I talked with my doctor today. He said that the doctor I saw monday supposedly is not all that experienced. Anywho, he said we will figure things out, also said the leads did not move, good news there! But said he can move the battery to better location.
The rep was there too and he did re program the stimulator, hope it helps.
Happy Easter everyone

Hi Tinkster,

I'm new to these boards and i'm so happy to have finally found a site where there are so many like minded people that all more or less have been through the horrors of chronic disabilitating pain.
I've just been reading your post and i'm wondering how things are for you now, did your Dr find a solution to your problem? God love you, you've been through a horrible time. I had my SCS implanted last Dec and I'm doing very well although things still haven't settled down and I probably will need another implant. I've always found the site in my abdomen a little bit annoying if I bend and I have to shift it do a different spot but thankfully no real pain there. My heart goes out to you, why would your Dr put in a replacement that basically had no experience and no business speaking to you about something he was clueless about, it certainly sounded that way.
Anyhow, i'd love to know how things are for you now.

Thinking of you...
Sophie

Well, I had the revision done, that is they moved the battery from one site to another. Its in my stomach now and my back already feels better, even though the incision is a bit sore it still feels so much better. The surgery took a little over two hours. I am just glad its done!
I hope I can gain some quality pain relief from the SCS now. My stomach is sore but I expected it to be post op.
Thanks for all the replies and kind words, they were really appreciated.

That's great news tinkster about your revision, hopefully it will continue to improve for you,

With every best wish,
Sinead

AND my curent PM Dr. has turned cold because my tummy cant handle big pain meds.....he is asking me to have the pain pump put in and remove my SCS...I like many, cant stand the vibration with my pain..so 3 surguries later..new set of PM Dr. insisting to replace my SCS..which Dr.S said NO..dont do it...Iam in a pickle...and recently and more importantly...I know have internal, chestwall and Tummy RSD issues..most recent set back has my attention... not my PM's cold shoulder and hopelessness... Just rememeber..we say when the fight ends and how high...NOT these mony grabbing Dr.s.....

Hugz to all...

Kathy