I thought I'd do a follow up for anyone that read my earlier input and my problems with trying to get relief for pain in my feet with the SCS.
After my first failure of the Dr. not being able to get stimulation in my feet after putting in the trial we decided to try it again by going down in the lumbar area. Well we did that and once again we could not get the tingling in the foot area without turning it way up. Of course, when turning it up that high it also stimulated my legs and rear end to an unacceptable degree. The doctor was/is at a loss as to why because I know for a fact that he has done many, many of these without this kind of result although he typically doesn't use this for neuropathy pain. I am in no way advocating that the SCS system is not worth doing. Certainly not because of my situation. I guess if the pain is strickly in your feet though it might be good idea to do quite a bit of home work before proceeding. If I ever do try this again I will probably go to, maybe the Cleveland Clinic or Mayo. Just wanted to pass this along with thanks to those of you were of such a big help. - Lonnie

Lonnie-

I know this has to be horrifically disappointing to have had such a go at it only to experience failure. It is true that not every therapy will be successful for every patient. We all know this to be true. I do not understand why you do not experience the tingling sensation in the feet, because although I am numb below the knees, inexplicably the tingling/chilling sensation of the nerve therapy goes all of the way down my legs to my feet. So, I am both numb and experiencing the stim. Go figure.

It would have just been so much the better had you experienced benefit and I give you my most sincere regrets that it did not go the same for you as it has for me.

Prayin for you, man,
Mark56

Lonnie,

I am finding the same thing. When I went off of the pain meds I was on, I found out that I was getting no relief in my feet. I am trying to get an x-ray scheduled to see if the SCS is in place or not. One of my doctors thinks that it may have moved and that's why I'm not getting relief. Another thinks I need to be reprogrammed. I don't know what -I- think.. but I have 8 appointments and 1 surgery coming up in the next month and I sure wish I was getting the relief I expected to get.

Sending lots of your way.

Sarah

I am so sorry to know you have not received the hoped for relief from your implant. Are the appointments and surgery relevant to efforts to correct the issue or regarding something else?

Concerned,
Mark56

Some of the appointments are for that, yes. Not all--I have appointments for other things going on and am having my gallbladder removed. Three of my upcoming appointments are in relation to the SCS/pain that isn't at all under control.

Guess time will tell, but it just doesn't seem to be doing the trick. That makes me really really sad... and frustrated.