SCS & Pain Pumps For spinal cord stimulator (SCS) and pain pump discussions.


advertisement
Reply
 
Thread Tools Display Modes
Old 01-09-2011, 03:31 PM #1
Keepinbusy Keepinbusy is offline
Junior Member
 
Join Date: Jan 2011
Posts: 11
10 yr Member
Keepinbusy Keepinbusy is offline
Junior Member
 
Join Date: Jan 2011
Posts: 11
10 yr Member
Confused SCS and shocking pains..Anyone else?

I was just looking up answers for why my SCS is acting up it's been a month post op.Came across your forum and thought just maybe someone has experienced something simular and could at least let me know it's okay. Last night I sort of sqatted to get the dogs water bowl, like many times before. And I felt this major sting and then burning. And now today it seems to be doing it frequently .. The pain doesn't last but a second but it's a killer when it happens. So not sure how normal that is .. It honestly feels like my incision in my back is going to pop open and it's totally healed. So not sure if this is anything to worry about and would love some imput. It's not like when you cough or laugh .. Please if anyone has experienced this let me know .. Thanks everyone for your time reading this~
Keepinbusy is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
anon21816 (01-11-2011), Mark56 (01-09-2011), Rrae (01-10-2011)

advertisement
Old 01-09-2011, 05:29 PM #2
Mark56's Avatar
Mark56 Mark56 is offline
Grand Magnate
 
Join Date: Mar 2010
Location: Colorado, USA
Posts: 4,706
10 yr Member
Mark56 Mark56 is offline
Grand Magnate
Mark56's Avatar
 
Join Date: Mar 2010
Location: Colorado, USA
Posts: 4,706
10 yr Member
Heart Not I said Mark56

But RRae, Tchr012, or PoohAC might have thoughts about it, frankly, I wonder whether your squat may have somehow loosened a lead and that is what is producing the shocking [kind of like I would get pre SCS when I used Tens and a lead would come out of one of the adhesive pads and shock the dickens out of me].

Hope you get in touch with your rep soon because this kind of phenomenon just has to be irregular.

Caring,
Mark56
Mark56 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
anon21816 (01-11-2011), Rrae (01-10-2011)
Old 01-10-2011, 04:13 PM #3
edever34 edever34 is offline
Member
 
Join Date: Mar 2009
Location: Louisville,Ky
Posts: 227
15 yr Member
edever34 edever34 is offline
Member
 
Join Date: Mar 2009
Location: Louisville,Ky
Posts: 227
15 yr Member
Default

I would highly suggest that you see your Dr. ASAP. I have had my lamanectomy SCS for over 2 yrs and sounds like you may have caused something to be out of place. Please let me know that you will do this. I think the others will agree. Fondly-Carol
edever34 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
anon21816 (01-11-2011), Mark56 (01-10-2011), Rrae (01-10-2011)
Old 01-10-2011, 05:20 PM #4
Keepinbusy Keepinbusy is offline
Junior Member
 
Join Date: Jan 2011
Posts: 11
10 yr Member
Keepinbusy Keepinbusy is offline
Junior Member
 
Join Date: Jan 2011
Posts: 11
10 yr Member
Default Thanks for the help

I will call my rep tomorrow I have just done alot of relaxing today, due to the weather still causes me havoc and now they have added more flexaril to my list of meds so it's so hard to even focus. But I do know that whatever program I turn my remote on to it's seems to have a different feel .. and it kinda shocks as I turn the stimulation up. I just feel so bad for me rep just last week I called them crying say that all my feeling was in my gut area and I could hardly stand it .. They did say at that time to take it easy that one of the leads had move some .. So knowing me it's probably trouble, and not sure if you all had to stay awake for the first two hours of the surgery but it was the most horrific pain I have had to suffer beside the accident itself and that darm discogram .. I'm just not ready to hear they have moved again, and since the feeling is more into my gut again I'm sure I've done something .. I will keep you all posted .. Thanks for your input, I just don't want to drive my rep crazy! Thanks all
Keepinbusy is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
anon21816 (01-11-2011), Mark56 (01-10-2011), Rrae (01-10-2011)
Old 01-10-2011, 05:45 PM #5
Mark56's Avatar
Mark56 Mark56 is offline
Grand Magnate
 
Join Date: Mar 2010
Location: Colorado, USA
Posts: 4,706
10 yr Member
Mark56 Mark56 is offline
Grand Magnate
Mark56's Avatar
 
Join Date: Mar 2010
Location: Colorado, USA
Posts: 4,706
10 yr Member
Exclamation Dear Keepin

A call on this issue is not "driving your rep crazy," and is a big reason why they provide you their contact data. They expect to hear from you when this kind of issue crops up, so as Carol suggests, calling right away would be a good thing!

Yep,
Mark56
Mark56 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
anon21816 (01-11-2011), Rrae (01-10-2011)
Old 01-10-2011, 08:28 PM #6
Rrae's Avatar
Rrae Rrae is offline
Grand Magnate
 
Join Date: Nov 2009
Location: i thought it was in my left pocket
Posts: 4,117
10 yr Member
Rrae Rrae is offline
Grand Magnate
Rrae's Avatar
 
Join Date: Nov 2009
Location: i thought it was in my left pocket
Posts: 4,117
10 yr Member
Thumbs up Yes, please call

Welcome to the forum!
As seems a unanimous response, CALL. It is in NO way putting a wrench in your Reps lives, this is what they get paid to do.

Nothing to panic about, but it would be very wise to go with your instinct of knowing that something has gone 'amis'. Especially if you have the percutaneous leads and only one month out.....it's very likely your lead migrated when you stooped down. I'm pretty sure this is similar to what happened in my case and the mistake I made was not addressing it sooner.
All they have to do is take a peak either by xray or fluoroscopy to see if one of your leads may have moved or come loose from the anchor(s).

If a simple revision is in order, don't be fearful.....just indicate that you would like more local anesthetic be used this time around . It won't be near as involved as your surgery because he won't have to cut a 'pocket' for your battery. All he'd do is go back in thru your upper incision and pull the lead back up. Hopefully using more sutures to hold it in place.

PLEASE let us know how it goes!
I'm presently waiting for a revision due to one of my leads migrating and it would have been no big deal if I would have caught it early on. Now I'm facing the fear that this lead has had ample time to scar in to the position it has migrated down to.

Caring!
Rae
Rrae is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
anon21816 (01-11-2011), edever34 (01-11-2011), Mark56 (01-11-2011)
Old 01-11-2011, 05:57 PM #7
edever34 edever34 is offline
Member
 
Join Date: Mar 2009
Location: Louisville,Ky
Posts: 227
15 yr Member
edever34 edever34 is offline
Member
 
Join Date: Mar 2009
Location: Louisville,Ky
Posts: 227
15 yr Member
Default

Please keep us posted and I hope you have called your Dr. too. You were only 1 month out of surgery. PLEASE do not BEND LIFT or TWIST anymore. I feel pretty confident that is what pulled something loose. LET US KNOW!. Fondly-Carol
edever34 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Mark56 (01-12-2011), Rrae (01-13-2011)
Old 01-13-2011, 01:14 PM #8
Keepinbusy Keepinbusy is offline
Junior Member
 
Join Date: Jan 2011
Posts: 11
10 yr Member
Keepinbusy Keepinbusy is offline
Junior Member
 
Join Date: Jan 2011
Posts: 11
10 yr Member
Default Left message for reps

Sorry for slow return .. I have gotten a bad cold, so coughing and sneezing is absolutely killing me with the shocking on top of this thing not working right .. IT's barely hitting anywhere it's suppose to now .. So now I'm concerned .. Before I just changed which program I was on and it seemed to be alright for a bit.. But now jolting with this cold it has all my programs off .. What a mess, I will keep you all most... Thanks again for all the warm welcomes .. Off to bed till the rep calls ... Does any of you have Boston Scientific as your implant??? Just wondering if all this programming they are having to do it normal... this will be my fourth time a little over a month .. I just want this to work!!!!!!
Keepinbusy is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Mark56 (01-13-2011), Rrae (01-13-2011)
Old 01-13-2011, 01:19 PM #9
Keepinbusy Keepinbusy is offline
Junior Member
 
Join Date: Jan 2011
Posts: 11
10 yr Member
Keepinbusy Keepinbusy is offline
Junior Member
 
Join Date: Jan 2011
Posts: 11
10 yr Member
Default

Quote:
Originally Posted by Rrae View Post
Welcome to the forum!
As seems a unanimous response, CALL. It is in NO way putting a wrench in your Reps lives, this is what they get paid to do.

Nothing to panic about, but it would be very wise to go with your instinct of knowing that something has gone 'amis'. Especially if you have the percutaneous leads and only one month out.....it's very likely your lead migrated when you stooped down. I'm pretty sure this is similar to what happened in my case and the mistake I made was not addressing it sooner.
All they have to do is take a peak either by xray or fluoroscopy to see if one of your leads may have moved or come loose from the anchor(s).

If a simple revision is in order, don't be fearful.....just indicate that you would like more local anesthetic be used this time around . It won't be near as involved as your surgery because he won't have to cut a 'pocket' for your battery. All he'd do is go back in thru your upper incision and pull the lead back up. Hopefully using more sutures to hold it in place.

PLEASE let us know how it goes!
I'm presently waiting for a revision due to one of my leads migrating and it would have been no big deal if I would have caught it early on. Now I'm facing the fear that this lead has had ample time to scar in to the position it has migrated down to.

Caring!
Rae






Rae with that being said are you having to live without the stimulator on at all??? If I shut this thing off my pain seems to be 150 times worse then it was .. Even though I know it's not possible I don't know what I would do if they took this out or made me shut it off .. I live with it on 24/7 just now I have to keep it on really low and stay on my muscle relaxers and pain meds till I see what the heck is going on ... I know Sneezing caused a worse Zing then squatting down did .. Maybe it's normal .. But for the feeling to all change were I feel it is concerning me Bad .. I wish you luck Rae
Keepinbusy is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Mark56 (01-13-2011), Rrae (01-13-2011)
Old 01-13-2011, 01:43 PM #10
Mark56's Avatar
Mark56 Mark56 is offline
Grand Magnate
 
Join Date: Mar 2010
Location: Colorado, USA
Posts: 4,706
10 yr Member
Mark56 Mark56 is offline
Grand Magnate
Mark56's Avatar
 
Join Date: Mar 2010
Location: Colorado, USA
Posts: 4,706
10 yr Member
Heart EAch patient tends to be different

Just as every person has their own identity, these devices do tend to present a slightly different situation to each patient. Just do not let yourself get down because you are taking a while to tweak into the right program setup, AND definitely, you need to have help regarding that SHOCKING occurrence. It will work out once they get you there. I have hope.

Prayin,
Mark56
Mark56 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
anon21816 (01-13-2011), Rrae (01-13-2011)
Reply

Tags
fbss, scs


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
A question on SCS, shocking pains Keepinbusy New Member Introductions 2 01-09-2011 04:31 PM
Shocking House MD Episode: Suicide. Nik-key Survivors of Suicide 53 05-11-2009 03:48 AM
You ever watch my shocking story on dicovery? legzzalot The Stumble Inn 0 11-16-2008 01:35 PM
Shocking Discovery Diamond Lil Reflex Sympathetic Dystrophy (RSD and CRPS) 6 03-28-2007 02:06 AM
W/C Shocking news Rachael Thoracic Outlet Syndrome 11 12-26-2006 09:34 PM


All times are GMT -5. The time now is 05:53 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.