Oh MY!!
I was sure hoping you'd join in on this thread!
That link you provided is really SOMETHING! A REAL EYE OPENER!!!
It spells it out so plain and clear! Yes, it is scary ...... and I have fears that I am dealing with spreading issues....and when I read thru that webpage, my jaw was agape and my eyes popping out!!
I fall in to many of the categories and symptoms it describes...!

There is NO ONE around my area who could have explained RSD and the stages the way that did.

Again, thank you Patti!

Rae

No problem Rae . I made my poor husband read it as well. I skimmed it because I didn't want to "be the one that pointed out that I had that symptom" because sometimes it can go to your "mind". Besides, he needs to help advocate for me.

I am so glad once again to have found this forum. Reading what has happened to others, the good and the bad, has been helpful and served as a motivator to me to ask questions and really look and think of things.

Another doctor's appointment is scheduled for me today, I did let them know that the stim still isn't quite right. I guess I find out what happens now and the next plan of action when I get there.

In talking with my Medtronic Rep on Wednesday, I did ask him if he has ever seen or heard of anyone that has treated with Ketamine. He did say that the dangers of this would definitely not be worth a try with me, especially given the fact that every plan of action has gone wrong. He did mention something about a snail toxin (can't remember the name), but I'll be talking with my doctor about it today.

Take care everyone, and remember - it's your body and no matter how crazy the doctors look at you when you are describing your pain/symptoms, that it's their job to either fix you or refer you to someone who might be able to!

Hi Patti

I was treated with Ketamine before I had the SCS implanted. I had it infused together with lignucaine...which I had done every two/four weeks. Have to say it wasnt a success for me at all. I had it through an IV and I had terrible hallucinations with it, so in the end I say no more as it wasnt helping at all with my pain....

I do hope that you get some answers today

Jackie

Well, hubby and I decided that since the roads are nothing but ice and two parts of two highways are closed near us, we aren't going in today. I called and re-scheduled for the soonest day Dr Gupta will be there. Apparently, he first "next" appointment is for the 14th of March!! I guess I should have just kept my appointment for today, but I hate going out in crappy weather. Since the car accident, I am a total freak in the vehicle. My blood pressure would have been through the roof!

I guess I just grit my teeth for the next 10 days unless they have a cancelation or can get me in sooner. I prefer having just the "one" doctor, but this makes it hard to receive prompt treatment.