is what they get paid to do.

Nothing to panic about, but it would be very wise to go with your instinct of knowing that something has gone 'amis'. Especially if you have the percutaneous leads and only one month out.....it's very likely your lead migrated when you stooped down. I'm pretty sure this is similar to what happened in my case and the mistake I made was not addressing it sooner.
All they have to do is take a peak either by xray or fluoroscopy to see if one of your leads may have moved or come loose from the anchor(s).

If a simple revision is in order, don't be fearful.....just indicate that you would like more local anesthetic be used this time around . It won't be near as involved as your surgery because he won't have to cut a 'pocket' for your battery. All he'd do is go back in thru your upper incision and pull the lead back up. Hopefully using more sutures to hold it in place.

PLEASE let us know how it goes!
I'm presently waiting for a revision due to one of my leads migrating and it would have been no big deal if I would have caught it early on. Now I'm facing the fear that this lead has had ample time to scar in to the position it has migrated down to.

Caring!
Rae






Rae with that being said are you having to live without the stimulator on at all??? If I shut this thing off my pain seems to be 150 times worse then it was .. Even though I know it's not possible I don't know what I would do if they took this out or made me shut it off .. I live with it on 24/7 just now I have to keep it on really low and stay on my muscle relaxers and pain meds till I see what the heck is going on ... I know Sneezing caused a worse Zing then squatting down did .. Maybe it's normal .. But for the feeling to all change were I feel it is concerning me Bad .. I wish you luck Rae
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Mark56 (01-13-2011), Rrae (01-13-2011)
Old 01-13-2011, 01:43 PM #2
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Mark56 Mark56 is offline
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Heart EAch patient tends to be different
Just as every person has their own identity, these devices do tend to present a slightly different situation to each patient. Just do not let yourself get down because you are taking a while to tweak into the right program setup, AND definitely, you need to have help regarding that SHOCKING occurrence. It will work out once they get you there. I have hope.

Prayin,
Mark56
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anon21816 (01-13-2011), Rrae (01-13-2011)
Old 01-13-2011, 08:00 PM #3
Keepinbusy Keepinbusy is offline
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Well I called one of my Reps, and there going to check it and reprogram me on Tuesdays at the hospital, they just figured with my cold and cough they would try to hold off till it's gone .. So now I just have to keep my stumlator late so it does spasm like it was .. What a mess ... I just pray I don't have to go through any more surgery I know coughing and sneezing hasn't help the pain is terrible ... All Ive done is rest, rest, rest!! I'm just so sick of not being me anymore~ I want this nightmare to go away!!!!!
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Old 01-13-2011, 08:04 PM #4
Keepinbusy Keepinbusy is offline
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Default Set up my appt.
Well I called one of my Reps, and there going to check it and reprogram me on Tuesdays at the hospital, they just figured with my cold and cough they would try to hold off till it's gone .. So now I just have to keep my stumlator late so it does spasm like it was .. What a mess ... I just pray I don't have to go through any more surgery I know coughing and sneezing hasn't help the pain is terrible ... All Ive done is rest, rest, rest!! I'm just so sick of not being me anymore~ I want this nightmare to go away!!!!!
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Old 01-13-2011, 11:06 PM #5
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Quote:
Originally Posted by Keepinbusy View Post
Rae with that being said are you having to live without the stimulator on at all??? .. I wish you luck Rae
Well, thank you
Actually, the other lead that is still where it is supposed to be DOES still work (Thank God).....so it covers the burning leg pain pretty good.....BUT it's a trade off because when I have the SCS on, I get bad muscle spasms in my lower back where the migrated lead is. But, like you, I have meds for that and am just taking one day at a time and have faith that all will be rectified.

Try not to worry yourself too much. I've found that it causes pain spikes when we are under stress. Those reps are trained to troubleshoot, and I'm pretty sure you'll eventually get yours working. Especially if your unit DID work at first. This tells you that it IS capable of doing what it is supposed to do.
I'm wishing you the best and we'll keep each other updated as our 'saga's' unfold.....we can learn alot this way. That's what I love so much about this forum. We tell each other everything and it helps us all to be aware of the possibilities and risks, etc.

Hang in there, it's going to work out
Rae
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