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SCS & Pain Pumps For spinal cord stimulator (SCS) and pain pump discussions. |
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#11 | ||
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Junior Member
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Thanks very much for the reply, that's really useful. I have been away from my computer for a couple of days hence the late reply. I am going to continue reading through the post you directed me to, it is really useful and great to know how the whole process went. I keep checking the post every day hoping to get my appointment through for the trial operation but no news yet. I am having it done on the NHS so may take a bit longer. Will keep you posted. Thanks again and great to make contact with you Best wishes Rachel ![]() |
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#12 | |||
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Member
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Welcome to our friendly forum, were a good bunch and we like to offer support and a helping guiding hand when we can.
I got my SCS last December and the trial a few weeks before that, my trial didn't go as planned but my Dr decided to go ahead with the implant anyway and boy what a difference it made to my life, I was like a new person, gone was the pale face that was always in pain and in it's place was the old me. I had the implant for left back and leg pain. I have gotten alot more relief from my leg than my back. Within a few weeks I was back walking a fair bit and feeling more comfortable in myself. My Dr is considering adding another stim for my right side with greater emphasis on my back pain. At the moment my baca isnt good and im in alot of pain with it but ill get there, Best of luck with everything and take it easy after the surgeries, You know where we are if you've any other questions or queries Lots of hugs Sinead xxx |
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#13 | ||
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Junior Member
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Hi Mark,
Hope you are keeping well? How are you? I have got my date for my trial SCS operation. I'm having it done on the 16th Aug, bit nervous nut excited about the chance that it may work! Rachel x |
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#14 | |||
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Grand Magnate
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Howdy Rachel! It is good to know you have a date on 16 August! I hope and pray you receive a full week of Trial use to determine the full effectiveness of the device. While I had it, I wandered through all four programs they placed in the unit, trying different intensities of signal strength, judging how it was helpful.... or not. A couple of the Trial programs were not the best, but they were outshone by tthe othere programs.
Since the Trial was performed with me awake to provide immediate feedback, it was a bit unnerving, AND VERY POSITIVE, as I knew from that moment THIS WAS GOING TO WORK. May you be so fortunate as to feel the blessed peace of that first buzz of the signal to know it interrupts the pain. Now, as to how I am doing over a year out from my permanent implant..... I drove our motorcoach from the Denver area over three mountain passes to reach the tiny community in which my mother-in-law lives and yesterday the whole of Mom's seven gathered children honored her in style unknown to this community with the "Birthday Party of the Century" the town now calls it. My little family and I provided music and Mom danced with her four sons as I sang Sixteen Candles. She was THRILLED beyond measure and the look on her face.... priceless. I sang O Sole Mio in the Italian, and our daughter Em played a Beethoven sonata all to moist eyes and rousing cheers and applause. This was ALL worth it! Every bit!! This whole birthday endeavor I could not have done before achieving the permanent implant. I feel blessed... indeed blessed and praise God for inspiring inventors to bring this technology to us so we might each have opportunity to live more fulll lives. I'll be praying for your Trial and your approach to it for peace, assurance, questions answered, AND that it works for you as it has me, Fondly, Mark56 ![]() ![]() ![]() ![]() |
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#15 | ||
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Junior Member
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Really pleased it is going well for you and it's great the birthday event went so well, sounded like great fun!
I am going in tomorrow so fingers crossed it will work, will let you know when I get home at the weekend. Thanks so much for your support! ![]() Rachel xx |
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#16 | ||
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Hi Rachel4444
![]() The very best of luck tomorrow with you SCD trial. I hope you get the relief you so need from it......we will all be thinking of you.. Take care Jackie ![]() |
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"Thanks for this!" says: |
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#17 | |||
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Grand Magnate
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SO happy you are keeping your thread alive, Rachel!
We're anxiously awaiting an update. Try not to become overwhelmed with everything. I recall getting very stressed, when it really wasn't necessary and I put myself thru alot of anxiety. One thing I wish the personnel would've done - it would have been wonderful if they would've given me the post OP instructions BEFORE the procedure! When you come out of the OR in your twilight daze, it's kinda hard to comprehend what they are saying. Relax into it and be sure to communicate clearly and precisely to the medical staff in the OR. This is the most important time to get the stimulation exactly where it needs to be. You will do fine - you are well-prepared for this! Rae ![]() |
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"Thanks for this!" says: |
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#18 | |||
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Grand Magnate
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Such is the reason why as Rae posts it is good to have your spouse, significant other, or a family member along who can remember all of the post op restrictions. I do remember being told I was SOLIDLY taped up and to leave it alone...... so we did, then infection developed at the surface of the lead entries to my spinal cord. Yuk. Pus, smell, the bleck which would make someone sick to see it, and it was our daughter who pointed out the fact that it appeared I was "bleeding" in the grocery store as my shirt was wet from an explosion of YUK.
So, take a listener along if you can so they hear the post op blah blah. Try to follow the instrucions. Watch out for infection. AND May your Trial be a blessing to you Rachel! Prayin, Mark56 ![]() |
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"Thanks for this!" says: |
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#19 | ||
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Junior Member
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Thanks Rae, Mark and Jackiey for your kind posts!
I had the trial leads removed yesterday, it was nice to get them out of my back but I am missing the stimulator!! It took a while for them to be able to get the stimulation all the way down into my foot, and in the end I had stimulation down both legs and both feet - which isn't a problem ![]() It has definatly helped with the pain - by about 30% and maybe even 40% at its very best during the night. The swelling and colour and tempreture changes which happen numerous times a day on a 'normal' day almost stopped which was great! I had the trial for a week, and the last three nights with the stimulator were some of the best nights sleep I have had in 18 years!! I was lucky and didn't get an infection (well not in my back anyway - I got a tooth infection on Friday and right side of my face blew up to about three times its normal size - but hey hoo!!! ![]() I am now on the wiaitng list and they hope to operate end of November or the beginning of December - sooner the better although I am a bit nervous ![]() I'm going to write down a whole load of questions I have and go back and ask them before the surgery. I believe I may have to have the battery changed every 2 - 3 years which I guess could be a further 20 operations if I live another 40 years!! Just wanted to say thanks for all your support and any words of wisdom are greatfully received, I don't actually know anyone or have never met anyone with a spinal cord stimulator so I have really gained alot from reading all your stories. Thanks again, Rachel ![]() |
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#20 | |||
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Grand Magnate
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You go girl! You go for the gold and sieze life as though you are fully in touch with the blessing each day the measured pain management through use of the stimulator can deliver you!!! I pray you reach your personal goal of achievement in pain management since you have elected to proceed, and that through it you become fully vested in the passing forward of your blessings to others who will follow you wondering what is this technology all about! You deserve the best!
My Seventeen Second Miracle today was being at the gas station as a young mother coasted her fuel-less Honda SUV to a stop alongside our Eagle Talon. She definitely needed help getting the next twenty feet to the pump and there I was with cane in hand........ Nope, she would not allow me to push, but she, my wife, Cleo, and a bruiser of another guy joined hands pushing the Honda as I "drove" the powerless vehicle safely to the pump for her fuel. So cool! We all were able to participate in the miracle of helping one another succeed. Then I let her know she had just received her Seventeed Second Miracle of the day and encouraged her to read the book by that title. She was so pumped, I believe she may in fact do so. Now it is to you Rachel. You are in line to be able to pass miracles of encouragement to others. I KNOW by GOD I would never have been at that fuel pump, able to organize help for her to get into position for fuel had I not received the MIRACLE of my Boston Scientific Precision Plus SCS. Opportunity for you to gain life anew is possible and I pray awaiting you. Remembering how hard it was for me to "give up" the test leads and return to the PAIN I understand how you will feel as you await your date in line. May you be able to manage and cope with your pain in the meantime. Prayin for YOU, Mark56 ![]() ![]() |
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